2017
Published on the 31 December 2017
12th October: Prof Claire Wakefield was invited to deliver a talk on working strategically in pediatric psycho-oncology and advice on her experience building a multi-disciplinary team with a common purpose. She also presented on the unmet genetics information needs of survivors and parents as well as a summary of her work on eliciting families' acceptability of patient derived xenographs. PhD Candidates Christina Signorelli and Eden Robertson also presented posters. Ms Signorelli's poster detailed survivors' and parents' preferences for different models of survivorship care, whilst Ms Robertson's poster summarised the development and testing of a new online decision aid to assist families deciding whether to enrol their child in a clinical trial.
20th August: Dr Ursula Sansom-Daly was involved in several media pieces during her 2 week residency in the ABC studios. She published an article highlighting the perspectives of adolescent and young adults and the challenges they face during and after cancer treatment. She starred on The Science Show voicing common things young people say about other people’s reactions to their cancer. She was also involved in an interview on the radio show All in The Mind, discussing the challenges and experiences of life after cancer with two previous Recapture Life participants.
August 3: Tristan Parry an animator and illustrator has won major awards for his depiction of the book 'By My Side'. The book is comprised of interview excerpts from researcher Leigh Donovan's PhD at UNSW and explores the stories and needs of parents whose children have died from cancer. It was created with support from the Kids Cancer Centre in collaboration with Red Kite.
1st August: Clinical Psychologist Brittany McGill was interviewed on Chanel 7's 'The Daily Edition' alongside Tracey Newnham, mum and author of a children's book teaching kids about grief and how to cope with it, titled "In the Rainbow".
29th July: Dr Ursula Sansom-Daly was interviewed for the ABC's 'The Science Show' on her work aimed at developing online psychological support services for young people following their cancer treatment.
24th July: Dr Joanna Fardell was interviewed by The Kids' Cancer Project on the progress of the 'Ready, Steady, School' Project, helping children with cancer return to school in the best way possible.
14th July: Dr Ursula Sansom-Daly was interviewed for the ABC's 'Life Matters' segment on being diagnosed with cancer as a young adult.
22nd June: Ms Christina Signorelli presented a poster at the MASCC/ISOO Annual Meeting on Supportive Care in Cancer, held in Washington DC, United States, on survivors and parents confidence in GPs' ability to deliver survivorship care, and GPs' confidence in doing so. She was awarded the MASCC/ISOO Young Investigator Award for being 1 of the top 10 abstracts submitted to the conference.
19 June: Prof Glenn Marshall was interviewed for the ABC's "AM", on findings of the EduSwell study which highlighted the need for greater educational support for children with chronic illnesses, including cancer.
17th June: Ms Christina Signorelli presented a poster at the 15th International Conference on Long-Term Complications of Treatment of Children and Adolescents for Cancer, held in Atlanta GA, United States, on the role of primary care physicians in survivorship care.
17th June: Dr Janine Vetsch and Ms Eden Robertson presented at the Australian and New Zealand Children's Haematology/Oncology Group Annual Scientific Meeting in Adelaide. Dr Vetsch presented the results of a systematic review on the health-related quality of life of ALL patients and survivors, while Ms Robertson presented on the complexity of decision making in paediatric oncology and the development of Delta, a decision aid support families making clinical trial decisions. Prof Claire Wakefield also participated in the Cancer Predisposition Syndromes Panel Discussion.
2nd April: Prof Claire Wakefield was interviewed for the 2ser's (107.3FM) "Think: Health" Podcast, on the BSU's work evaluating the impact of cancer on survivors and the whole family unit.
9th April: Prof Claire Wakefield was interviewed for the 2ser's (107.3FM) "The Daily", on the stigma around sickness and health, particularly of having a serious or chronic illness.