School of Clinical Medicine Behavioural Sciences Unit

Engage brain study

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Helping to re-engage childhood brain cancer survivors into essential, life-long, follow-up care.

Long term follow-up care for survivors of childhood brain cancer is critical. However many survivors find it difficult to receive adequate follow-up care. Our team have developed a new program called ‘Re-engage’, which can be delivered online or over the phone. Re-engage aims to engage childhood brain cancer survivors into essential lifelong survivorship care, with a goal of supporting brain cancer survivors to manage their health needs.

To support survivors following their treatment, the Behavioural Sciences Unit are offering survivors the opportunity to trial our program called ‘Re-engage’. Survivors who participate will be able to receive survivorship care online or via telephone, without having to wait for a face-to-face clinic appointment.

The feedback we receive will help us to improve the delivery of long term follow-up care for survivors of childhood brain cancer. 

What does this study aim to achieve?

The study aims to improve childhood brain cancer survivors’:

  • quality of life and self-efficacy
  • knowledge about late effects
  • satisfaction with care
  • adherence to recommended follow-up

We are also interested in understanding how feasible ‘Re-engage’ would be to implement across Australia.​

Would you like to be involved?

This study is currently recruiting people who meet the following criteria:

  • currently over 16 years of age;
  • previously diagnosed with brain cancer at the age of 16 years or younger;
  • completed all treatment and currently in remission;
  • was diagnosed with cancer at least 5 years ago.

Parents of younger childhood brain cancer survivors are  also be eligible to participate on behalf of their child.

What does participation involve?

  1. You will be asked to participate in two online or telephone consultations with a nurse or health professional who specialises in cancer survivorship (these should take up to 45 minutes each)
  2. Complete questionnaires before and after the consultations, which should take about 20-30 minutes each to complete

To participate in this study, please:

For more information, please contact the study co-ordinator:
​
        Dr Jordana McLoone
        E: engage@unsw.edu.au
 
This study is funded by Australia Brain Cancer Mission (Medical Research Future Fund) and supported by the Australian and New Zealand Children's Haematology/Oncology Group.