Between 2000 and 2022, the Psychosocial Research Group, under the leadership of Professor Bettina Meiser, School of Clinical Medicine, UNSW, has been conducting nationally and internationally recognised research in the area of the psychological and behavioural implications of genetics and related areas. As part of its research, the group developed and tested educational resources in the area of genetics, using funding from the National Health and Medical Research Council of Australia, the Cancer Council of New South Wales (NSW), the Cancer Institute NSW, the Australian Research Council and Cancer Australia.
Resources include decision aids for patients with, or at high risk for, cancer, including online and low literacy decision aids. The group has also developed resources for people considering prenatal screening, a psychoeducational website for people with a family history of depression, a low-literacy booklet for patients undergoing radiation therapy and an innovative online resource to train oncology health professionals in how to best communicate with people from culturally and linguistically diverse backgrounds.
All of these resources are being reviewed and updated on a regular basis and are downloadable at the below links.
Access our freely available resources developed by the Psychosocial Research Group. For enquiries about our resources, please contact Professor Bettina Meiser.
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- Surgery to Reduce the Risk of Ovarian Cancer
- Understanding genetic tests for breast and ovarian cancer that runs in the family
- Fertility-related choices: A decision aid for younger women with early breast cancer
- Understanding genetic tests for men who have a family history of breast and ovarian cancer
- Understanding genetic tests for Lynch syndrome
- Making decisions about screening for Down syndrome in pregnancy
- Making a decision about accessing genetic information for cancer risk
- Prostate cancer screening : Decisions for men with a family history of prostate cancer
- Low literacy decision aid to facilitate decisions about genetic testing for inherited breast and ovarian cancer
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- Understanding genetic testing after a diagnosis of ovarian cancer
- Genomic testing and your chances of developing breast cancer
- Making a decision about treatment-focused genetic testing
- Taking tamoxifen to lower your chances of breast cancer
- Taking aspirin to lower my chance of bowel cancer: Information for people with Lynch syndrome
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- Information for women considering preventative mastectomy because of a strong family history of breast cancer
- Understanding your radiation therapy treatment