Dr Clarissa Schilstra
Postdoctoral Fellow

Dr Clarissa Schilstra

BA Psych (Hons), PhD

Medicine & Health
School of Clinical Medicine

Dr Clarissa Schilstra is a postdoctoral research fellow within Australia's largest paediatric psycho-oncology research group: the Behavioural Sciences Unit at the Kids Cancer Centre, Sydney Children's Hospital and UNSW. Dr Schilstra's research focuses on the social impacts of a cancer diagnosis and treatment on adolescents and young adults, from time of diagnosis through post-treatment and survivorship. Her PhD research assessed and addressed social anxiety and its impact on social wellbeing among Australian adolescents and young adults diagnosed with cancer. Dr Schilstra is also a two-time cancer survivor herself andis therefore a passionate advocate for consumer-led psycho-oncology research that is prioristised, planned, and conducted by people with lived experience of cancer. She led the first face-to-face Australian workshop for defining the research priorities of adolescent and young adult cancer survivors, which informed her PhD research and led Dr Schilstra to develop the first-ever, evidence-based guidelines for caring for the social wellbeing of adolescents and young adults with cancer in Australia. Outside of her work with the BSU, Dr Schilstra also serves as a consumer representative for the World Health Organisation Global Initiative for Childhood Cancer and the International Late Effects of Childhood Cancer Guidelines Harmonization Group. 

Location
Kids Cancer Centre, Level 1 South Sydney Children's Hospital, High Street Randwick NSW 2031
  • Journal articles | 2024
    Cayrol J; Wakefield CE; Ilbawi A; Donoghoe M; Hoffman R; Echodu M; Schilstra C; Ortiz R; Wiener L, 2024, 'The lived experience of people affected by cancer: A global cross-sectional survey protocol.', PLoS One, 19, pp. e0294492, http://dx.doi.org/10.1371/journal.pone.0294492
    Journal articles | 2023
    Schilstra CE; Ellis SJ; Cohen J; Gall A; Diaz A; Clarke K; Dumlao G; Chard J; Cumming T; Davis E; Dhillon H; Burns MA; Docking K; Koh E-S; O'Reilly J; Sansom-Daly UM; Shaw J; Speers N; Taylor N; Warne A; Fardell JE, 2023, 'The need for support to resume study and work in adolescents and young adults with cancer: An environmental scan of online information and resources (Preprint)', JMIR Cancer, http://dx.doi.org/10.2196/47944
    Journal articles | 2023
    Schilstra CE; Sansom-Daly UM; Ellis SJ; Trahair TN; Anazodo AC; Amiruddin A; Lindsay T; Maguire F; Wakefield CE; Lah S; Bland E; Lenthen K; Rifkin A; Awan A; Kittos T; Hanbury N; Tsalidis S; Patterson P; McDonald F; Fardell JE, 2023, 'Guidelines for Caring for the Social Well-Being of Adolescents and Young Adults with Cancer in Australia', Journal of Adolescent and Young Adult Oncology, http://dx.doi.org/10.1089/jayao.2023.0027
    Journal articles | 2022
    Schilstra CE; Fardell JE; Ellis SJ; Jones KM; Anazodo AC; Trahair TN; Lah S; Cohn RJ; Wakefield CE; Sansom-Daly UM, 2022, 'Social Anxiety Symptoms in Survivors of Childhood and Adolescent Cancer', Journal of Adolescent and Young Adult Oncology, 11, pp. 129 - 137, http://dx.doi.org/10.1089/jayao.2021.0050
    Journal articles | 2022
    Schilstra CE; McCleary K; Fardell JE; Donoghoe MW; McCormack E; Kotecha RS; Lourenco RDA; Ramachandran S; Cockcroft R; Conyers R; Cross S; Dalla-Pozza L; Downie P; Revesz T; Osborn M; Alvaro F; Wakefield CE; Marshall GM; Mateos MK; Trahair TN, 2022, 'Prospective longitudinal evaluation of treatment-related toxicity and health-related quality of life during the first year of treatment for pediatric acute lymphoblastic leukemia', BMC Cancer, 22, http://dx.doi.org/10.1186/s12885-022-10072-x
    Journal articles | 2022
    Schilstra CE; Sansom-Daly UM; Schaffer M; Fardell JE; Anazodo AC; McCowage G; Fletcher JI; Marshall GM; Buchhorn-White J; Evtushenko M; Trahair TN; Ellis SJ, 2022, '"we Have All This Knowledge to Give, so Use Us as a Resource": Partnering with Adolescent and Young Adult Cancer Survivors to Determine Consumer-Led Research Priorities', Journal of Adolescent and Young Adult Oncology, 11, pp. 211 - 222, http://dx.doi.org/10.1089/jayao.2021.0052
    Journal articles | 2021
    Schilstra CE; Fardell JE; Burns MA; Ellis SJ; Anazodo AC; Trahair TN; Sansom-Daly UM, 2021, 'Determinants of social functioning among adolescents and young adults with cancer: A systematic review', Psycho-Oncology, http://dx.doi.org/10.1002/pon.5740
    Journal articles | 2020
    Nevin SM; Wakefield CE; Schilstra CE; McGill BC; Bye A; Palmer EE, 2020, 'The information needs of parents of children with early-onset epilepsy: A systematic review', Epilepsy and Behavior, 112, http://dx.doi.org/10.1016/j.yebeh.2020.107382
    Journal articles | 2019
    Ellis SJ; Fardell JE; Wakefield CE; Schilstra CE; Burns MA; Donnan B; Walwyn T; Lum A; Marshall G; Carter A; Barton B; Cohn RJ, 2019, 'Are we meeting the training needs of healthcare and education professionals supporting children with cancer in their return to school?', Pediatric Blood and Cancer, 66, http://dx.doi.org/10.1002/pbc.27575
    Journal articles | 2018
    Sendak MD; Schilstra C; Tye E; Brotkin S; Maslow G, 2018, 'Positive Youth Development at Camps for Youth with Chronic Illness: A Systematic Review of the Literature', JOURNAL OF YOUTH DEVELOPMENT, 13, pp. 201 - 215, http://dx.doi.org/10.5195/jyd.2018.551
  • Preprints | 2023
    Schilstra CE; Ellis SJ; Cohen J; Gall A; Diaz A; Clarke K; Dumlao G; Chard J; Cumming T; Davis E; Dhillon H; Burns MA; Docking K; Koh E-S; O'Reilly J; Sansom-Daly UM; Shaw J; Speers N; Taylor N; Warne A; Fardell JE, 2023, Supporting adolescents and young adults with cancer to resume study and work: An environmental scan of online information and resources (Preprint), , http://dx.doi.org/10.2196/preprints.47944

Dean's Award for Outstanding PhD Thesis, UNSW