Dr Clarissa Schilstra

Dr Clarissa Schilstra

Postdoctoral Fellow

BA Psych (Hons), PhD

Medicine & Health
School of Clinical Medicine

Dr Clarissa Schilstra is a postdoctoral research fellow within Australia's largest paediatric psycho-oncology research group: the Behavioural Sciences Unit at the Kids Cancer Centre, Sydney Children's Hospital and UNSW. Dr Schilstra's research focuses on the social impacts of a cancer diagnosis and treatment on adolescents and young adults, from time of diagnosis through post-treatment and survivorship. Her PhD research assessed and addressed social anxiety and its impact on social wellbeing among Australian adolescents and young adults diagnosed with cancer. Dr Schilstra is also a two-time cancer survivor herself andis therefore a passionate advocate for consumer-led psycho-oncology research that is prioristised, planned, and conducted by people with lived experience of cancer. She led the first face-to-face Australian workshop for defining the research priorities of adolescent and young adult cancer survivors, which informed her PhD research and led Dr Schilstra to develop the first-ever, evidence-based guidelines for caring for the social wellbeing of adolescents and young adults with cancer in Australia. Outside of her work with the BSU, Dr Schilstra also serves as a consumer representative for the World Health Organisation Global Initiative for Childhood Cancer and the International Late Effects of Childhood Cancer Guidelines Harmonization Group. 

Location
Kids Cancer Centre, Level 1 South Sydney Children's Hospital, High Street Randwick NSW 2031
  • Journal articles | 2024
    Cayrol J; Wakefield CE; Ilbawi A; Donoghoe M; Hoffman R; Echodu M; Schilstra C; Ortiz R; Wiener L; Gok C, 2024, 'The lived experience of people affected by cancer: A global cross-sectional survey protocol', PLoS ONE, 19, pp. e0294492, http://dx.doi.org/10.1371/journal.pone.0294492
    Journal articles | 2024
    Fardell JE; Schilstra C; Hikila J; Collins D; Kelada L; Lah S; Cohn RJ; Wakefield CE; Ellis S, 2024, 'Survivors of child and adolescent cancer experiences of bullying at school or work: self-report and parent proxy report', Journal of Psychosocial Oncology Research and Practice, 6, http://dx.doi.org/10.1097/or9.0000000000000130
    Journal articles | 2024
    Schilstra CE; Ellis SJ; Cohen J; Gall A; Diaz A; Clarke K; Dumlao G; Chard J; Cumming TM; Davis E; Dhillon H; Burns MA; Docking K; Koh ES; O'Reilly J; Sansom-Daly UM; Shaw J; Speers N; Taylor N; Warne A; Fardell JE, 2024, 'Exploring Web-Based Information and Resources That Support Adolescents and Young Adults With Cancer to Resume Study and Work: Environmental Scan Study', JMIR Cancer, 10, http://dx.doi.org/10.2196/47944
    Journal articles | 2024
    Schilstra CE; Sansom-Daly UM; Ellis SJ; Anazodo AC; Trahair TN; Lindsay T; Amiruddin A; O'Dwyer C; Maguire F; Nevin S; Battisti R; Fardell JE, 2024, 'Social Anxiety Symptoms in Adolescents and Young Adults Recently Diagnosed with Cancer', Journal of Adolescent and Young Adult Oncology, http://dx.doi.org/10.1089/jayao.2023.0186
    Journal articles | 2024
    Schilstra CE; Sansom-Daly UM; Ellis SJ; Trahair TN; Anazodo AC; Amiruddin A; Lindsay T; Maguire F; Wakefield CE; Lah S; Bland E; Lenthen K; Rifkin A; Awan A; Kittos T; Hanbury N; Tsalidis S; Patterson P; McDonald F; Fardell JE, 2024, 'Guidelines for Caring for the Social Well-Being of Adolescents and Young Adults with Cancer in Australia', Journal of Adolescent and Young Adult Oncology, 13, pp. 8 - 29, http://dx.doi.org/10.1089/jayao.2023.0027
    Journal articles | 2022
    Schilstra CE; Fardell JE; Ellis SJ; Jones KM; Anazodo AC; Trahair TN; Lah S; Cohn RJ; Wakefield CE; Sansom-Daly UM, 2022, 'Social Anxiety Symptoms in Survivors of Childhood and Adolescent Cancer', Journal of Adolescent and Young Adult Oncology, 11, pp. 129 - 137, http://dx.doi.org/10.1089/jayao.2021.0050
    Journal articles | 2022
    Schilstra CE; McCleary K; Fardell JE; Donoghoe MW; McCormack E; Kotecha RS; Lourenco RDA; Ramachandran S; Cockcroft R; Conyers R; Cross S; Dalla-Pozza L; Downie P; Revesz T; Osborn M; Alvaro F; Wakefield CE; Marshall GM; Mateos MK; Trahair TN; Gok C, 2022, 'Prospective longitudinal evaluation of treatment-related toxicity and health-related quality of life during the first year of treatment for pediatric acute lymphoblastic leukemia', BMC Cancer, 22, pp. 985, http://dx.doi.org/10.1186/s12885-022-10072-x
    Journal articles | 2022
    Schilstra CE; Sansom-Daly UM; Schaffer M; Fardell JE; Anazodo AC; McCowage G; Fletcher JI; Marshall GM; Buchhorn-White J; Evtushenko M; Trahair TN; Ellis SJ, 2022, '"we Have All This Knowledge to Give, so Use Us as a Resource": Partnering with Adolescent and Young Adult Cancer Survivors to Determine Consumer-Led Research Priorities', Journal of Adolescent and Young Adult Oncology, 11, pp. 211 - 222, http://dx.doi.org/10.1089/jayao.2021.0052
    Journal articles | 2021
    Schilstra CE; Fardell JE; Burns MA; Ellis SJ; Anazodo AC; Trahair TN; Sansom-Daly UM; Gok C, 2021, 'Determinants of social functioning among adolescents and young adults with cancer: A systematic review', Psycho-Oncology, 30, pp. 1626 - 1642, http://dx.doi.org/10.1002/pon.5740
    Journal articles | 2020
    Nevin SM; Wakefield CE; Schilstra CE; McGill BC; Bye A; Palmer EE, 2020, 'The information needs of parents of children with early-onset epilepsy: A systematic review', Epilepsy and Behavior, 112, pp. 107382, http://dx.doi.org/10.1016/j.yebeh.2020.107382
    Journal articles | 2019
    Ellis SJ; Fardell JE; Wakefield CE; Schilstra CE; Burns MA; Donnan B; Walwyn T; Lum A; Marshall G; Carter A; Barton B; Cohn RJ; Gok C, 2019, 'Are we meeting the training needs of healthcare and education professionals supporting children with cancer in their return to school?', Pediatric Blood and Cancer, 66, pp. e27575, http://dx.doi.org/10.1002/pbc.27575
    Journal articles | 2018
    Sendak MD; Schilstra C; Tye E; Brotkin S; Maslow G; Gok C, 2018, 'Positive Youth Development at Camps for Youth with Chronic Illness: A Systematic Review of the Literature', Journal of Youth Development, 13, pp. 201 - 215, http://dx.doi.org/10.5195/jyd.2018.551
  • Preprints | 2023
    Schilstra CE; Ellis SJ; Cohen J; Gall A; Diaz A; Clarke K; Dumlao G; Chard J; Cumming TM; Davis E; Dhillon H; Burns MA; Docking K; Koh E-S; O'Reilly J; Sansom-Daly UM; Shaw J; Speers N; Taylor N; Warne A; Fardell JE, 2023, Exploring Web-Based Information and Resources That Support Adolescents and Young Adults With Cancer to Resume Study and Work: Environmental Scan Study (Preprint), , http://dx.doi.org/10.2196/preprints.47944

Dean's Award for Outstanding PhD Thesis, UNSW