Dr Hayley Smithers-Sheedy

Dr Hayley Smithers-Sheedy

Senior Research Associate

BAppSc(SpPath), MPH, PhD

Medicine & Health
School of Clinical Medicine

Dr Hayley Smithers-Sheedy is a Senior Research Associate in Paediatric Population Health at UNSW where she is the study coordinator for the RuralKidsGPS study.

RuralKidsGPS is a paediatric care coordination program for children with complex health conditions which aims to work with local teams to identify opportunities to integrate and share care, deliver virtually-enabled care, streamline appointments, avoid unnecessary hospitalisations, and prevent ED attendances.

 

  • Book Chapters | 2023
    Goldsmith S; McIntyre S; Blair E; Smithers-Sheedy H; Badawi N; Hansen M, 2023, 'Cerebral palsy: Epidemiology', in Neurodevelopmental Pediatrics Genetic and Environmental Influences, pp. 479 - 495, http://dx.doi.org/10.1007/978-3-031-20792-1_31
    Book Chapters | 2020
    Himmelmann K; McIntyre S; Goldsmith S; Smithers-Sheedy H; Watson L, 2020, 'Epidemiology of Cerebral Palsy', in Cerebral Palsy Second Edition, pp. 131 - 146, http://dx.doi.org/10.1007/978-3-319-74558-9_9
    Book Chapters | 2018
    Himmelmann K; McIntyre S; Goldsmith S; Smithers-Sheedy H; Watson L, 2018, 'Epidemiology of Cerebral Palsy', in Cerebral Palsy, Springer International Publishing, pp. 1 - 16, http://dx.doi.org/10.1007/978-3-319-50592-3_9-1
  • Journal articles | 2026
    Henry G; Honan I; Waight E; Swinburn K; Given F; McIntyre S; Smithers-Sheedy H, 2026, 'Experiences of a Mindfulness-Based Telehealth Program Modified for Adults with Cerebral Palsy—A Qualitative Study', Healthcare Switzerland, 14, http://dx.doi.org/10.3390/healthcare14020197
    Journal articles | 2026
    Smithers-Sheedy H; Croker H; Adley A; Shand AW; Swinburn K; Tripathi T; Rode N; Hui L, 2026, 'The Right to Know About CMV—Perspectives of Pregnant Women and Families With Lived Experience of CMV', Reviews in Medical Virology, 36, http://dx.doi.org/10.1002/rmv.70096
    Journal articles | 2026
    Smithers-Sheedy H; Goldsmith S; Gibson C; Reid SM; Hansen M; Watson L; Auld M; Badawi N; McIntyre S, 2026, 'Simplifying the language in the proposed description of cerebral palsy: Less is more', Developmental Medicine and Child Neurology, 68, pp. 571 - 572, http://dx.doi.org/10.1111/dmcn.16420
    Journal articles | 2025
    Chandrasekaran P; Bowen A; Jones CA; Sung V; Clark JE; Britton PN; Palasanthiran P; Waight E; Gillespie AN; Sheedy HS, 2025, 'Longitudinal observational research study: establishing the Australasian Congenital Cytomegalovirus Register (ACMVR)', BMJ Open, 15, http://dx.doi.org/10.1136/bmjopen-2024-095636
    Journal articles | 2025
    Jahan I; Vakaloloma U; Perera S; Tuibeqa I; Devi R; Volavola L; May W; Wilson D; Tuimabu L; Power R; Woolfenden S; Danchin M; Mcintyre S; Smithers-Sheedy H; Badawi N; Macartney K; Khandaker G; Sheel M, 2025, 'Vaccination and its social and behavioural drivers in children with disability in Fiji', BMJ Global Health, 10, http://dx.doi.org/10.1136/bmjgh-2024-017510
    Journal articles | 2025
    Lansdown K; Bulkeley K; McGrath M; Irving M; Zagreanu C; Smithers-Sheedy H, 2025, 'A Survey of Oral Health-Related Quality of Life for Adults with Cerebral Palsy in Australia', Dentistry Journal, 13, http://dx.doi.org/10.3390/dj13090407
    Journal articles | 2025
    Lansdown K; Bulkeley K; McGrath M; Irving M; Zagreanu C; Smithers-Sheedy H, 2025, 'Dental care and services of children and young people with cerebral palsy in Australia: A comprehensive survey of oral health-related quality of life', Special Care in Dentistry, 45, http://dx.doi.org/10.1111/scd.13098
    Journal articles | 2025
    Lansdown K; Smithers-Sheedy H; Bulkeley K; Zagreanu C; Irving M; McGrath M, 2025, '“The whole thing is just really difficult”: experiences of dental services for children and adults with cerebral palsy in Australia—a qualitative study', Disability and Rehabilitation, http://dx.doi.org/10.1080/09638288.2025.2593749
    Journal articles | 2025
    Miller C; Smithers-Sheedy H; Hu N; Schmidt D; Christie A; Morris T; Sanci L; Lingam R, 2025, 'Reducing Health Inequity for Children and Young People in Rural Australia: Are Digital Interventions a Panacea? A Rural Generalist's Commentary', Australian Journal of Rural Health, 33, http://dx.doi.org/10.1111/ajr.70015
    Journal articles | 2025
    Munns CF; Bentley LA; Boyd RN; Brookes D; Taylor MJ; Pivonka P; Nassar N; Trost SG; Little JP; Tucker K; Burns J; Sakzewski L; Badawi N; Ware RS; Comans T; Willoughby KL; Paget S; AusCP MSK Collaborator Group , 2025, 'Study protocol for the Australasian Cerebral Palsy Musculoskeletal Health Network (AusCP MSK) prospective cohort study: early detection of musculoskeletal complications in young children with moderate to severe cerebral palsy (GMFCS III-V).', BMJ Open, 15, pp. e095526, http://dx.doi.org/10.1136/bmjopen-2024-095526
    Journal articles | 2025
    Nobilo A; McLoone J; White M; Smithers-Sheedy H; Anderson J; Lingam R; Bailey C; Wakefield CE; Hancock JE; Hodgins M; Woolfenden S; Steinbeck K; Pierce K; Moore C; Lain S; Ho J; Glasson N; Gialamas A; Culnane E; Cazzolli R, 2025, 'Co-design of an intervention to enhance healthcare transition for adolescents and young adults with chronic medical conditions', Npj Health Systems, 2, http://dx.doi.org/10.1038/s44401-025-00041-4
    Journal articles | 2025
    Ostojic K; Karem I; Dee-Price BJ; Paget SP; Berg A; Burnett H; Scott TR; Strnadová I; Woolfenden SR; Azmatullah S; Cadiri M; Calderan J; Chambers G; Dale R; Rojas DD; Eapen V; Henry G; Lingam R; Martin T; Masi A; McIntyre S; Mimmo L; Mohamed M; Olaso A; Scarcella M; Scott T; Shiva S; Smithers-Sheedy H; Stojanovic V; van Hoek D; van Hoek M; Vasquez J; Wallace S; Wilkinson A; Woodbury M; Zacharko J; Zwi K, 2025, 'Development of a new social prescribing intervention for families of children with cerebral palsy', Developmental Medicine and Child Neurology, 67, pp. 223 - 234, http://dx.doi.org/10.1111/dmcn.16039
    Journal articles | 2025
    Ostojic K; Karem I; Paget S; Mimmo L; Berg A; Scott T; Burnett H; McIntyre S; Smithers-Sheedy H; Azmatullah S; Calderan J; Mohamed M; Olaso A; van Hoek D; van Hoek M; Woodbury M; Wilkinson A; Henry G; Shiva S; Zwi K; Lingam R; Dale R; Eapen V; Dee-Price BJ; Strnadová I; Woolfenden S, 2025, 'A qualitative study investigating the experiences of unmet social needs for children with cerebral palsy and their families: perspectives of parents and clinicians', Disability and Rehabilitation, 47, pp. 2278 - 2287, http://dx.doi.org/10.1080/09638288.2024.2391557
    Journal articles | 2025
    Power R; Vakaloloma U; Jahan I; Perera S; Tuibeqa I; Devi R; Volavola L; May W; Wilson D; Tuimabu L; Khandaker G; Sheel M; Woolfenden S; Danchin M; McIntyre S; Smithers-Sheedy H; Badawi N; Macartney K, 2025, '"Fear of the unknown": Health, disability, and stakeholder perspectives on the behavioral and social drivers of vaccination in children with disability in Fiji', Plos Global Public Health, 5, http://dx.doi.org/10.1371/journal.pgph.0004132
    Journal articles | 2025
    Smithers-Sheedy H; McIntyre S, 2025, 'Trends in Postneonatally Acquired Cerebral Palsy: Insights From a CP Surveillance Network', Paediatric and Perinatal Epidemiology, 39, pp. 299 - 300, http://dx.doi.org/10.1111/ppe.70004
    Journal articles | 2025
    Smithers-Sheedy H; Swinburn K; Rode N; Tripathi T; Holmes N; Waight E; Webb A; Britton PN; Stump H; Shand A; Hui L, 2025, 'Educating antenatal patients about cytomegalovirus infection: An e-learning package improves general practitioners’ knowledge and intention to implement clinical guidelines', Australian Journal of General Practice, 54, pp. 407 - 412, http://dx.doi.org/10.31128/AJGP-11-24-7478
    Journal articles | 2025
    Tripathi T; Watson J; Smithers-Sheedy H; Swinburn K; Rode N; Waight E; Webb A; Holmes NE; Stump H; Shand A; Hui L, 2025, 'A 2-Min Cytomegalovirus (CMV) Awareness Video Improves Pregnant Women's Knowledge and Planned Adherence to Hygiene Precautions', Australian and New Zealand Journal of Obstetrics and Gynaecology, 65, pp. 662 - 670, http://dx.doi.org/10.1111/ajo.70016
    Journal articles | 2025
    Waight E; Epps A; Smithers-Sheedy H; Goldsmith S; Woolfenden S; Paget S; Hanns K; French K; Burnett H; Ward A; Shaw A; Bau K; Diviney L; Henry G; Badawi N; Kyriagis M; McIntyre S, 2025, 'Improving Register Ascertainment of Children With Post-Neonatally Acquired Cerebral Palsy Through Health Service Partnerships', Paediatric and Perinatal Epidemiology, 39, pp. 348 - 353, http://dx.doi.org/10.1111/ppe.70002
    Journal articles | 2025
    Waight E; McIntyre S; Woolfenden S; Goldsmith S; Reid S; Watson L; Britton PN; Webb A; Hansen M; Badawi N; Smithers-Sheedy H, 2025, 'Cause-Specific Secular Trends and Prevention Measures of Post-Neonatally Acquired Cerebral Palsy in Victoria and Western Australia 1975–2014: A Population-Based Observational Study', Journal of Paediatrics and Child Health, 61, pp. 424 - 432, http://dx.doi.org/10.1111/jpc.16760
    Journal articles | 2025
    Yeoh A; Ostojic K; Berg A; Garg A; Mcintyre S; Scott T; Eapen V; Woolfenden S; Paget S; Azmatullah S; Burnett H; Cadiri M; Calderan J; Chambers G; Dale R; Dee-Price BJ; Rojas DD; Henry G; Karem I; Lingam R; Martin T; Masi A; Mimmo L; Mohamed M; Olaso A; Scarcella M; Scott T; Shiva S; Smithers-Sheedy H; Stojanovic V; Strnadová I; van Hoek D; van Hoek M; Vasquez J; Wilkinson A; Woodbury M; Zacharko J; Zwi K, 2025, 'Sociodemographic and clinical indicators of children and young people with cerebral palsy and reported unmet social needs', Developmental Medicine and Child Neurology, 67, pp. 245 - 253, http://dx.doi.org/10.1111/dmcn.16041
    Journal articles | 2025
    de Groot A; Hutchinson K; Lingam R; Fletcher J; Hickman A; Murphy J; Smithers-Sheedy H; Zurynski Y, 2025, 'Coordinating rural healthcare to support whole families caring for children with medical complexity', INTERNATIONAL JOURNAL OF INTEGRATED CARE, 25, http://dx.doi.org/10.5334/ijic.NACIC24049
    Journal articles | 2024
    Goldsmith S; Smithers-Sheedy H; Almasri N; Andersen GL; Diviney L; Gincota EB; Himmelmann K; Jahan I; Waight E; McIntyre S, 2024, 'Cerebral palsy registers around the world: A survey', Developmental Medicine and Child Neurology, 66, pp. 765 - 777, http://dx.doi.org/10.1111/dmcn.15798
    Journal articles | 2024
    Jahan I; Bashar SMK; Laryea F; Amponsah SK; Danquah FI; Muhit M; Smithers-Sheedy H; McIntyre S; Badawi N; Khandaker G, 2024, 'Epidemiology of cerebral palsy among children in Ghana', African Journal of Disability, 13, http://dx.doi.org/10.4102/AJOD.V13I0.1336
    Journal articles | 2024
    Jahan I; Sultana R; Laryea F; Amponsah SK; Danquah FI; Muhit M; Bashar SMK; Smithers-Sheedy H; McIntyre S; Badawi N; Khandaker G, 2024, 'Nutritional status of children with cerebral palsy in Ghana', African Journal of Disability, 13, http://dx.doi.org/10.4102/AJOD.V13I0.1335
    Journal articles | 2024
    Ostojic K; Karem I; Paget S; Berg A; Burnett H; Scott T; Martin T; Dee-Price BJ; McIntyre S; Smithers-Sheedy H; Mimmo L; Masi A; Scarcella M; Azmatullah S; Calderan J; Mohamed M; Olaso A; Van Hoek M; Van Hoek D; Woodbury M; Wilkinson A; Chambers G; Zwi K; Dale R; Eapen V; Lingam R; Strnadová I; Woolfenden S, 2024, 'EPIC-CP pilot trial study protocol: A multicentre, randomised controlled trial investigating the feasibility and acceptability of social prescribing for Australian children with cerebral palsy', BMJ Open, 14, http://dx.doi.org/10.1136/bmjopen-2023-076304
    Journal articles | 2024
    Ostojic K; Karem I; Paget SP; Berg A; Dee-Price BJ; Lingam R; Dale RC; Eapen V; Woolfenden S, 2024, 'Social determinants of health for children with cerebral palsy and their families', Developmental Medicine and Child Neurology, 66, pp. 32 - 40, http://dx.doi.org/10.1111/dmcn.15640
    Journal articles | 2024
    Smithers-Sheedy H; Waight E; Goldsmith S; Reid S; Gibson C; Scott H; Watson L; Auld M; Kay F; Wiltshire C; Hinwood G; Webb A; Martin T; Badawi N; McIntyre S, 2024, 'Cerebral palsy in Australia: birth prevalence, 1995–2016, and differences by residential remoteness: a population-based register study', Medical Journal of Australia, 221, pp. 533 - 539, http://dx.doi.org/10.5694/mja2.52487
    Journal articles | 2024
    Smithers-Sheedy H; Waight E; Swinburn KL; Given F; Hooke K; Webb A; McIntyre S; Henry G; Honan I, 2024, 'Evaluation of a Modified Mindfulness-Based Stress Reduction Intervention for Adults with Cerebral Palsy and Anxiety and/or Emotion Regulation Difficulties—A Randomised Control Trial', Journal of Clinical Medicine, 13, http://dx.doi.org/10.3390/jcm13010001
    Journal articles | 2024
    Wilson YA; Garrity N; Smithers-Sheedy H; Goldsmith S; Karim T; Henry G; Paget S; Kyriagis M; Badawi N; Baynam G; Gecz J; McIntyre S, 2024, 'Clinically Relevant Genes Identified in Cerebral Palsy Cohorts Following Evaluation of the Clinical Description and Phenotype: A Systematic Review', Journal of Child Neurology, 39, pp. 500 - 509, http://dx.doi.org/10.1177/08830738241277231
    Journal articles | 2023
    Boyd RN; Novak I; Morgan C; Bora S; Sakzewski L; Ware RS; Comans T; Fahey MC; Whittingham K; Trost S; Pannek K; Pagnozzi A; McIntyre S; Badawi N; Smithers Sheedy H; Palmer KR; Burgess A; Keramat A; Bell K; Hines A; Benfer K; Gascoigne-Pees L; Leishman S; Oftedal S, 2023, 'School readiness of children at high risk of cerebral palsy r andomised to early neuroprotection and neurorehabilitation: protocol for a follow-up study of participants from four randomised clinical trials', BMJ Open, 13, http://dx.doi.org/10.1136/bmjopen-2022-068675
    Journal articles | 2023
    Garne E; Goldsmith S; Barisic I; Braz P; Dakovic I; Gibson C; Hansen M; Hoei-Hansen CE; Hollung SJ; Klungsøyr K; Smithers-Sheedy H; Virella D; Badawi N; Watson L; McIntyre S, 2023, 'Severe Congenital Heart Defects and Cerebral Palsy', Journal of Pediatrics, 262, http://dx.doi.org/10.1016/j.jpeds.2023.113617
    Journal articles | 2023
    Honan I; Sharp N; McIntyre S; Smithers-Sheedy H; Balde I; Quinn K; Morgan M; Rothery S; Butchers T; Laugeson E, 2023, 'Program evaluation of an adapted PEERS® social skills program in young adults with autism spectrum disorder and/or mild intellectual impairment and social skills difficulties', Journal of Evaluation in Clinical Practice, 29, pp. 126 - 135, http://dx.doi.org/10.1111/jep.13743
    Journal articles | 2023
    Honan I; Waight E; Bratel J; Given F; Badawi N; McIntyre S; Smithers-Sheedy H, 2023, 'Emotion Regulation Is Associated with Anxiety, Depression and Stress in Adults with Cerebral Palsy', Journal of Clinical Medicine, 12, http://dx.doi.org/10.3390/jcm12072527
    Journal articles | 2023
    Hutchinson K; Lingam R; Smithers-Sheedy H; Bula K; Collings D; Zurynski Y, 2023, 'Integrated care for children in rural Australia: Barriers and enablers during early implementation', International Journal of Integrated Care, 23, pp. 531 - 531, http://dx.doi.org/10.5334/ijic.icic23544
    Journal articles | 2023
    Lingam R; Smithers-Sheedy H; Hodgson S; Hutchinson K; Morris TM; Hu N; Nassar N; Schroeder EA; Rana R; Dickins E; Bula K; Zurynski Y, 2023, 'Evaluation of RuralkidsGPS; A Novel Integrated Paediatric Care Coordination Model of Care in Rural Australia – a Mixed-Methods Study Protocol', International Journal of Integrated Care, 23, http://dx.doi.org/10.5334/ijic.7008
    Journal articles | 2023
    Martin T; McIntyre S; Waight E; Baynam G; Watson L; Langdon K; Woolfenden S; Smithers-Sheedy H; Sherwood J, 2023, 'Prevalence and trends for Aboriginal and Torres Strait Islander children living with cerebral palsy: A birds-eye view', Developmental Medicine and Child Neurology, 65, pp. 1475 - 1485, http://dx.doi.org/10.1111/dmcn.15617
    Journal articles | 2023
    Ostojic K; Paget S; Martin T; Dee-Price BJ; McIntyre S; Smithers Sheedy H; Mimmo L; Burnett H; Scott T; Berg A; Masi A; Scarcella M; Calderan J; Azmatullah S; Mohamed M; Woodbury M; Wilkinson A; Zwi K; Dale R; Eapen V; Lingam R; Strnadová I; Woolfenden S, 2023, 'Codesigning a social prescribing pathway to address the social determinant of health concerns of children with cerebral palsy and their families in Australia: A protocol for a mixed-methods formative research study', BMJ Open, 13, http://dx.doi.org/10.1136/bmjopen-2022-066346
    Journal articles | 2023
    Waight E; McIntyre S; Woolfenden S; Watson L; Reid S; Scott H; Martin T; Webb A; Badawi N; Smithers-Sheedy H, 2023, 'Temporal trends, clinical characteristics, and sociodemographic profile of post-neonatally acquired cerebral palsy in Australia, 1973–2012: A population-based observational study', Developmental Medicine and Child Neurology, 65, pp. 107 - 116, http://dx.doi.org/10.1111/dmcn.15293
    Journal articles | 2023
    de las Mercedes Ruiz Brunner M; Jahan I; Cuestas E; Cieri ME; Zuluaga JE; Condinanzi AL; Sanchez F; McIntyre S; Smithers-Sheedy H; Muhit M; Badawi N; Díaz R; Diaz A; Carranza J; Durán C; Quintero Valencia CA; Melaragno M; Khandaker G, 2023, 'Latin American Cerebral Palsy Register (LATAM-CPR): study protocol to develop a collaborative register with surveillance of children with cerebral palsy in Latin American countries', BMJ Open, 13, http://dx.doi.org/10.1136/bmjopen-2022-071315
    Journal articles | 2022
    Gilmore R; Ziviani J; Mcintyre S; Smithers Sheedy H; Hilton N; Williams T; Chatfield MD; Laugeson E; Sakzewski L; Goodman S; Quinn K; Balde I, 2022, 'Program for the Education and Enrichment of Relational Skills for adolescents with an acquired brain injury: A randomized controlled trial', Developmental Medicine and Child Neurology, 64, pp. 771 - 779, http://dx.doi.org/10.1111/dmcn.15144
    Journal articles | 2022
    Jahan I; Sultana R; Muhit M; Akbar D; Karim T; Al Imam MH; Das MC; Smithers-Sheedy H; McIntyre S; Badawi N; Khandaker G, 2022, 'Nutrition Interventions for Children with Cerebral Palsy in Low-and Middle-Income Countries: A Scoping Review', Nutrients, 14, http://dx.doi.org/10.3390/nu14061211
    Journal articles | 2022
    Lansdown K; Irving M; Mathieu Coulton K; Smithers-Sheedy H, 2022, 'A scoping review of oral health outcomes for people with cerebral palsy', Special Care in Dentistry, 42, pp. 232 - 243, http://dx.doi.org/10.1111/scd.12671
    Journal articles | 2022
    McIntyre S; Goldsmith S; Webb A; Ehlinger V; Hollung SJ; McConnell K; Arnaud C; Smithers-Sheedy H; Oskoui M; Khandaker G; Himmelmann K, 2022, 'Global prevalence of cerebral palsy: A systematic analysis', Developmental Medicine and Child Neurology, 64, pp. 1494 - 1506, http://dx.doi.org/10.1111/dmcn.15346
    Journal articles | 2022
    Mushta SM; King C; Goldsmith S; Smithers‐sheedy H; Badahdah AM; Rashid H; Badawi N; Khandaker G; McIntyre S, 2022, 'Epidemiology of Cerebral Palsy among Children and Adolescents in Arabic‐Speaking Countries: A Systematic Review and Meta‐Analysis', Brain Sciences, 12, http://dx.doi.org/10.3390/brainsci12070859
    Journal articles | 2022
    Smithers-Sheedy H; Henry G, 2022, 'What does an aetiological diagnosis actually mean?', Developmental Medicine and Child Neurology, 64, pp. 675 - 676, http://dx.doi.org/10.1111/dmcn.15189
    Journal articles | 2022
    Smithers-Sheedy H; Khandaker G; Raynes-Greenow C; Flack L; Britton PN; McIntyre S; Badawi N; Burgner D; Galea C; Jones CA, 2022, 'The long-term burden of congenital cytomegalovirus: Hospitalisation and mortality in a population-based matched cohort study', European Journal of Paediatric Neurology, 37, pp. 82 - 86, http://dx.doi.org/10.1016/j.ejpn.2022.01.019
    Journal articles | 2022
    Smithers-Sheedy H; Swinburn K; Waight E; King R; Hui L; Jones CA; Daly K; Rawlinson W; Mcintyre S; Webb A; Badawi N; Bowen A; Britton PN; Palasanthiran P; Lainchbury A; Shand A, 2022, 'eLearning significantly improves maternity professionals’ knowledge of the congenital cytomegalovirus prevention guidelines', Australian and New Zealand Journal of Obstetrics and Gynaecology, 62, pp. 445 - 452, http://dx.doi.org/10.1111/ajo.13500
    Journal articles | 2022
    Smithers-Sheedy H; Waight E; Goldsmith S; Reid S; Gibson C; Watson L; Auld M; Badawi N; Webb A; Diviney L; Mcintyre S; Ostojic K; Kay F; Quartermaine J; Maloney E; Davies N; Hinwood G, 2022, 'Declining trends in birth prevalence and severity of singletons with cerebral palsy of prenatal or perinatal origin in Australia: A population-based observational study', Developmental Medicine and Child Neurology, 64, pp. 1114 - 1122, http://dx.doi.org/10.1111/dmcn.15195
    Journal articles | 2022
    Wilson YA; Smithers-Sheedy H; Ostojic K; Waight E; Kruer MC; Fahey MC; Baynam G; Gécz J; Badawi N; McIntyre S, 2022, 'Common data elements to standardize genomics studies in cerebral palsy', Developmental Medicine and Child Neurology, 64, pp. 1470 - 1476, http://dx.doi.org/10.1111/dmcn.15245
    Journal articles | 2021
    Al Imam MH; Jahan I; Das MC; Muhit M; Smithers-Sheedy H; McIntyre S; Badawi N; Khandaker G, 2021, 'Population-based surveillance of children with cerebral palsy enables early diagnosis and intervention', Developmental Medicine and Child Neurology, 63, pp. 883 - 884, http://dx.doi.org/10.1111/dmcn.14861
    Journal articles | 2021
    Al Imam MH; Jahan I; Das MC; Muhit M; Smithers-Sheedy H; McIntyre S; Badawi N; Khandaker G, 2021, 'Rehabilitation status of children with cerebral palsy in Bangladesh: Findings from the Bangladesh cerebral palsy register', Plos One, 16, http://dx.doi.org/10.1371/journal.pone.0250640
    Journal articles | 2021
    Al Imam MH; Jahan I; Muhit M; Hardianto D; Laryea F; Chhetri AB; Smithers-Sheedy H; McIntyre S; Badawi N; Khandaker G, 2021, 'Predictors of rehabilitation service utilisation among children with cerebral palsy (CP) in low-and middle-income countries (LMIC): Findings from the global LMIC CP register', Brain Sciences, 11, http://dx.doi.org/10.3390/brainsci11070848
    Journal articles | 2021
    Goldsmith S; McIntyre S; Scott H; Himmelmann K; Smithers-Sheedy H; Andersen GL; Blair E; Badawi N; Garne E; Barisic I; Bosnjak Mejaski V; Amar E; Sellier E; Hollung SJ; Klungsøyr K; Braz P; Virella D; Gibson C; Källén K; Reid SM; Baynam G; Gration D; Hansen M; Watson L, 2021, 'Congenital anomalies in children with postneonatally acquired cerebral palsy: an international data linkage study', Developmental Medicine and Child Neurology, 63, pp. 421 - 428, http://dx.doi.org/10.1111/dmcn.14805
    Journal articles | 2021
    Goldsmith S; Mcintyre S; Andersen GL; Gibson C; Himmelmann K; Blair E; Badawi N; Smithers-Sheedy H; Garne E, 2021, 'Congenital anomalies in children with pre- or perinatally acquired cerebral palsy: an international data linkage study', Developmental Medicine and Child Neurology, 63, pp. 413 - 420, http://dx.doi.org/10.1111/dmcn.14602
    Journal articles | 2021
    Jahan I; Muhit M; Hardianto D; Karim T; Al Imam MH; Das MC; Smithers-Sheedy H; Badawi N; Khandaker G, 2021, 'Nutritional status of children with cerebral palsy in remote Sumba Island of Indonesia: a community-based key informants study', Disability and Rehabilitation, 43, pp. 1819 - 1828, http://dx.doi.org/10.1080/09638288.2019.1676833
    Journal articles | 2021
    Jahan I; Muhit M; Hardianto D; Laryea F; Amponsah SK; Chhetri AB; Smithers-Sheedy H; McIntyre S; Badawi N; Khandaker G, 2021, 'Epidemiology of malnutrition among children with cerebral palsy in low-and middle-income countries: Findings from the global LMIC CP register', Nutrients, 13, http://dx.doi.org/10.3390/nu13113676
    Journal articles | 2021
    Jahan I; Muhit M; Hardianto D; Laryea F; Chhetri AB; Smithers-Sheedy H; McIntyre S; Badawi N; Khandaker G, 2021, 'Epidemiology of cerebral palsy in low- and middle-income countries: preliminary findings from an international multi-centre cerebral palsy register', Developmental Medicine and Child Neurology, 63, pp. 1327 - 1336, http://dx.doi.org/10.1111/dmcn.14926
    Journal articles | 2021
    Jones CA; Walker KS; Smithers-Sheedy H; Trivedi A, 2021, 'Antiviral therapy for congenital cytomegalovirus infection in neonates and infants up to 12 months of age', Cochrane Database of Systematic Reviews, 2021, http://dx.doi.org/10.1002/14651858.CD004340.pub2
    Journal articles | 2021
    Karim T; Muhit M; Jahan I; Galea C; Morgan C; Smithers-Sheedy H; Badawi N; Khandaker G, 2021, 'Outcome of community-based early intervention and rehabilitation for children with cerebral palsy in rural bangladesh: A quasi-experimental study', Brain Sciences, 11, http://dx.doi.org/10.3390/brainsci11091189
    Journal articles | 2021
    Lewis SA; Shetty S; Wilson BA; Huang AJ; Jin SC; Smithers-Sheedy H; Fahey MC; Kruer MC, 2021, 'Insights From Genetic Studies of Cerebral Palsy', Frontiers in Neurology, 11, http://dx.doi.org/10.3389/fneur.2020.625428
    Journal articles | 2021
    Sellier E; Goldsmith S; McIntyre S; Perra O; Rackauskaite G; Badawi N; Fares A; Smithers-Sheedy H; Ego A; Tronc C; Arnaud C; Delobel M; Mc Manus V; Lyons A; Perra O; McConnel K; Himmelmann K; Pahlman M; Hensey O; Dowding V; Kurinczuk J; Laursen B; Torrioli MG; Marcelli M; Andersen GL; Julsen Hollung S; Bottos M; Gaffney G; de la Cruz J; Pallas C; Neubauer D; Radsel A; Virella D; Folha T; Greitane A; Hollody K; Csabi G; Dakovic I; Sigurðardóttir S; Einarsson I; Haberlandt E; Ortibus E; Franki I; Mejaski-Bosnjak V; Kuenzle C; Tscherter A; Attard S; Papavasilou A; Horridge K; Platt MJ; Krägeloh-Mann I; Horber V; Auld M; Blair E; Diviney L; Gibson C; Gibson N; Gration D; Hernandez J; Langdon K; Love S; Maloney E; Martin T; Kay F; O’Grady G; Reddihough D; Reid S; Scott H; Watson L, 2021, 'Cerebral palsy in twins and higher multiple births: a Europe-Australia population-based study', Developmental Medicine and Child Neurology, 63, pp. 712 - 720, http://dx.doi.org/10.1111/dmcn.14827
    Journal articles | 2021
    Smithers-Sheedy H, 2021, 'The Singapore Cerebral Palsy Registry: An important new resource for cerebral palsy research', Annals of the Academy of Medicine Singapore, 50, pp. 109 - 110, http://dx.doi.org/10.47102/annals-acadmedsg.202161
    Journal articles | 2021
    Waight E; Swinburn K; Shand A; Hui L; Daly K; Rawlinson W; Jones C; Badawi N; Smithers-Sheedy H, 2021, '319Congenital cytomegalovirus education, translation and prevention', International Journal of Epidemiology, 50, http://dx.doi.org/10.1093/ije/dyab168.688
    Journal articles | 2020
    Britton PN; Walker K; McMullan B; Galea C; Burrell R; Morgan B; Honan I; Teutsch S; Smithers-Sheedy H; Fairbairn N; Mattick R; Hutchinson D; Jones CA, 2020, 'Early Life Parechovirus Infection Neurodevelopmental Outcomes at 3 Years: A Cohort Study', Journal of Pediatrics, 219, pp. 111 - 117.e1, http://dx.doi.org/10.1016/j.jpeds.2019.12.026
    Journal articles | 2020
    Heiyanthuduwage TM; Sumanasena SP; Kitnasamy G; Smithers Sheedy H; Khandaker G; Fernando R; Wijesekara S; Jagoda J; Ratnayake P; Wanigasinghe J; Mclntyre S; Goldsmith S; Waight E; Badawi N; Muhit M; Muttiah N, 2020, 'Protocol for the Sri Lankan Cerebral Palsy Register pilot study', BMJ Open, 10, http://dx.doi.org/10.1136/bmjopen-2020-039353
    Journal articles | 2020
    Jahan I; Al Imam MH; Karim T; Muhit M; Hardianto D; Das MC; Smithers-Sheedy H; Badawi N; Khandaker G, 2020, 'Epidemiology of cerebral palsy in Sumba Island, Indonesia', Developmental Medicine and Child Neurology, 62, pp. 1414 - 1422, http://dx.doi.org/10.1111/dmcn.14616
    Journal articles | 2020
    Manlongat E; Mcintyre S; Smithers-Sheedy H; Trivedi A; Muhit M; Badawi N; Khandaker G, 2020, 'Congenital anomalies in children with cerebral palsy in rural Bangladesh', Developmental Medicine and Child Neurology, 62, pp. 463 - 469, http://dx.doi.org/10.1111/dmcn.14456
    Journal articles | 2020
    May P; Smithers-Sheedy H; Muhit M; Cumming R; Jones C; Booy R; Badawi N; Khandaker G, 2020, 'Immunisation status of children with cerebral palsy in rural bangladesh: Results from the bangladesh cerebral palsy register (bcpr)', Infectious Disorders Drug Targets, 20, pp. 318 - 322, http://dx.doi.org/10.2174/1871526518666181024101002
    Journal articles | 2020
    Midgley G; Smithers-Sheedy H; McIntyre S; Badawi N; Keogh J; Jones CA, 2020, 'Congenital cytomegalovirus prevention, awareness and policy recommendations-a scoping study', Infectious Disorders Drug Targets, 20, pp. 291 - 302, http://dx.doi.org/10.2174/1871526518666181009093725
    Journal articles | 2020
    Sellier E; McIntyre S; Smithers-Sheedy H; Platt MJ, 2020, 'European and Australian Cerebral Palsy Surveillance Networks Working Together for Collaborative Research', Neuropediatrics, 51, pp. 105 - 112, http://dx.doi.org/10.1055/s-0039-3402003
    Journal articles | 2020
    Shepherd E; Mcintyre S; Smithers-Sheedy H; Ashwood P; Sullivan TR; te Velde A; Doyle LW; Makrides M; Middleton P; Crowther CA, 2020, 'Linking data from a large clinical trial with the Australian Cerebral Palsy Register', Developmental Medicine and Child Neurology, 62, pp. 1170 - 1175, http://dx.doi.org/10.1111/dmcn.14556
    Journal articles | 2020
    Woolfenden S; Galea C; Badland H; Smithers Sheedy H; Williams K; Kavanagh AM; Reddihough D; Goldfeld S; Lingam R; Badawi N; O'Connor M, 2020, 'Use of health services by preschool-aged children who are developmentally vulnerable and socioeconomically disadvantaged: Testing the inverse care law', Journal of Epidemiology and Community Health, 74, pp. 495 - 501, http://dx.doi.org/10.1136/jech-2019-213384
    Journal articles | 2019
    Akhter R; Hassan NMM; Martin EF; Muhit M; Smithers-sheedy H; Badawi N; Khandaker G, 2019, 'Caries experience and oral health-related quality of life (OHRQoL) of children and adolescents with cerebral palsy in a low-resource setting', BMC Oral Health, 19, http://dx.doi.org/10.1186/s12903-018-0704-2
    Journal articles | 2019
    Galea C; Mcintyre S; Smithers-Sheedy H; Reid SM; Gibson C; Delacy M; Watson L; Goldsmith S; Badawi N; Blair E, 2019, 'Cerebral palsy trends in Australia (1995–2009): a population-based observational study', Developmental Medicine and Child Neurology, 61, pp. 186 - 193, http://dx.doi.org/10.1111/dmcn.14011
    Journal articles | 2019
    Gilmore R; Sakzewski L; Ziviani J; McIntyre S; Smithers Sheedy H; Hilton N; Williams T; Quinn K; Sarandrea AM; Laugeson E; Chatfield M, 2019, 'Multicentre, randomised waitlist control trial investigating a parent-assisted social skills group programme for adolescents with brain injuries: Protocol for the friends project', BMJ Open, 9, http://dx.doi.org/10.1136/bmjopen-2019-029587
    Journal articles | 2019
    Jahan I; Karim T; Das MC; Muhit M; Mcintyre S; Smithers-Sheedy H; Badawi N; Khandaker G, 2019, 'Mortality in children with cerebral palsy in rural Bangladesh: a population-based surveillance study', Developmental Medicine and Child Neurology, 61, pp. 1336 - 1343, http://dx.doi.org/10.1111/dmcn.14256
    Journal articles | 2019
    Jahan I; Muhit M; Karim T; Smithers-Sheedy H; Novak I; Jones C; Badawi N; Khandaker G, 2019, 'What makes children with cerebral palsy vulnerable to malnutrition? Findings from the bangladesh cerebral palsy register (BCPR)', Disability and Rehabilitation, 41, pp. 2247 - 2254, http://dx.doi.org/10.1080/09638288.2018.1461260
    Journal articles | 2019
    Karim T; Al Imam MH; Golland P; Khan AI; Hossain I; Smithers-Sheedy H; Badawi N; Muhit M; Khandaker G, 2019, 'Hip dysplasia among children with spastic cerebral palsy in rural Bangladesh', BMC Musculoskeletal Disorders, 20, http://dx.doi.org/10.1186/s12891-019-2805-8
    Journal articles | 2019
    Khandaker G; Muhit M; Karim T; Smithers-Sheedy H; Novak I; Jones C; Badawi N, 2019, 'Epidemiology of cerebral palsy in Bangladesh: a population-based surveillance study', Developmental Medicine and Child Neurology, 61, pp. 601 - 609, http://dx.doi.org/10.1111/dmcn.14013
    Journal articles | 2019
    Lansdown K; Smithers-Sheedy H; Mathieu Coulton K; Irving M, 2019, 'Oral health outcomes for people with cerebral palsy: A scoping review protocol', Jbi Database of Systematic Reviews and Implementation Reports, 17, pp. 2551 - 2558, http://dx.doi.org/10.11124/JBISRIR-2017-004037
    Journal articles | 2019
    MacLennan AH; Lewis S; Moreno-De-Luca A; Fahey M; Leventer RJ; McIntyre S; Ben-Pazi H; Corbett M; Wang X; Baynam G; Fehlings D; Kurian MA; Zhu C; Himmelmann K; Smithers-Sheedy H; Wilson Y; Ocaña CS; van Eyk C; Badawi N; Wintle RF; Jacobsson B; Amor DJ; Mallard C; Pérez-Jurado LA; Hallman M; Rosenbaum PJ; Kruer MC; Gecz J, 2019, 'Genetic or Other Causation Should Not Change the Clinical Diagnosis of Cerebral Palsy', Journal of Child Neurology, 34, pp. 472 - 476, http://dx.doi.org/10.1177/0883073819840449
    Journal articles | 2019
    Woolfenden S; Galea C; Smithers-Sheedy H; Blair E; Mcintyre S; Reid S; Delacy M; Badawi N, 2019, 'Impact of social disadvantage on cerebral palsy severity', Developmental Medicine and Child Neurology, 61, pp. 586 - 592, http://dx.doi.org/10.1111/dmcn.14026
    Journal articles | 2018
    Goldsmith S; Garcia Jalon G; Badawi N; Blair E; Garne E; Gibson C; McIntyre S; Scott H; Smithers-Sheedy H; Andersen GL, 2018, 'Comprehensive investigation of congenital anomalies in cerebral palsy: Protocol for a European-Australian population-based data linkage study (The Comprehensive CA-CP Study)', BMJ Open, 8, http://dx.doi.org/10.1136/bmjopen-2018-022190
    Journal articles | 2017
    Akhter R; Hassan NMM; Martin EF; Muhit M; Haque MR; Smithers-Sheedy H; Jones C; Badawi N; Khandaker G, 2017, 'Risk factors for dental caries among children with cerebral palsy in a low-resource setting', Developmental Medicine and Child Neurology, 59, pp. 538 - 543, http://dx.doi.org/10.1111/dmcn.13359
    Journal articles | 2017
    Smithers-Sheedy H; Raynes-Greenow C; Badawi N; Fernandez MA; Kesson A; Intyre SM; Leung KC; Jones CA, 2017, 'Congenital cytomegalovirus among children with cerebral palsy', Obstetrical and Gynecological Survey, 72, pp. 403 - 405, http://dx.doi.org/10.1097/01.ogx.0000520631.42677.1c
    Journal articles | 2017
    Smithers-Sheedy H; Raynes-Greenow C; Badawi N; Fernandez MA; Kesson A; McIntyre S; Leung KC; Jones CA, 2017, 'Congenital Cytomegalovirus among Children with Cerebral Palsy', Journal of Pediatrics, 181, pp. 267 - 271.e1, http://dx.doi.org/10.1016/j.jpeds.2016.10.024
    Journal articles | 2016
    Badawi N; Balde I; Goldsmith S; Karlsson P; McIntyre S; Novak I; Smithers-Sheedy H; Edwards K; Okearney E; Tessman K; deLacy M; Louca C; Gibson C; Rice R; Scott H; Bartlett-Clark K; Maloney E; Rowell M; Sheppard R; Quamby L; Meehan E; Reddihough D; Reid S; Blair E; Gibson N; Love S; Watson L, 2016, 'Australia and the Australian Cerebral Palsy Register for the birth cohort 1993 to 2006', Developmental Medicine and Child Neurology, 58, pp. 3 - 4, http://dx.doi.org/10.1111/dmcn.13002
    Journal articles | 2016
    Blair E; Smithers-Sheedy H, 2016, 'Strabismus, a preventable barrier to social participation: A short report', Developmental Medicine and Child Neurology, 58, pp. 57 - 59, http://dx.doi.org/10.1111/dmcn.13020
    Journal articles | 2016
    Delacy MJ; Louca C; Smithers-Sheedy H; Mcintyre S, 2016, 'Change in residential remoteness during the first 5 years of life in an Australian cerebral palsy cohort', Developmental Medicine and Child Neurology, 58, pp. 60 - 65, http://dx.doi.org/10.1111/dmcn.13013
    Journal articles | 2016
    Goldsmith S; Mcintyre S; Smithers-Sheedy H; Blair E; Cans C; Watson L; Yeargin-Allsopp M, 2016, 'An international survey of cerebral palsy registers and surveillance systems', Developmental Medicine and Child Neurology, 58, pp. 11 - 17, http://dx.doi.org/10.1111/dmcn.12999
    Journal articles | 2016
    Mcintyre S; Blair E; Goldsmith S; Badawi N; Gibson C; Scott H; Smithers-Sheedy H, 2016, 'Congenital anomalies in cerebral palsy: Where to from here?', Developmental Medicine and Child Neurology, 58, pp. 71 - 75, http://dx.doi.org/10.1111/dmcn.13015
    Journal articles | 2016
    Smithers-Sheedy H; Mcintyre S; Gibson C; Meehan E; Scott H; Goldsmith S; Watson L; Badawi N; Walker K; Novak I; Blair E, 2016, 'A special supplement: Findings from the Australian Cerebral Palsy Register, birth years 1993 to 2006', Developmental Medicine and Child Neurology, 58, pp. 5 - 10, http://dx.doi.org/10.1111/dmcn.13026
    Journal articles | 2016
    Smithers-Sheedy H, 2016, 'Declining prevalence of cerebral palsy in Europe: Good news?', Developmental Medicine and Child Neurology, 58, pp. 14, http://dx.doi.org/10.1111/dmcn.12885
    Journal articles | 2015
    Khandaker G; Smithers-Sheedy H; Islam J; Alam M; Jung J; Novak I; Booy R; Jones C; Badawi N; Muhit M, 2015, 'Bangladesh Cerebral Palsy Register (BCPR): A pilot study to develop a national cerebral palsy (CP) register with surveillance of children for CP', BMC Neurology, 15, http://dx.doi.org/10.1186/s12883-015-0427-9
    Journal articles | 2015
    Smithers-Sheedy H; Raynes-Greenow C; Badawi N; Khandaker G; Menzies R; Jones CA, 2015, 'Cytomegalovirus-related childhood mortality in Australia 1999-2011', Journal of Paediatrics and Child Health, 51, pp. 901 - 905, http://dx.doi.org/10.1111/jpc.12896
    Journal articles | 2014
    Khandaker G; Raynes-Greenow C; Smithers-Sheedy H; Booy R; Menzies R; Jones C, 2014, 'Mortality from herpes simplex virus (HSV) infection in Australian children, 1999-2011 using national datasets', Infectious Disorders Drug Targets, 14, pp. 89 - 92, http://dx.doi.org/10.2174/1871526514666140714084934
    Journal articles | 2014
    Smithers-Sheedy H; Badawi N; Blair E; Cans C; Himmelmann K; Krägeloh-Mann I; Mcintyre S; Slee J; Uldall P; Watson L; Wilson M, 2014, 'What constitutes cerebral palsy in the twenty-first century?', Developmental Medicine and Child Neurology, 56, pp. 323 - 328, http://dx.doi.org/10.1111/dmcn.12262
    Journal articles | 2014
    Smithers-Sheedy H; Raynes-Greenow C; Badawi N; Mcintyre S; Jones CA, 2014, 'Congenital cytomegalovirus is associated with severe forms of cerebral palsy and female sex in a retrospective population-based study', Developmental Medicine and Child Neurology, 56, pp. 846 - 852, http://dx.doi.org/10.1111/dmcn.12467
    Journal articles | 2014
    Smithers-Sheedy H; Raynes-Greenow C; Badawi N; Reid SM; Meehan E; Gibson CS; Dale RC; Jones CA, 2014, 'Neuroimaging findings in a series of children with cerebral palsy and congenital cytomegalovirus infection', Infectious Disorders Drug Targets, 14, pp. 185 - 190, http://dx.doi.org/10.2174/1871526515999150320154858
    Journal articles | 2012
    Novak I; Smithers-Sheedy H; Morgan C, 2012, 'Predicting equipment needs of children with cerebral palsy using the Gross Motor Function Classification System: A cross-sectional study', Disability and Rehabilitation Assistive Technology, 7, pp. 30 - 36, http://dx.doi.org/10.3109/17483107.2011.556210
    Journal articles | 2010
    Ison N; McIntyre S; Rothery S; Smithers-Sheedy H; Goldsmith S; Parsonage S; Foy L, 2010, '"Just like you": A disability awareness programme for children that enhanced knowledge, attitudes and acceptance: Pilot study findings', Developmental Neurorehabilitation, 13, pp. 360 - 368, http://dx.doi.org/10.3109/17518423.2010.496764
  • Preprints | 2025
    Miller C; Rungan S; Schmidt D; Smithers-Sheedy H; Ebbett W; Evans E; Hu N; Khan JR; Sanci L; Lingam R, 2025, Djing.gii Gudjaagalali (Children Stars) School Clinic; a novel primary care led Rural School Based Integrated model of care, http://dx.doi.org/10.21203/rs.3.rs-6963481/v1
    Conference Abstracts | 2025
    de Groot A; Hutchinson K; Lingam R; Fletcher J; Hickman A; Murphy J; Smithers-Sheedy H; Zurynski Y, 2025, 'Coordinating rural healthcare to support whole families caring for children with medical complexity', in INTERNATIONAL JOURNAL OF INTEGRATED CARE, UBIQUITY PRESS LTD, Vol. 25, http://dx.doi.org/10.5334/ijic.NACIC24049
    Other | 2024
    Hui L; Smithers-Sheedy H; Swinburn K; Rode N; Tripathi T; Waight E; Webb A; Holmes N, 2024, Abstracts of the 34th World Congress on Ultrasound in Obstetrics and Gynecology, 15-18 September 2024, Budapest, Hungary, http://dx.doi.org/10.1002/uog.28099
    Conference Abstracts | 2024
    Hui L; Smithers‐Sheedy H; Swinburn K; Rode N; Tripathi T; Waight E; Webb A; Holmes N, 2024, 'EP04.10: Short cytomegalovirus video improves pregnant women's knowledge and planned adherence to hygiene precautions', in Ultrasound in Obstetrics & Gynecology, Wiley, Vol. 64, pp. 132 - 132, http://dx.doi.org/10.1002/uog.28099
    Conference Abstracts | 2024
    Woolfenden S; Ostojic K; Karem I; Paget S; Berg A; Bernett H; Scott T; Martin T; Dee-Price B-J; McIntyre S; Smithers-Sheedy H; Mimmo L; Masi A; Scarcella M; Chambers G; Zwi K; Dale R; Eapen V; Lingam R; Strnadova I, 2024, 'EPIC-CP pilot trial: a multi-centre, randomised controlled trial investigating the feasibility and acceptability of social prescribing for Australian children with cerebral palsy', in International Journal of Integrated Care, Ubiquity Press, Vol. 24, presented at 3rd Asia Pacific Conference on Integrated Care, http://dx.doi.org/10.5334/ijic.APIC3175
    Conference Papers | 2024
    Zurynski Y; Hutchinson K; Smithers-Sheedy H; Fletcher J; Preddy J; Lingam R, 2024, 'It can be a lonely job: Role experiences of paediatric care coordinators working in rural Australia', in INTERNATIONAL JOURNAL OF INTEGRATED CARE, UBIQUITY PRESS LTD, http://dx.doi.org/10.5334/ijic.APIC3131
    Preprints | 2023
    Heiyanthudwage TM; Fernando R; Smithers- Sheedy H; Jagoda J; Rathnayaka P; Wanigasinghe J; Muttiah N; Sumanasena SP, 2023, Cerebral Palsy in the Western Province of Sri Lanka: A Hospital Based Observational Study from a Low and Middle Income Setting, http://dx.doi.org/10.2139/ssrn.4586460
    Conference Papers | 2023
    Wilson Y; Smithers-Sheedy H; Goldsmith S; Karim T; Henry G; Badawi N; Baynam G; Gecz J; McIntyre S, 2023, 'Evaluating clinically relevant genes associated with cerebral palsy', in EUROPEAN JOURNAL OF HUMAN GENETICS, SPRINGERNATURE, SCOTLAND, Glasgow, pp. 495 - 495, presented at 56th Annual Conference of the European-Society-of-Human-Genetics (ESHG), SCOTLAND, Glasgow, 10 June 2023 - 13 June 2023
    Conference Papers | 2021
    Waight E; Swinburn K; Shand A; Hui L; Daly K; Rawlinson W; Jones C; Badawi N; Smithers-Sheedy H, 2021, 'Congenital cytomegalovirus education, translation and prevention', in INTERNATIONAL JOURNAL OF EPIDEMIOLOGY, OXFORD UNIV PRESS, pp. 244 - 244, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000695815900662&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
    Conference Papers | 2019
    Garne E; Goldsmith S; Andersen G; Amar E; Nadia B; Barisic I; Blair E; Braz P; Garcia JG; Gibson C; Himmelmann K; Kallen K; Klungsoyr K; Bosnjak VM; Scott H; Sellier E; Smithers-Sheedy H; Uldall P; Virella D; Mcintyre S, 2019, 'CLINICAL OUTCOMES FOR CHILDREN WITH PRE/PERINATALLY AQUIRED CEREBRAL PALSY DIFFER BY PRESENCE OF CONGENITAL ANOMALIES', in PEDIATRIC RESEARCH, NATURE PUBLISHING GROUP, NETHERLANDS, Masstricht, pp. 14 - 14, presented at 3rd Congress of Joint European Neonatal Societies (jENS), NETHERLANDS, Masstricht, 17 September 2019 - 21 September 2019, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000527365700019&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
    Preprints | 2019
    Woolfenden S; Galea C; Badland H; Smithers-Sheedy H; Williams K; Kavanagh A; Reddihough D; Goldfeld S; Lingam R; Badawi N; O'Connor M, 2019, The intersection of developmental vulnerability and socioeconomic disadvantage on access to health care for preschool aged children: evidence for the inverse-care law, http://dx.doi.org/10.21203/rs.2.10731/v1

2012 (CI) NHMRC Postgraduate Scholarship (GNT1055901), 2017 (CI) NHMRC Early Career Fellowship (GNT1144566), 2019 (AI) NHMRC Project Grant: Neuro-cCMV, (GNT1165376), 2021 (AI) MRFF Research Grant: School Readiness (MRF2007292), 2021 (AI) NHRMC Project Grant: Whole-of-population CRISPR point-of-care testing for congenital cytomegalovirus (GNT2006491) and 2021 (CID) NHMRC Ideas Grant (GNT2012882) MY Voice Library

Mushta, S. M., King, C., Goldsmith, S., Smitherssheedy, H., Badahdah, A. M., Rashid, H., . . . McIntyre, S. (2022). Epidemiology of Cerebral Palsy among Children and Adolescents in ArabicSpeaking Countries: A Systematic Review and MetaAnalysis. Brain Sciences, 12(7). doi:10.3390/brainsci12070859

Waight, E., McIntyre, S., Woolfenden, S., Watson, L., Reid, S., Scott, H., . . . Smithers-Sheedy, H. (2022). Temporal trends, clinical characteristics, and sociodemographic profile of post-neonatally acquired cerebral palsy in Australia, 1973–2012: A population-based observational study. Developmental Medicine and Child Neurology. doi:10.1111/dmcn.15293

Wilson, Y. A., Smithers-Sheedy, H., Ostojic, K., Waight, E., Kruer, M. C., Fahey, M. C., . . . McIntyre, S. (2022). Common data elements to standardize genomics studies in cerebral palsy. Developmental Medicine and Child Neurology. doi:10.1111/dmcn.15245

Smithers-Sheedy, H., Swinburn, K., Waight, E., King, R., Hui, L., Jones, C. A., . . . Shand, A. (2022). eLearning significantly improves maternity professionals’ knowledge of the congenital cytomegalovirus prevention guidelines. Australian and New Zealand Journal of Obstetrics and Gynaecology, 62(3), 445-452. doi:10.1111/ajo.13500

Jahan, I., Sultana, R., Muhit, M., Akbar, D., Karim, T., Al Imam, M. H., . . . Khandaker, G. (2022). Nutrition Interventions for Children with Cerebral Palsy in Low-and Middle-Income Countries: A Scoping Review. Nutrients, 14(6). doi:10.3390/nu14061211

Smithers-Sheedy, H., Waight, E., Goldsmith, S., Reid, S., Gibson, C., Watson, L., . . . Hinwood, G. (2022). Declining trends in birth prevalence and severity of singletons with cerebral palsy of prenatal or perinatal origin in Australia: A population-based observational study. Developmental Medicine and Child Neurology. doi:10.1111/dmcn.15195

Smithers-Sheedy, H., Khandaker, G., Raynes-Greenow, C., Flack, L., Britton, P. N., McIntyre, S., . . . Jones, C. A. (2022). The long-term burden of congenital cytomegalovirus: Hospitalisation and mortality in a population-based matched cohort study. European Journal of Paediatric Neurology, 37, 82-86. doi:10.1016/j.ejpn.2022.01.019

Smithers-Sheedy, H., & Henry, G. (2022). What does an aetiological diagnosis actually mean?. Developmental Medicine and Child Neurology, 64(6), 675-676. doi:10.1111/dmcn.15189

Gilmore, R., Ziviani, J., Mcintyre, S., Smithers Sheedy, H., Hilton, N., Williams, T., . . . Balde, I. (2022). Program for the Education and Enrichment of Relational Skills for adolescents with an acquired brain injury: A randomized controlled trial. Developmental Medicine and Child Neurology, 64(6), 771-779. doi:10.1111/dmcn.15144

Lansdown, K., Irving, M., Mathieu Coulton, K., & Smithers-Sheedy, H. (2022). A scoping review of oral health outcomes for people with cerebral palsy. Special Care in Dentistry, 42(3), 232-243. doi:10.1111/scd.12671

Jahan, I., Muhit, M., Hardianto, D., Laryea, F., Amponsah, S. K., Chhetri, A. B., . . . Khandaker, G. (2021). Epidemiology of malnutrition among children with cerebral palsy in low-and middle-income countries: Findings from the global LMIC CP register. Nutrients, 13(11). doi:10.3390/nu13113676

Karim, T., Muhit, M., Jahan, I., Galea, C., Morgan, C., Smithers-Sheedy, H., . . . Khandaker, G. (2021). Outcome of community-based early intervention and rehabilitation for children with cerebral palsy in rural bangladesh: A quasi-experimental study. Brain Sciences, 11(9). doi:10.3390/brainsci11091189

Waight, E., Swinburn, K., Shand, A., Hui, L., Daly, K., Rawlinson, W., . . . Smithers-Sheedy, H. (2021). 319Congenital cytomegalovirus education, translation and prevention. International Journal of Epidemiology, 50(Supplement_1). doi:10.1093/ije/dyab168.688

Jones, C. A., Walker, K. S., Smithers-Sheedy, H., & Trivedi, A. (2021). Antiviral therapy for congenital cytomegalovirus infection in neonates and infants up to 12 months of age. Cochrane Database of Systematic Reviews, 2021(8). doi:10.1002/14651858.CD004340.pub2

Al Imam, M. H., Jahan, I., Muhit, M., Hardianto, D., Laryea, F., Chhetri, A. B., . . . Khandaker, G. (2021). Predictors of rehabilitation service utilisation among children with cerebral palsy (CP) in low-and middle-income countries (LMIC): Findings from the global LMIC CP register. Brain Sciences, 11(7). doi:10.3390/brainsci11070848

Jahan, I., Muhit, M., Hardianto, D., Laryea, F., Chhetri, A. B., Smithers-Sheedy, H., . . . Khandaker, G. (2021). Epidemiology of cerebral palsy in low- and middle-income countries: preliminary findings from an international multi-centre cerebral palsy register. Developmental Medicine and Child Neurology, 63(11), 1327-1336. doi:10.1111/dmcn.14926

Al Imam, M. H., Jahan, I., Das, M. C., Muhit, M., Smithers-Sheedy, H., McIntyre, S., . . . Khandaker, G. (2021). Rehabilitation status of children with cerebral palsy in Bangladesh: Findings from the Bangladesh cerebral palsy register. PLoS ONE, 16(5 May). doi:10.1371/journal.pone.0250640

Al Imam, M. H., Jahan, I., Das, M. C., Muhit, M., Smithers-Sheedy, H., McIntyre, S., . . . Khandaker, G. (2021). Population-based surveillance of children with cerebral palsy enables early diagnosis and intervention. Developmental Medicine and Child Neurology, 63(7), 883-884. doi:10.1111/dmcn.14861

Smithers-Sheedy, H. (2021). The Singapore Cerebral Palsy Registry: An important new resource for cerebral palsy research. Annals of the Academy of Medicine, Singapore, 50(2), 109-110. doi:10.47102/annals-acadmedsg.202161

Sellier, E., Goldsmith, S., McIntyre, S., Perra, O., Rackauskaite, G., Badawi, N., . . . Watson, L. (2021). Cerebral palsy in twins and higher multiple births: a Europe-Australia population-based study. Developmental Medicine and Child Neurology, 63(6), 712-720. doi:10.1111/dmcn.14827

Lewis, S. A., Shetty, S., Wilson, B. A., Huang, A. J., Jin, S. C., Smithers-Sheedy, H., . . . Kruer, M. C. (2021). Insights From Genetic Studies of Cerebral Palsy. Frontiers in Neurology, 11. doi:10.3389/fneur.2020.625428

Goldsmith, S., McIntyre, S., Scott, H., Himmelmann, K., Smithers-Sheedy, H., Andersen, G. L., . . . Watson, L. (2021). Congenital anomalies in children with postneonatally acquired cerebral palsy: an international data linkage study. Developmental Medicine and Child Neurology, 63(4), 421-428. doi:10.1111/dmcn.14805

Himmelmann, K., McIntyre, S., Goldsmith, S., Smithers-Sheedy, H., & Watson, L. (2020). Epidemiology of Cerebral Palsy. In Cerebral Palsy (pp. 131-146). Springer International Publishing. doi:10.1007/978-3-319-74558-9_9

Heiyanthuduwage, T. M., Sumanasena, S. P., Kitnasamy, G., Smithers Sheedy, H., Khandaker, G., Fernando, R., . . . Muttiah, N. (2020). Protocol for the Sri Lankan Cerebral Palsy Register pilot study. BMJ open, 10(8), e039353. doi:10.1136/bmjopen-2020-039353

Jahan, I., Al Imam, M. H., Karim, T., Muhit, M., Hardianto, D., Das, M. C., . . . Khandaker, G. (2020). Epidemiology of cerebral palsy in Sumba Island, Indonesia. Developmental Medicine and Child Neurology, 62(12), 1414-1422. doi:10.1111/dmcn.14616

Goldsmith, S., Mcintyre, S., Andersen, G. L., Gibson, C., Himmelmann, K., Blair, E., . . . Garne, E. (2021). Congenital anomalies in children with pre- or perinatally acquired cerebral palsy: an international data linkage study. Developmental Medicine and Child Neurology, 63(4), 413-420. doi:10.1111/dmcn.14602

Shepherd, E., Mcintyre, S., Smithers-Sheedy, H., Ashwood, P., Sullivan, T. R., te Velde, A., . . . Crowther, C. A. (2020). Linking data from a large clinical trial with the Australian Cerebral Palsy Register. Developmental Medicine and Child Neurology, 62(10), 1170-1175. doi:10.1111/dmcn.14556

Britton, P. N., Walker, K., McMullan, B., Galea, C., Burrell, R., Morgan, B., . . . Jones, C. A. (2020). Early Life Parechovirus Infection Neurodevelopmental Outcomes at 3 Years: A Cohort Study. Journal of Pediatrics, 219, 111-117.e1. doi:10.1016/j.jpeds.2019.12.026

Woolfenden, S., Galea, C., Badland, H., Smithers Sheedy, H., Williams, K., Kavanagh, A. M., . . . O'Connor, M. (2020). Use of health services by preschool-aged children who are developmentally vulnerable and socioeconomically disadvantaged: Testing the inverse care law. Journal of Epidemiology and Community Health, 74(6), 495-501. doi:10.1136/jech-2019-213384

Sellier, E., McIntyre, S., Smithers-Sheedy, H., & Platt, M. J. (2020). European and Australian Cerebral Palsy Surveillance Networks Working Together for Collaborative Research. Neuropediatrics, 51(2), 105-112. doi:10.1055/s-0039-3402003

Manlongat, E., Mcintyre, S., Smithers-Sheedy, H., Trivedi, A., Muhit, M., Badawi, N., & Khandaker, G. (2020). Congenital anomalies in children with cerebral palsy in rural Bangladesh. Developmental Medicine and Child Neurology, 62(4), 463-469. doi:10.1111/dmcn.14456

May, P., Smithers-Sheedy, H., Muhit, M., Cumming, R., Jones, C., Booy, R., . . . Khandaker, G. (2020). Immunisation status of children with cerebral palsy in rural bangladesh: Results from the bangladesh cerebral palsy register (bcpr). Infectious Disorders - Drug Targets, 20(3), 318-322. doi:10.2174/1871526518666181024101002

Midgley, G., Smithers-Sheedy, H., McIntyre, S., Badawi, N., Keogh, J., & Jones, C. A. (2020). Congenital cytomegalovirus prevention, awareness and policy recommendations-a scoping study. Infectious Disorders - Drug Targets, 20(3), 291-302. doi:10.2174/1871526518666181009093725

Lansdown, K., Smithers-Sheedy, H., Mathieu Coulton, K., & Irving, M. (2019). Oral health outcomes for people with cerebral palsy: A scoping review protocol. JBI Database of Systematic Reviews and Implementation Reports, 17(12), 2551-2558. doi:10.11124/JBISRIR-2017-004037

Karim, T., Al Imam, M. H., Golland, P., Khan, A. I., Hossain, I., Smithers-Sheedy, H., . . . Khandaker, G. (2019). Hip dysplasia among children with spastic cerebral palsy in rural Bangladesh. BMC Musculoskeletal Disorders, 20(1). doi:10.1186/s12891-019-2805-8

Jahan, I., Muhit, M., Hardianto, D., Karim, T., Al Imam, M. H., Das, M. C., . . . Khandaker, G. (2021). Nutritional status of children with cerebral palsy in remote Sumba Island of Indonesia: a community-based key informants study. Disability and Rehabilitation, 43(13), 1819-1828. doi:10.1080/09638288.2019.1676833

Gilmore, R., Sakzewski, L., Ziviani, J., McIntyre, S., Smithers Sheedy, H., Hilton, N., . . . Chatfield, M. (2019). Multicentre, randomised waitlist control trial investigating a parent-assisted social skills group programme for adolescents with brain injuries: Protocol for the friends project. BMJ Open, 9(8). doi:10.1136/bmjopen-2019-029587

Woolfenden, S., Galea, C., Badland, H., Smithers-Sheedy, H., Williams, K., Kavanagh, A., . . . O'Connor, M. (n.d.). The intersection of developmental vulnerability and socioeconomic disadvantage on access to health care for preschool aged children: evidence for the inverse-care law. doi:10.21203/rs.2.10731/v1

Jahan, I., Karim, T., Das, M. C., Muhit, M., Mcintyre, S., Smithers-Sheedy, H., . . . Khandaker, G. (2019). Mortality in children with cerebral palsy in rural Bangladesh: a population-based surveillance study. Developmental Medicine and Child Neurology, 61(11), 1336-1343. doi:10.1111/dmcn.14256

MacLennan, A. H., Lewis, S., Moreno-De-Luca, A., Fahey, M., Leventer, R. J., McIntyre, S., . . . Gecz, J. (2019). Genetic or Other Causation Should Not Change the Clinical Diagnosis of Cerebral Palsy. Journal of Child Neurology, 34(8), 472-476. doi:10.1177/0883073819840449

Akhter, R., Hassan, N. M. M., Martin, E. F., Muhit, M., Smithers-sheedy, H., Badawi, N., & Khandaker, G. (2019). Caries experience and oral health-related quality of life (OHRQoL) of children and adolescents with cerebral palsy in a low-resource setting. BMC Oral Health, 19(1). doi:10.1186/s12903-018-0704-2

Khandaker, G., Muhit, M., Karim, T., Smithers-Sheedy, H., Novak, I., Jones, C., & Badawi, N. (2019). Epidemiology of cerebral palsy in Bangladesh: a population-based surveillance study. Developmental Medicine and Child Neurology, 61(5), 601-609. doi:10.1111/dmcn.14013

Woolfenden, S., Galea, C., Smithers-Sheedy, H., Blair, E., Mcintyre, S., Reid, S., . . . Badawi, N. (2019). Impact of social disadvantage on cerebral palsy severity. Developmental Medicine and Child Neurology, 61(5), 586-592. doi:10.1111/dmcn.14026

Galea, C., Mcintyre, S., Smithers-Sheedy, H., Reid, S. M., Gibson, C., Delacy, M., . . . Blair, E. (2019). Cerebral palsy trends in Australia (1995–2009): a population-based observational study. Developmental Medicine and Child Neurology, 61(2), 186-193. doi:10.1111/dmcn.14011

Himmelmann, K., McIntyre, S., Goldsmith, S., Smithers-Sheedy, H., & Watson, L. (2018). Epidemiology of Cerebral Palsy. In Cerebral Palsy (pp. 1-16). Springer International Publishing. doi:10.1007/978-3-319-50592-3_9-1

Goldsmith, S., Garcia Jalon, G., Badawi, N., Blair, E., Garne, E., Gibson, C., . . . Andersen, G. L. (2018). Comprehensive investigation of congenital anomalies in cerebral palsy: Protocol for a European-Australian population-based data linkage study (The Comprehensive CA-CP Study). BMJ Open, 8(7). doi:10.1136/bmjopen-2018-022190

Jahan, I., Muhit, M., Karim, T., Smithers-Sheedy, H., Novak, I., Jones, C., . . . Khandaker, G. (2019). What makes children with cerebral palsy vulnerable to malnutrition? Findings from the bangladesh cerebral palsy register (BCPR). Disability and Rehabilitation, 41(19), 2247-2254. doi:10.1080/09638288.2018.1461260

Smithers-Sheedy, H., Raynes-Greenow, C., Badawi, N., Fernandez, M. A., Kesson, A., McIntyre, S., . . . Jones, C. A. (2017). Congenital Cytomegalovirus among Children with Cerebral Palsy. Journal of Pediatrics, 181, 267-271.e1. doi:10.1016/j.jpeds.2016.10.024

Smithers-Sheedy, H., Raynes-Greenow, C., Badawi, N., Fernandez, M. A., Kesson, A., Intyre, S. M., . . . Jones, C. A. (2017). Congenital cytomegalovirus among children with cerebral palsy. Obstetrical and Gynecological Survey, 72(7), 403-405. doi:10.1097/01.ogx.0000520631.42677.1c

Akhter, R., Hassan, N. M. M., Martin, E. F., Muhit, M., Haque, M. R., Smithers-Sheedy, H., . . . Khandaker, G. (2017). Risk factors for dental caries among children with cerebral palsy in a low-resource setting. Developmental Medicine and Child Neurology, 59(5), 538-543. doi:10.1111/dmcn.13359

Badawi, N., Balde, I., Goldsmith, S., Karlsson, P., McIntyre, S., Novak, I., . . . Watson, L. (2016). Australia and the Australian Cerebral Palsy Register for the birth cohort 1993 to 2006. Developmental Medicine and Child Neurology, 58, 3-4. doi:10.1111/dmcn.13002

Goldsmith, S., Mcintyre, S., Smithers-Sheedy, H., Blair, E., Cans, C., Watson, L., & Yeargin-Allsopp, M. (2016). An international survey of cerebral palsy registers and surveillance systems. Developmental Medicine and Child Neurology, 58, 11-17. doi:10.1111/dmcn.12999

Blair, E., & Smithers-Sheedy, H. (2016). Strabismus, a preventable barrier to social participation: A short report. Developmental Medicine and Child Neurology, 58, 57-59. doi:10.1111/dmcn.13020

Mcintyre, S., Blair, E., Goldsmith, S., Badawi, N., Gibson, C., Scott, H., & Smithers-Sheedy, H. (2016). Congenital anomalies in cerebral palsy: Where to from here?. Developmental Medicine and Child Neurology, 58, 71-75. doi:10.1111/dmcn.13015

Delacy, M. J., Louca, C., Smithers-Sheedy, H., & Mcintyre, S. (2016). Change in residential remoteness during the first 5 years of life in an Australian cerebral palsy cohort. Developmental Medicine and Child Neurology, 58, 60-65. doi:10.1111/dmcn.13013

Smithers-Sheedy, H., Mcintyre, S., Gibson, C., Meehan, E., Scott, H., Goldsmith, S., . . . Blair, E. (2016). A special supplement: Findings from the Australian Cerebral Palsy Register, birth years 1993 to 2006. Developmental Medicine and Child Neurology, 58, 5-10. doi:10.1111/dmcn.13026

Khandaker, G., Smithers-Sheedy, H., Islam, J., Alam, M., Jung, J., Novak, I., . . . Muhit, M. (2015). Bangladesh Cerebral Palsy Register (BCPR): A pilot study to develop a national cerebral palsy (CP) register with surveillance of children for CP. BMC Neurology, 15(1). doi:10.1186/s12883-015-0427-9

Smithers-Sheedy, H. (2016). Declining prevalence of cerebral palsy in Europe: Good news?. Developmental Medicine and Child Neurology, 58(1), 14. doi:10.1111/dmcn.12885

Smithers-Sheedy, H., Raynes-Greenow, C., Badawi, N., Khandaker, G., Menzies, R., & Jones, C. A. (2015). Cytomegalovirus-related childhood mortality in Australia 1999-2011. Journal of Paediatrics and Child Health, 51(9), 901-905. doi:10.1111/jpc.12896

Smithers-Sheedy, H., Raynes-Greenow, C., Badawi, N., Mcintyre, S., & Jones, C. A. (2014). Congenital cytomegalovirus is associated with severe forms of cerebral palsy and female sex in a retrospective population-based study. Developmental Medicine and Child Neurology, 56(9), 846-852. doi:10.1111/dmcn.12467

Khandaker, G., Raynes-Greenow, C., Smithers-Sheedy, H., Booy, R., Menzies, R., & Jones, C. (2014). Mortality from herpes simplex virus (HSV) infection in Australian children, 1999-2011 using national datasets. Infectious Disorders - Drug Targets, 14(2), 89-92. doi:10.2174/1871526514666140714084934

Smithers-Sheedy, H., Raynes-Greenow, C., Badawi, N., Reid, S. M., Meehan, E., Gibson, C. S., . . . Jones, C. A. (2014). Neuroimaging findings in a series of children with cerebral palsy and congenital cytomegalovirus infection. Infectious Disorders - Drug Targets, 14(3), 185-190. doi:10.2174/1871526515999150320154858

Smithers-Sheedy, H., Badawi, N., Blair, E., Cans, C., Himmelmann, K., Krägeloh-Mann, I., . . . Wilson, M. (2014). What constitutes cerebral palsy in the twenty-first century?. Developmental Medicine and Child Neurology, 56(4), 323-328. doi:10.1111/dmcn.12262

Novak, I., Smithers-Sheedy, H., & Morgan, C. (2012). Predicting equipment needs of children with cerebral palsy using the Gross Motor Function Classification System: A cross-sectional study. Disability and Rehabilitation: Assistive Technology, 7(1), 30-36. doi:10.3109/17483107.2011.556210

Ison, N., McIntyre, S., Rothery, S., Smithers-Sheedy, H., Goldsmith, S., Parsonage, S., & Foy, L. (2010). "Just like you": A disability awareness programme for children that enhanced knowledge, attitudes and acceptance: Pilot study findings. Developmental Neurorehabilitation, 13(5), 360-368. doi:10.3109/17518423.2010.496764