Dr Hayley Smithers-Sheedy
Senior Research Associate
BAppSc(SpPath), MPH, PhD
Medicine & Health
School of Clinical Medicine
Dr Hayley Smithers-Sheedy is a Senior Research Associate in Paediatric Population Health at UNSW where she is the study coordinator for the RuralKidsGPS study.
RuralKidsGPS is a paediatric care coordination program for children with complex health conditions which aims to work with local teams to identify opportunities to integrate and share care, deliver virtually-enabled care, streamline appointments, avoid unnecessary hospitalisations, and prevent ED attendances.
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2012 (CI) NHMRC Postgraduate Scholarship (GNT1055901), 2017 (CI) NHMRC Early Career Fellowship (GNT1144566), 2019 (AI) NHMRC Project Grant: Neuro-cCMV, (GNT1165376), 2021 (AI) MRFF Research Grant: School Readiness (MRF2007292), 2021 (AI) NHRMC Project Grant: Whole-of-population CRISPR point-of-care testing for congenital cytomegalovirus (GNT2006491) and 2021 (CID) NHMRC Ideas Grant (GNT2012882) MY Voice Library
Mushta, S. M., King, C., Goldsmith, S., Smithers‐sheedy, H., Badahdah, A. M., Rashid, H., . . . McIntyre, S. (2022). Epidemiology of Cerebral Palsy among Children and Adolescents in Arabic‐Speaking Countries: A Systematic Review and Meta‐Analysis. Brain Sciences, 12(7). doi:10.3390/brainsci12070859
Waight, E., McIntyre, S., Woolfenden, S., Watson, L., Reid, S., Scott, H., . . . Smithers-Sheedy, H. (2022). Temporal trends, clinical characteristics, and sociodemographic profile of post-neonatally acquired cerebral palsy in Australia, 1973–2012: A population-based observational study. Developmental Medicine and Child Neurology. doi:10.1111/dmcn.15293
Wilson, Y. A., Smithers-Sheedy, H., Ostojic, K., Waight, E., Kruer, M. C., Fahey, M. C., . . . McIntyre, S. (2022). Common data elements to standardize genomics studies in cerebral palsy. Developmental Medicine and Child Neurology. doi:10.1111/dmcn.15245
Smithers-Sheedy, H., Swinburn, K., Waight, E., King, R., Hui, L., Jones, C. A., . . . Shand, A. (2022). eLearning significantly improves maternity professionals’ knowledge of the congenital cytomegalovirus prevention guidelines. Australian and New Zealand Journal of Obstetrics and Gynaecology, 62(3), 445-452. doi:10.1111/ajo.13500
Jahan, I., Sultana, R., Muhit, M., Akbar, D., Karim, T., Al Imam, M. H., . . . Khandaker, G. (2022). Nutrition Interventions for Children with Cerebral Palsy in Low-and Middle-Income Countries: A Scoping Review. Nutrients, 14(6). doi:10.3390/nu14061211
Smithers-Sheedy, H., Waight, E., Goldsmith, S., Reid, S., Gibson, C., Watson, L., . . . Hinwood, G. (2022). Declining trends in birth prevalence and severity of singletons with cerebral palsy of prenatal or perinatal origin in Australia: A population-based observational study. Developmental Medicine and Child Neurology. doi:10.1111/dmcn.15195
Smithers-Sheedy, H., Khandaker, G., Raynes-Greenow, C., Flack, L., Britton, P. N., McIntyre, S., . . . Jones, C. A. (2022). The long-term burden of congenital cytomegalovirus: Hospitalisation and mortality in a population-based matched cohort study. European Journal of Paediatric Neurology, 37, 82-86. doi:10.1016/j.ejpn.2022.01.019
Smithers-Sheedy, H., & Henry, G. (2022). What does an aetiological diagnosis actually mean?. Developmental Medicine and Child Neurology, 64(6), 675-676. doi:10.1111/dmcn.15189
Gilmore, R., Ziviani, J., Mcintyre, S., Smithers Sheedy, H., Hilton, N., Williams, T., . . . Balde, I. (2022). Program for the Education and Enrichment of Relational Skills for adolescents with an acquired brain injury: A randomized controlled trial. Developmental Medicine and Child Neurology, 64(6), 771-779. doi:10.1111/dmcn.15144
Lansdown, K., Irving, M., Mathieu Coulton, K., & Smithers-Sheedy, H. (2022). A scoping review of oral health outcomes for people with cerebral palsy. Special Care in Dentistry, 42(3), 232-243. doi:10.1111/scd.12671
Jahan, I., Muhit, M., Hardianto, D., Laryea, F., Amponsah, S. K., Chhetri, A. B., . . . Khandaker, G. (2021). Epidemiology of malnutrition among children with cerebral palsy in low-and middle-income countries: Findings from the global LMIC CP register. Nutrients, 13(11). doi:10.3390/nu13113676
Karim, T., Muhit, M., Jahan, I., Galea, C., Morgan, C., Smithers-Sheedy, H., . . . Khandaker, G. (2021). Outcome of community-based early intervention and rehabilitation for children with cerebral palsy in rural bangladesh: A quasi-experimental study. Brain Sciences, 11(9). doi:10.3390/brainsci11091189
Waight, E., Swinburn, K., Shand, A., Hui, L., Daly, K., Rawlinson, W., . . . Smithers-Sheedy, H. (2021). 319Congenital cytomegalovirus education, translation and prevention. International Journal of Epidemiology, 50(Supplement_1). doi:10.1093/ije/dyab168.688
Jones, C. A., Walker, K. S., Smithers-Sheedy, H., & Trivedi, A. (2021). Antiviral therapy for congenital cytomegalovirus infection in neonates and infants up to 12 months of age. Cochrane Database of Systematic Reviews, 2021(8). doi:10.1002/14651858.CD004340.pub2
Al Imam, M. H., Jahan, I., Muhit, M., Hardianto, D., Laryea, F., Chhetri, A. B., . . . Khandaker, G. (2021). Predictors of rehabilitation service utilisation among children with cerebral palsy (CP) in low-and middle-income countries (LMIC): Findings from the global LMIC CP register. Brain Sciences, 11(7). doi:10.3390/brainsci11070848
Jahan, I., Muhit, M., Hardianto, D., Laryea, F., Chhetri, A. B., Smithers-Sheedy, H., . . . Khandaker, G. (2021). Epidemiology of cerebral palsy in low- and middle-income countries: preliminary findings from an international multi-centre cerebral palsy register. Developmental Medicine and Child Neurology, 63(11), 1327-1336. doi:10.1111/dmcn.14926
Al Imam, M. H., Jahan, I., Das, M. C., Muhit, M., Smithers-Sheedy, H., McIntyre, S., . . . Khandaker, G. (2021). Rehabilitation status of children with cerebral palsy in Bangladesh: Findings from the Bangladesh cerebral palsy register. PLoS ONE, 16(5 May). doi:10.1371/journal.pone.0250640
Al Imam, M. H., Jahan, I., Das, M. C., Muhit, M., Smithers-Sheedy, H., McIntyre, S., . . . Khandaker, G. (2021). Population-based surveillance of children with cerebral palsy enables early diagnosis and intervention. Developmental Medicine and Child Neurology, 63(7), 883-884. doi:10.1111/dmcn.14861
Smithers-Sheedy, H. (2021). The Singapore Cerebral Palsy Registry: An important new resource for cerebral palsy research. Annals of the Academy of Medicine, Singapore, 50(2), 109-110. doi:10.47102/annals-acadmedsg.202161
Sellier, E., Goldsmith, S., McIntyre, S., Perra, O., Rackauskaite, G., Badawi, N., . . . Watson, L. (2021). Cerebral palsy in twins and higher multiple births: a Europe-Australia population-based study. Developmental Medicine and Child Neurology, 63(6), 712-720. doi:10.1111/dmcn.14827
Lewis, S. A., Shetty, S., Wilson, B. A., Huang, A. J., Jin, S. C., Smithers-Sheedy, H., . . . Kruer, M. C. (2021). Insights From Genetic Studies of Cerebral Palsy. Frontiers in Neurology, 11. doi:10.3389/fneur.2020.625428
Goldsmith, S., McIntyre, S., Scott, H., Himmelmann, K., Smithers-Sheedy, H., Andersen, G. L., . . . Watson, L. (2021). Congenital anomalies in children with postneonatally acquired cerebral palsy: an international data linkage study. Developmental Medicine and Child Neurology, 63(4), 421-428. doi:10.1111/dmcn.14805
Himmelmann, K., McIntyre, S., Goldsmith, S., Smithers-Sheedy, H., & Watson, L. (2020). Epidemiology of Cerebral Palsy. In Cerebral Palsy (pp. 131-146). Springer International Publishing. doi:10.1007/978-3-319-74558-9_9
Heiyanthuduwage, T. M., Sumanasena, S. P., Kitnasamy, G., Smithers Sheedy, H., Khandaker, G., Fernando, R., . . . Muttiah, N. (2020). Protocol for the Sri Lankan Cerebral Palsy Register pilot study. BMJ open, 10(8), e039353. doi:10.1136/bmjopen-2020-039353
Jahan, I., Al Imam, M. H., Karim, T., Muhit, M., Hardianto, D., Das, M. C., . . . Khandaker, G. (2020). Epidemiology of cerebral palsy in Sumba Island, Indonesia. Developmental Medicine and Child Neurology, 62(12), 1414-1422. doi:10.1111/dmcn.14616
Goldsmith, S., Mcintyre, S., Andersen, G. L., Gibson, C., Himmelmann, K., Blair, E., . . . Garne, E. (2021). Congenital anomalies in children with pre- or perinatally acquired cerebral palsy: an international data linkage study. Developmental Medicine and Child Neurology, 63(4), 413-420. doi:10.1111/dmcn.14602
Shepherd, E., Mcintyre, S., Smithers-Sheedy, H., Ashwood, P., Sullivan, T. R., te Velde, A., . . . Crowther, C. A. (2020). Linking data from a large clinical trial with the Australian Cerebral Palsy Register. Developmental Medicine and Child Neurology, 62(10), 1170-1175. doi:10.1111/dmcn.14556
Britton, P. N., Walker, K., McMullan, B., Galea, C., Burrell, R., Morgan, B., . . . Jones, C. A. (2020). Early Life Parechovirus Infection Neurodevelopmental Outcomes at 3 Years: A Cohort Study. Journal of Pediatrics, 219, 111-117.e1. doi:10.1016/j.jpeds.2019.12.026
Woolfenden, S., Galea, C., Badland, H., Smithers Sheedy, H., Williams, K., Kavanagh, A. M., . . . O'Connor, M. (2020). Use of health services by preschool-aged children who are developmentally vulnerable and socioeconomically disadvantaged: Testing the inverse care law. Journal of Epidemiology and Community Health, 74(6), 495-501. doi:10.1136/jech-2019-213384
Sellier, E., McIntyre, S., Smithers-Sheedy, H., & Platt, M. J. (2020). European and Australian Cerebral Palsy Surveillance Networks Working Together for Collaborative Research. Neuropediatrics, 51(2), 105-112. doi:10.1055/s-0039-3402003
Manlongat, E., Mcintyre, S., Smithers-Sheedy, H., Trivedi, A., Muhit, M., Badawi, N., & Khandaker, G. (2020). Congenital anomalies in children with cerebral palsy in rural Bangladesh. Developmental Medicine and Child Neurology, 62(4), 463-469. doi:10.1111/dmcn.14456
May, P., Smithers-Sheedy, H., Muhit, M., Cumming, R., Jones, C., Booy, R., . . . Khandaker, G. (2020). Immunisation status of children with cerebral palsy in rural bangladesh: Results from the bangladesh cerebral palsy register (bcpr). Infectious Disorders - Drug Targets, 20(3), 318-322. doi:10.2174/1871526518666181024101002
Midgley, G., Smithers-Sheedy, H., McIntyre, S., Badawi, N., Keogh, J., & Jones, C. A. (2020). Congenital cytomegalovirus prevention, awareness and policy recommendations-a scoping study. Infectious Disorders - Drug Targets, 20(3), 291-302. doi:10.2174/1871526518666181009093725
Lansdown, K., Smithers-Sheedy, H., Mathieu Coulton, K., & Irving, M. (2019). Oral health outcomes for people with cerebral palsy: A scoping review protocol. JBI Database of Systematic Reviews and Implementation Reports, 17(12), 2551-2558. doi:10.11124/JBISRIR-2017-004037
Karim, T., Al Imam, M. H., Golland, P., Khan, A. I., Hossain, I., Smithers-Sheedy, H., . . . Khandaker, G. (2019). Hip dysplasia among children with spastic cerebral palsy in rural Bangladesh. BMC Musculoskeletal Disorders, 20(1). doi:10.1186/s12891-019-2805-8
Jahan, I., Muhit, M., Hardianto, D., Karim, T., Al Imam, M. H., Das, M. C., . . . Khandaker, G. (2021). Nutritional status of children with cerebral palsy in remote Sumba Island of Indonesia: a community-based key informants study. Disability and Rehabilitation, 43(13), 1819-1828. doi:10.1080/09638288.2019.1676833
Gilmore, R., Sakzewski, L., Ziviani, J., McIntyre, S., Smithers Sheedy, H., Hilton, N., . . . Chatfield, M. (2019). Multicentre, randomised waitlist control trial investigating a parent-assisted social skills group programme for adolescents with brain injuries: Protocol for the friends project. BMJ Open, 9(8). doi:10.1136/bmjopen-2019-029587
Woolfenden, S., Galea, C., Badland, H., Smithers-Sheedy, H., Williams, K., Kavanagh, A., . . . O'Connor, M. (n.d.). The intersection of developmental vulnerability and socioeconomic disadvantage on access to health care for preschool aged children: evidence for the inverse-care law. doi:10.21203/rs.2.10731/v1
Jahan, I., Karim, T., Das, M. C., Muhit, M., Mcintyre, S., Smithers-Sheedy, H., . . . Khandaker, G. (2019). Mortality in children with cerebral palsy in rural Bangladesh: a population-based surveillance study. Developmental Medicine and Child Neurology, 61(11), 1336-1343. doi:10.1111/dmcn.14256
MacLennan, A. H., Lewis, S., Moreno-De-Luca, A., Fahey, M., Leventer, R. J., McIntyre, S., . . . Gecz, J. (2019). Genetic or Other Causation Should Not Change the Clinical Diagnosis of Cerebral Palsy. Journal of Child Neurology, 34(8), 472-476. doi:10.1177/0883073819840449
Akhter, R., Hassan, N. M. M., Martin, E. F., Muhit, M., Smithers-sheedy, H., Badawi, N., & Khandaker, G. (2019). Caries experience and oral health-related quality of life (OHRQoL) of children and adolescents with cerebral palsy in a low-resource setting. BMC Oral Health, 19(1). doi:10.1186/s12903-018-0704-2
Khandaker, G., Muhit, M., Karim, T., Smithers-Sheedy, H., Novak, I., Jones, C., & Badawi, N. (2019). Epidemiology of cerebral palsy in Bangladesh: a population-based surveillance study. Developmental Medicine and Child Neurology, 61(5), 601-609. doi:10.1111/dmcn.14013
Woolfenden, S., Galea, C., Smithers-Sheedy, H., Blair, E., Mcintyre, S., Reid, S., . . . Badawi, N. (2019). Impact of social disadvantage on cerebral palsy severity. Developmental Medicine and Child Neurology, 61(5), 586-592. doi:10.1111/dmcn.14026
Galea, C., Mcintyre, S., Smithers-Sheedy, H., Reid, S. M., Gibson, C., Delacy, M., . . . Blair, E. (2019). Cerebral palsy trends in Australia (1995–2009): a population-based observational study. Developmental Medicine and Child Neurology, 61(2), 186-193. doi:10.1111/dmcn.14011
Himmelmann, K., McIntyre, S., Goldsmith, S., Smithers-Sheedy, H., & Watson, L. (2018). Epidemiology of Cerebral Palsy. In Cerebral Palsy (pp. 1-16). Springer International Publishing. doi:10.1007/978-3-319-50592-3_9-1
Goldsmith, S., Garcia Jalon, G., Badawi, N., Blair, E., Garne, E., Gibson, C., . . . Andersen, G. L. (2018). Comprehensive investigation of congenital anomalies in cerebral palsy: Protocol for a European-Australian population-based data linkage study (The Comprehensive CA-CP Study). BMJ Open, 8(7). doi:10.1136/bmjopen-2018-022190
Jahan, I., Muhit, M., Karim, T., Smithers-Sheedy, H., Novak, I., Jones, C., . . . Khandaker, G. (2019). What makes children with cerebral palsy vulnerable to malnutrition? Findings from the bangladesh cerebral palsy register (BCPR). Disability and Rehabilitation, 41(19), 2247-2254. doi:10.1080/09638288.2018.1461260
Smithers-Sheedy, H., Raynes-Greenow, C., Badawi, N., Fernandez, M. A., Kesson, A., McIntyre, S., . . . Jones, C. A. (2017). Congenital Cytomegalovirus among Children with Cerebral Palsy. Journal of Pediatrics, 181, 267-271.e1. doi:10.1016/j.jpeds.2016.10.024
Smithers-Sheedy, H., Raynes-Greenow, C., Badawi, N., Fernandez, M. A., Kesson, A., Intyre, S. M., . . . Jones, C. A. (2017). Congenital cytomegalovirus among children with cerebral palsy. Obstetrical and Gynecological Survey, 72(7), 403-405. doi:10.1097/01.ogx.0000520631.42677.1c
Akhter, R., Hassan, N. M. M., Martin, E. F., Muhit, M., Haque, M. R., Smithers-Sheedy, H., . . . Khandaker, G. (2017). Risk factors for dental caries among children with cerebral palsy in a low-resource setting. Developmental Medicine and Child Neurology, 59(5), 538-543. doi:10.1111/dmcn.13359
Badawi, N., Balde, I., Goldsmith, S., Karlsson, P., McIntyre, S., Novak, I., . . . Watson, L. (2016). Australia and the Australian Cerebral Palsy Register for the birth cohort 1993 to 2006. Developmental Medicine and Child Neurology, 58, 3-4. doi:10.1111/dmcn.13002
Goldsmith, S., Mcintyre, S., Smithers-Sheedy, H., Blair, E., Cans, C., Watson, L., & Yeargin-Allsopp, M. (2016). An international survey of cerebral palsy registers and surveillance systems. Developmental Medicine and Child Neurology, 58, 11-17. doi:10.1111/dmcn.12999
Blair, E., & Smithers-Sheedy, H. (2016). Strabismus, a preventable barrier to social participation: A short report. Developmental Medicine and Child Neurology, 58, 57-59. doi:10.1111/dmcn.13020
Mcintyre, S., Blair, E., Goldsmith, S., Badawi, N., Gibson, C., Scott, H., & Smithers-Sheedy, H. (2016). Congenital anomalies in cerebral palsy: Where to from here?. Developmental Medicine and Child Neurology, 58, 71-75. doi:10.1111/dmcn.13015
Delacy, M. J., Louca, C., Smithers-Sheedy, H., & Mcintyre, S. (2016). Change in residential remoteness during the first 5 years of life in an Australian cerebral palsy cohort. Developmental Medicine and Child Neurology, 58, 60-65. doi:10.1111/dmcn.13013
Smithers-Sheedy, H., Mcintyre, S., Gibson, C., Meehan, E., Scott, H., Goldsmith, S., . . . Blair, E. (2016). A special supplement: Findings from the Australian Cerebral Palsy Register, birth years 1993 to 2006. Developmental Medicine and Child Neurology, 58, 5-10. doi:10.1111/dmcn.13026
Khandaker, G., Smithers-Sheedy, H., Islam, J., Alam, M., Jung, J., Novak, I., . . . Muhit, M. (2015). Bangladesh Cerebral Palsy Register (BCPR): A pilot study to develop a national cerebral palsy (CP) register with surveillance of children for CP. BMC Neurology, 15(1). doi:10.1186/s12883-015-0427-9
Smithers-Sheedy, H. (2016). Declining prevalence of cerebral palsy in Europe: Good news?. Developmental Medicine and Child Neurology, 58(1), 14. doi:10.1111/dmcn.12885
Smithers-Sheedy, H., Raynes-Greenow, C., Badawi, N., Khandaker, G., Menzies, R., & Jones, C. A. (2015). Cytomegalovirus-related childhood mortality in Australia 1999-2011. Journal of Paediatrics and Child Health, 51(9), 901-905. doi:10.1111/jpc.12896
Smithers-Sheedy, H., Raynes-Greenow, C., Badawi, N., Mcintyre, S., & Jones, C. A. (2014). Congenital cytomegalovirus is associated with severe forms of cerebral palsy and female sex in a retrospective population-based study. Developmental Medicine and Child Neurology, 56(9), 846-852. doi:10.1111/dmcn.12467
Khandaker, G., Raynes-Greenow, C., Smithers-Sheedy, H., Booy, R., Menzies, R., & Jones, C. (2014). Mortality from herpes simplex virus (HSV) infection in Australian children, 1999-2011 using national datasets. Infectious Disorders - Drug Targets, 14(2), 89-92. doi:10.2174/1871526514666140714084934
Smithers-Sheedy, H., Raynes-Greenow, C., Badawi, N., Reid, S. M., Meehan, E., Gibson, C. S., . . . Jones, C. A. (2014). Neuroimaging findings in a series of children with cerebral palsy and congenital cytomegalovirus infection. Infectious Disorders - Drug Targets, 14(3), 185-190. doi:10.2174/1871526515999150320154858
Smithers-Sheedy, H., Badawi, N., Blair, E., Cans, C., Himmelmann, K., Krägeloh-Mann, I., . . . Wilson, M. (2014). What constitutes cerebral palsy in the twenty-first century?. Developmental Medicine and Child Neurology, 56(4), 323-328. doi:10.1111/dmcn.12262
Novak, I., Smithers-Sheedy, H., & Morgan, C. (2012). Predicting equipment needs of children with cerebral palsy using the Gross Motor Function Classification System: A cross-sectional study. Disability and Rehabilitation: Assistive Technology, 7(1), 30-36. doi:10.3109/17483107.2011.556210
Ison, N., McIntyre, S., Rothery, S., Smithers-Sheedy, H., Goldsmith, S., Parsonage, S., & Foy, L. (2010). "Just like you": A disability awareness programme for children that enhanced knowledge, attitudes and acceptance: Pilot study findings. Developmental Neurorehabilitation, 13(5), 360-368. doi:10.3109/17518423.2010.496764