Ms Karen Hutchinson

Ms Karen Hutchinson

Senior Research Associate
Medicine & Health
School of Population Health

Dr Karen Hutchinson is a research fellow at the School of Population Health, University of New South Wales, an honorary conjoint scholar with the Australian Institute of Health Innovation, Macquarie University and Central Coast Local Health District and an affiliate of the Central Coast Research Institute for Integrated Care. She is a physiotherapist with many years of clinical experience supporting people living with complex neurological conditions, including MND. Her clinical and research interests focus on understanding and improving individual and family carer lived experiences and that of healthcare, living with complex neurological conditions, particularly Motor Neurone Disease. Her research areas include implementation science and practice, co-design, service mapping, implementation and evaluation of integrated models of health care specific to individuals and families living with chronic and complex conditions. She is a physiotherapist with many years of clinical experience in neurological rehabilitation in a community setting. Dr Hutchinson is collaborating on a range of national and NSW based research studies. She is on a range of research committees related to developing MND national guidelines, implementation science education, carers' knowledge exchange and conference scientific committees. 

Dr Hutchinson is currently on several committees including the MND Clinical Care Collective Committee, Two MND Guideline Development Committees - Australian MND Knowledge Translation, Dissemination, Implementation and Evaluation Committee and Australian MND Clinical and Content Advisory Group- the Australian Institute of Health Innovation, Implementation Science Interest Group, the International Conference for Integrated Care Scientific Committee and the Carers Knowledge Exchange Research Advisory Committee.

Location
School of Population Health Health Translation Hub
  • Book Chapters | 2025
    de Groot A; Zurynski Y; Hutchinson K; Fletcher J; Hickman A; Lingam R, 2025, 'Children with Medical Complexity:', in From Mother to Caregiver, Demeter Press, pp. 209 - 230, http://dx.doi.org/10.2307/jj.29308404.15
    Book Chapters | 2022
    Smith A; Hutchinson K, 2022, 'Planning for implementation', in Implementation Science, Taylor & Francis, pp. 130 - 135, http://dx.doi.org/10.4324/9781003109945-39
    Book Chapters | 2022
    Smith A; Hutchinson K, 2022, 'Planning for implementation: Why, who, and how', in Implementation Science the Key Concepts, pp. 130 - 135, http://dx.doi.org/10.4324/9781003109945-39
    Book Chapters | 2018
    Hutchinson K; Roberts C; Roach P, 2018, 'Feeling invisible and ignored: Families' experiences of marginalisation living with younger onset dementia', in Dementia as Social Experience Valuing Life and Care, pp. 46 - 66
  • Journal articles | 2026
    Cai S; Hutchinson K; Zekry A; Boutros R; Lewandowska M; Goodall S; George J; Zurynski Y, 2026, 'Healthcare system complexity of hepatitis B and C related liver disease: service mapping in New South Wales, Australia', Frontiers in Health Services, 6, http://dx.doi.org/10.3389/frhs.2026.1842589
    Journal articles | 2025
    Hall HK; Austin E; Hutchinson K; Cheek C; Clay-Williams R, 2025, 'A Systematic Review of Management of Cramping Pain in Patients with Amyotrophic Lateral Sclerosis', European Neurology, pp. 1 - 12, http://dx.doi.org/10.1159/000548820
    Journal articles | 2025
    Hutchinson K; Fisher G; Schutz A; Carr S; Heard S; Reynolds M; Goodwin N; Hogden A, 2025, 'Connecting Care Closer to Home: Evaluation of a Regional Motor Neurone Disease Multidisciplinary Clinic', Healthcare Switzerland, 13, http://dx.doi.org/10.3390/healthcare13070801
    Journal articles | 2025
    Lisiecka D; Dyson N; Malpress K; Smith A; McNeice E; Shack P; Hutchinson K, 2025, '‘Finally, in Hands I Can Trust’: Perspectives on Trust in Motor Neurone Disease Care', Healthcare Switzerland, 13, http://dx.doi.org/10.3390/healthcare13161994
    Journal articles | 2025
    Zurynski Y; Hutchinson K; Kang Y; Vizheh M; de Groot A, 2025, 'Family Experiences of Integrated Care for Children With Medical Complexity: A Scoping Review', Child Care Health and Development, 51, http://dx.doi.org/10.1111/cch.70091
    Journal articles | 2024
    Newman B; Cheek C; Richardson L; Gillies D; Hutchinson K; Austin E; Murphy M; Testa L; Rojas C; Raggett L; Dominello A; Smith K; Clay-Williams R, 2024, 'Review article: Strategies to improve emergency department care for adults living with disability: A systematic review', EMA Emergency Medicine Australasia, 36, pp. 823 - 833, http://dx.doi.org/10.1111/1742-6723.14500
    Journal articles | 2024
    Pagano L; Glenn N; Hutchinson K; Long JC; Braithwaite J; Sarkies MN, 2024, 'Operationalisation of health equity principles in physiotherapy hospital triage policies', International Journal for Equity in Health, 23, http://dx.doi.org/10.1186/s12939-024-02249-6
    Journal articles | 2024
    Spanos S; Hutchinson K; Ryder T; Rapport F; Goodwin N; Zurynski Y, 2024, 'Integrated Care in Epilepsy Management: A Scoping Review of the Models and Components of Health and Social Care Delivery', International Journal of Integrated Care, 24, http://dx.doi.org/10.5334/ijic.7659
    Journal articles | 2024
    Testa L; Richardson L; Cheek C; Hensel T; Austin E; Safi M; Ransolin N; Carrigan A; Long J; Hutchinson K; Goirand M; Bierbaum M; Bleckley F; Hibbert P; Churruca K; Clay-Williams R, 2024, 'Strategies to improve care for older adults who present to the emergency department: a systematic review', BMC Health Services Research, 24, http://dx.doi.org/10.1186/s12913-024-10576-1
    Journal articles | 2024
    Testa L; Richardson L; Cheek C; Hensel T; Austin E; Safi M; Ransolin N; Carrigan A; Long J; Hutchinson K; Goirand M; Bierbaum M; Bleckly F; Hibbert P; Churruca K; Clay-Williams R, 2024, 'Erratum: Correction: Strategies to improve care for older adults who present to the emergency department: a systematic review (BMC health services research (2024) 24 1 (178))', BMC Health Services Research, 24, pp. 304, http://dx.doi.org/10.1186/s12913-024-10766-x
    Journal articles | 2024
    Triandafilidis Z; Goodwin N; Hutchinson K; Jeong SYS; Lewis S; Hodyl N; Quick G; Hensby J; Montague A, 2024, 'Improving dementia and palliative care through the co-design of an integrated model of care', Australian Health Review, 49, http://dx.doi.org/10.1071/AH24123
    Journal articles | 2023
    Austin EE; Lanos N; Hutchinson K; Barnes S; Pulido DF; Ruane C; Clay-Williams R, 2023, 'Groundhog Day in the emergency department: A systematic review of 20 years of news coverage in Australia', Plos One, 18, http://dx.doi.org/10.1371/journal.pone.0285207
    Journal articles | 2023
    Berlowitz DJ; Mathers S; Hutchinson K; Hogden A; Carey KA; Graco M; Whelan BM; Charania S; Steyn F; Allcroft P; Crook A; Sheers NL, 2023, 'The complexity of multidisciplinary respiratory care in amyotrophic lateral sclerosis', Breathe, 19, pp. 220269, http://dx.doi.org/10.1183/20734735.0269-2022
    Journal articles | 2023
    Bierbaum M; Rapport F; Arnolda G; Tran Y; Nic Giolla Easpaig B; Ludlow K; Clay-Williams R; Austin E; Laginha B; Lo CY; Churruca K; van Baar L; Hutchinson K; Chittajallu R; Owais SS; Nullwala R; Hibbert P; Fajardo Pulido D; Braithwaite J, 2023, 'Rates of adherence to cancer treatment guidelines in Australia and the factors associated with adherence: A systematic review', Asia Pacific Journal of Clinical Oncology, 19, pp. 618 - 644, http://dx.doi.org/10.1111/ajco.13948
    Journal articles | 2023
    Cheek C; Hayba N; Richardson L; Austin EE; Francis Auton E; Safi M; Ransolin N; Vukasovic M; De Los Santos A; Murphy M; Harrison R; Churruca K; Long JC; Hibbert PD; Carrigan A; Newman B; Hutchinson K; Mitchell R; Cutler H; Holt L; Braithwaite J; Gillies D; Salmon PM; Walpola RL; Zurynski Y; Ellis LA; Smith K; Brown A; Ali R; Gwynne K; Clay-Williams R, 2023, 'Experience-based codesign approach to improve care in Australian emergency departments for complex consumer cohorts: the MyED project protocol, Stages 1.1-1.3', BMJ Open, 13, http://dx.doi.org/10.1136/bmjopen-2023-072908
    Journal articles | 2023
    Hutchinson K; Lewis S; Schutz A; Carr S; Reynolds M; Goodwin N; Hogden A, 2023, 'Review of best practices of integrated care for people living with Motor Neurone Disease', International Journal of Integrated Care, 23, pp. 528, http://dx.doi.org/10.5334/ijic.icic23542
    Journal articles | 2023
    Hutchinson K; Ryder T; Coleman H; Nullwala R; Herkes G; Bleasel A; Nikpour A; Wong C; Todd L; Ireland C; Shears G; Bartley M; Groot W; Kerr M; Vagholkar S; Braithwaite J; Rapport F, 2023, 'Determining the role and responsibilities of the community epilepsy nurse in the management of epilepsy', Journal of Clinical Nursing, 32, pp. 3730 - 3745, http://dx.doi.org/10.1111/jocn.16582
    Journal articles | 2023
    Hutchinson K; Schutz A; Hogden A; Carr S; Reynolds M; Goodwin N, 2023, 'Enablers and barriers to delivering a motor neurone disease multidisciplinary clinic in regional New South Wales, Australia', International Journal of Integrated Care, 23, pp. 529, http://dx.doi.org/10.5334/ijic.icic23193
    Journal articles | 2023
    Lingam R; Smithers-Sheedy H; Hodgson S; Hutchinson K; Morris TM; Hu N; Nassar N; Schroeder EA; Rana R; Dickins E; Bula K; Zurynski Y, 2023, 'Evaluation of RuralkidsGPS; A Novel Integrated Paediatric Care Coordination Model of Care in Rural Australia – a Mixed-Methods Study Protocol', International Journal of Integrated Care, 23, http://dx.doi.org/10.5334/ijic.7008
    Journal articles | 2023
    Pagano L; Hemmert C; Hirschhorn A; Francis-Auton E; Arnolda G; Long JC; Braithwaite J; Gumley G; Hibbert PD; Churruca K; Hutchinson K; Partington A; Hughes C; Gillatt D; Ellis LA; Testa L; Patel R; Sarkies MN, 2023, 'Implementation of consensus-based perioperative care pathways to reduce clinical variation for elective surgery in an Australian private hospital: A mixed-methods pre-post study protocol', BMJ Open, 13, http://dx.doi.org/10.1136/bmjopen-2023-075008
    Journal articles | 2023
    Roberts N; Carrigan A; Clay-Williams R; Hibbert PD; Mahmoud Z; Pomare C; Fajardo Pulido D; Meulenbroeks I; Knaggs GT; Austin EE; Churruca K; Ellis LA; Long JC; Hutchinson K; Best S; Nic Giolla Easpaig B; Sarkies MN; Francis Auton E; Hatem S; Dammery G; Nguyen MT; Nguyen HM; Arnolda G; Rapport F; Zurynski Y; Maka K; Braithwaite J, 2023, 'Innovative models of healthcare delivery: an umbrella review of reviews', BMJ Open, 13, http://dx.doi.org/10.1136/bmjopen-2022-066270
    Journal articles | 2023
    Sarkies MN; Testa L; Best S; Moullin JC; Sullivan D; Bishop W; Kostner K; Clifton P; Hare D; Brett T; Hutchinson K; Black A; Braithwaite J; Nicholls SJ; Kangaharan N; Pang J; Abhayaratna W; Horton A; Watts GF, 2023, 'Barriers to and Facilitators of Implementing Guidelines for Detecting Familial Hypercholesterolaemia in Australia', Heart Lung and Circulation, 32, pp. 1347 - 1353, http://dx.doi.org/10.1016/j.hlc.2023.09.012
    Journal articles | 2023
    Zurynski Y; Ludlow K; Testa L; Augustsson H; Herkes-Deane J; Hutchinson K; Lamprell G; McPherson E; Carrigan A; Ellis LA; Dharmayani PNA; Smith CL; Richardson L; Dammery G; Singh N; Braithwaite J, 2023, 'Built to last? Barriers and facilitators of healthcare program sustainability: a systematic integrative review', Implementation Science, 18, http://dx.doi.org/10.1186/s13012-023-01315-x
    Journal articles | 2022
    Rapport F; Smith J; Hutchinson K; Clay-Williams R; Churruca K; Bierbaum M; Braithwaite J, 2022, 'Too much theory and not enough practice? The challenge of implementation science application in healthcare practice', Journal of Evaluation in Clinical Practice, 28, pp. 991 - 1002, http://dx.doi.org/10.1111/jep.13600
    Journal articles | 2021
    Evett D; Hutchinson K; Bierbaum M; Perikic N; Proctor C; Rapport F; Shih P, 2021, 'Peer support and social network groups among people living with epilepsy: A scoping review', Epilepsy and Behavior, 124, http://dx.doi.org/10.1016/j.yebeh.2021.108381
    Journal articles | 2021
    Rapport F; Hutchinson K; Herkes GK; Bleasel A; Nikpour A; Ryder T; Wong C; Bartley M; Ireland C; Coleman H; Todd L; Groot W; Kerr M; Vagholkar S; Shears G; Braithwaite J, 2021, 'Determining the role and responsibilities of the Australian epilepsy nurse in the management of epilepsy: A study protocol', BMJ Open, 11, http://dx.doi.org/10.1136/bmjopen-2020-043553
    Journal articles | 2020
    Bierbaum M; Rapport F; Arnolda G; Nic Giolla Easpaig B; Lamprell K; Hutchinson K; Delaney GP; Liauw W; Kefford R; Olver I; Braithwaite J, 2020, 'Clinicians' attitudes and perceived barriers and facilitators to cancer treatment clinical practice guideline adherence: A systematic review of qualitative and quantitative literature', Implementation Science, 15, http://dx.doi.org/10.1186/s13012-020-00991-3
    Journal articles | 2020
    Hogden A; Paynter C; Hutchinson K, 2020, 'How can we improve patient-centered care of motor neuron disease?', Neurodegenerative Disease Management, 10, pp. 95 - 101, http://dx.doi.org/10.2217/nmt-2019-0031
    Journal articles | 2020
    Hutchinson K; Herkes G; Shih P; Francis-Auton E; Bierbaum M; Ryder T; Nikpour A; Bleasel A; Wong C; Vagholkar S; Braithwaite J; Rapport F, 2020, 'Identification and referral of patients with refractory epilepsy from the primary to the tertiary care interface in New South Wales, Australia', Epilepsy and Behavior, 111, http://dx.doi.org/10.1016/j.yebeh.2020.107232
    Journal articles | 2020
    Hutchinson K; Roberts C; Roach P; Kurrle S, 2020, 'Co-creation of a family-focused service model living with younger onset dementia', Dementia, 19, pp. 1029 - 1050, http://dx.doi.org/10.1177/1471301218793477
    Journal articles | 2019
    Baker JR; Goodenough B; Jeon YH; Bryden C; Hutchinson K; Low LF, 2019, 'The Kids4Dementia education program is effective in improving children’s attitudes towards dementia', Dementia, 18, pp. 1777 - 1789, http://dx.doi.org/10.1177/1471301217731385
    Journal articles | 2018
    Baker JR; Jeon YH; Goodenough B; Low LF; Bryden C; Hutchinson K; Richards L, 2018, 'What do children need to know about dementia? the perspectives of children and people with personal experience of dementia', International Psychogeriatrics, 30, pp. 673 - 684, http://dx.doi.org/10.1017/s1041610217002022
    Journal articles | 2018
    Baker JR; Low LF; Goodenough B; Jeon YH; Tsang RSM; Bryden C; Hutchinson K, 2018, 'The Kids Insight into Dementia Survey (KIDS): development and preliminary psychometric properties', Aging and Mental Health, 22, pp. 947 - 953, http://dx.doi.org/10.1080/13607863.2017.1320703
    Journal articles | 2018
    Hutchinson K; Roberts C; Daly M, 2018, 'Identity, impairment and disablement: exploring the social processes impacting identity change in adults living with acquired neurological impairments', Disability and Society, 33, pp. 175 - 196, http://dx.doi.org/10.1080/09687599.2017.1392931
    Journal articles | 2016
    Hutchinson K; Roberts C; Daly M; Bulsara C; Kurrle S, 2016, 'Empowerment of young people who have a parent living with dementia: A social model perspective', International Psychogeriatrics, 28, pp. 657 - 668, http://dx.doi.org/10.1017/S1041610215001714
    Journal articles | 2016
    Hutchinson K; Roberts C; Kurrle S; Daly M, 2016, 'The emotional well-being of young people having a parent with younger onset dementia', Dementia, 15, pp. 609 - 628, http://dx.doi.org/10.1177/1471301214532111
  • Conference Abstracts | 2023
    McKay S; Mazariego C; Elias J; McLoone J; Signorelli C; Wakefield C; Cohn R; Ayliff N, 2023, 'Using process mapping to capture variability within paediatric cancer survivorship services: understanding factors influencing implementation of the Engage program', in Proceedings of the 2nd Implementation Science Health Conference Australia: Sydney, NSW, Australia, 23-24 March 2023, Implementation Science, Sydney, Australia, Vol. 18, pp. 38 - 38, presented at Implementation Science Health Conference Australia, Sydney, Australia, 23 March 2023 - 24 March 2023, http://dx.doi.org/10.1186/s13012-023-01292-1

Dr Hutchinson is currently coordinating two national MND research studies funded by FightMND, Bridging the Health Equity Gap for Australians with MND: Co-designing Solutions with the MND Community and Optimising the Impact of the MND Care Coordinator Model in Australia. She is also involved in other research projects, including NIV and MND, MND Decision-Making Tools, MND Cough and Secretion Management (SCOPE), MyED - improving emergency department experiences for five cohorts: disability, aged, mental health, First Nations and CALD communities- and Exploring fathers’ experiences and perspectives of caring for children with medical complexity.                                                                                                                                                                                                      Dr Hutchinson is currently on several committees including the MND Clinical Care Collective Committee, Two MND Guideline Development Committees - Australian MND Knowledge Translation, Dissemination, Implementation and Evaluation Committee and Australian MND Clinical and Content Advisory Group- the Australian Institute of Health Innovation, Implementation Science Interest Group, the International Conference for Integrated Care Scientific Committee and the Carers Knowledge Exchange Research Advisory Committee.