Miss Suzanne Nevin
Research Associate

Miss Suzanne Nevin

Medicine & Health
School of Clinical Medicine

Suzanne Nevin currently works as a researcher investigating psychosocial impacts of paediatric neuro-genetic disease at the Sydney Children's Hospital, Randwick. She has a Bachelor of Psychology (Honours) and is currently undertaking her PhD with the Collaboration on Genetic Epilepsies and Neuorgenetics Sydney Children's Hospital Network (CoGENes) and the Behavioural Sciences Unit (BSU). Her PhD is focused on enhancing current understanding and identifying the key features of the psychosocial support needs of families affected with severe neuro-developmental epilepsies, as well as developing evidence-based resources to improve psychological outcomes. 

  • Journal articles | 2022
    Nevin SM; Wakefield CE; Dadich A; LeMarne F; Macintosh R; Beavis E; Sachdev R; Bye A; Nunn K; Palmer EE, 2022, 'Hearing parents' voices: A priority-setting workshop to inform a suite of psychological resources for parents of children with rare genetic epilepsies', PEC Innovation, vol. 1, pp. 100014 - 100014, http://dx.doi.org/10.1016/j.pecinn.2021.100014
    Journal articles | 2022
    Nevin SM; Wakefield CE; Le Marne F; Beavis E; Macintosh R; Sachdev R; Bye A; Palmer EE; Nunn K, 2022, 'Piloting positive psychology resources for caregivers of a child with a genetic developmental and epileptic encephalopathy', European Journal of Paediatric Neurology, vol. 37, pp. 129 - 138, http://dx.doi.org/10.1016/j.ejpn.2022.01.022
    Journal articles | 2022
    Strnadová I; Nevin SM; Scully JL; Palmer EE, 2022, 'The opinions and experiences of people with intellectual disability regarding genetic testing and genetic medicine: A systematic review', Genetics in Medicine, vol. 24, pp. 535 - 548, http://dx.doi.org/10.1016/j.gim.2021.11.013
    Journal articles | 2021
    McKeon G; Palmer EE; Macintosh R; Nevin SM; Wheatley L; Rosenbaum S, 2021, 'Feasibility of a mental health informed physical activity intervention for the carers of children with developmental and epileptic encephalopathy', Epilepsy and Behavior, vol. 121, pp. 108022, http://dx.doi.org/10.1016/j.yebeh.2021.108022
    Journal articles | 2021
    Nevin SM; Wakefield CE; Barlow-Stewart K; McGill BC; Bye A; Palmer EE; Dale RC; Gill D; Kothur K; Boggs K; Le Marne F; Beavis E; Macintosh R; Sachdev R, 2021, 'Psychosocial impact of genetic testing on parents of children with developmental and epileptic encephalopathy', Developmental Medicine and Child Neurology, http://dx.doi.org/10.1111/dmcn.14971
    Journal articles | 2020
    Gleeson M; Kentwell M; Meiser B; Do J; Nevin S; Taylor N; Barlow-Stewart K; Kirk J; James P; Scott CL; Williams R; Gamet K; Burke J; Murphy M; Antill YC; Pearn A; Pachter N; Ebzery C; Poplawski N; Friedlander M; Tucker KM, 2020, 'The development and evaluation of a nationwide training program for oncology health professionals in the provision of genetic testing for ovarian cancer patients', Gynecologic Oncology, vol. 158, pp. 431 - 439, http://dx.doi.org/10.1016/j.ygyno.2020.05.001
    Journal articles | 2020
    Nevin SM; McLoone J; Wakefield CE; Kennedy SE; McCarthy HJ, 2020, 'Genetic Testing in the Pediatric Nephrology Clinic: Understanding Families' Experiences', JOURNAL OF PEDIATRIC GENETICS, http://dx.doi.org/10.1055/s-0040-1721439
    Journal articles | 2020
    Nevin SM; Wakefield CE; Schilstra CE; McGill BC; Bye A; Palmer EE, 2020, 'The information needs of parents of children with early-onset epilepsy: A systematic review', Epilepsy and Behavior, vol. 112, pp. 107382 - 107382, http://dx.doi.org/10.1016/j.yebeh.2020.107382
    Journal articles | 2017
    Nevin SM; Vartanian LR, 2017, 'The stigma of clean dieting and orthorexia nervosa', Journal of Eating Disorders, vol. 5, http://dx.doi.org/10.1186/s40337-017-0168-9

2019 - 2023, University of New South Wales International Research Scholarship (TFS). 

2019 - 2022, Luminesce Alliance - Innovation for Children's Health PhD Scholarship, funded by Paediatrio and the Office for Health and Medical Research, NSW Government.

2021 - 2022, Recipient of the Sydney Children’s Hospital Network Early Career Researcher Award. 

2021, Recipient of the UNSW School of Women’s and Children’s Health, Excellence in Higher Degree Research Award.