Ms Fleur Le Marne
Conjoint Lecturer

Ms Fleur Le Marne

  • Master of Clinical Neuropsychology (with distinction and Vice Chancellor's Commendation for Academic Excellence)
  • Bachelor of Social Science (Psychology)(Hons - 1st class and recipient of Honours year Academic scholarship)
  • Bachelor of Business
Medicine & Health
School of Clinical Medicine

Fleur Le Marne is a conjoint lecturer with the University of New South Wales Faculty of Medicine and Health and currently employed by the Sydney Children’s Hospital in a research and education role. Her interdisciplinary research includes a focus on epilepsy, neurogenetics, comorbidities, health improvement, and the provision of high-quality educational resources for patients with epilepsy and for the caregivers of children with severe neurodevelopmental conditions, along with the clinicians involved in their care.

Fleur is a member of the Collaboration on Genetic Epilepsies and Neurogenetics, Sydney Children’s Hospitals Network (CoGenes) which has been established to ensure children born with genetic brain disorders get the best medical care and supports to enable them and their families to live happy and fulfilled lives. As part of this collaboration, Fleur is currently a co-investigator on the 'ClinEquip' study exploring how to best equip clinicians to navigate and manage severe neurogenetic disease, and the 'GenECompass' project evaluating an education service creating and linking families and clinicians with the highest quality information about developmental and epileptic encephalopathies. 

Fleur has recently completed research exploring the ongoing learning needs of Australian paediatricians and paediatric trainees and currently coordinates a neurology outreach programme delivered by Associate Professor Annie Bye for over 300 paediatricians and paediatric trainees across Australia.

Fleur has also collaborated with a multidisciplinary team to create a range of educational resources to improve the care of young people with epilepsy. These include educational videos on Living Well with Epilepsy, First Seizure, Safe use of Midazolam, Adolescent Epilepsy Education, EpApp - an app for young people with epilepsy, and Finding A Way - a suite of video and written resources to support caregivers of children with severe neurodevelopmental conditions. Each of these educational resources are available on the Paediatric Epilepsy Network NSW website (www.pennsw.org.au), of which Fleur has been the website editor since 2015.

Fleur holds a Master of Clinical Neuropsychology (with distinction) (Macquarie University), a Bachelor of Social Science (Psychology) (1st class Hons) (Charles Sturt University),  and a Bachelor of Business (Australian Catholic University). She was awarded the Macquarie University Vice Chancellor's Commendation for Academic Excellence for high academic achievement throughout the Master of Clinical Neuropsychology and received the Charles Sturt University Honours Year Academic Scholarship.

Before working at the Sydney Children's Hospital in Randwick, Fleur worked for the NHS Education for Scotland Special Health Board across a range of education, training and development projects to support clinicians. Projects included the Flying Start national development programme for newly qualified nurses, the Advanced Scrub Practitioner Framework, the Nurse Endoscopist Development Framework, Numeracy for Nursing, and the Health Care Support Workers Toolkit, among others. 

Research Interests

  • Medical Education
  • Health literacy
  • Complex Epilepsy
  • Neurodevelopmental conditions
  • Neurogenetic brain conditions
  • Epilepsy and comorbidities

 

Awards

  • 2017: Scientific Merit Award – Epilepsy Society of Australia - In recognition of outstanding scientific poster presentation: EpApp: Development and Evaluation
  • 2017: Wolf Dalton Travel Scholarship - Development and Evaluation of a Smartphone app for adolescents with epilepsy
  • 2017: Finalist – SCHN Quality Improvement Awards - An App for adolescents with epilepsy: Design and Evaluation of EpApp
  • 2016: Finalist (Highly Commended) – SCHN Quality Improvement Awards - Development & Evaluation of an E-learning resource on approach to First Seizure
  • 2014: Vice Chancellors Commendation for Academic Excellence, Macquarie University - Recognising attainment of academic excellence throughout the course: Master of Clinical Neuropsychology
  • 2006: Honours Year Academic Scholarship, Charles Sturt University - Recognising high academic attainment throughout the course: B.Soc.Sc (Psych.)(Hons)

 

        Educational Resource Collaborations

  • 2015 - Current: Website Editor – Paediatric Epilepsy Network NSW (PENNSW)
  • 2020: Video development and evaluation - ‘Finding a Way’ suite of positive psychology-informed videos (for families of children with severe early-onset genetic epilepsy)
  • 2020: Video development – Ketogenic Diet: An Introduction video (for parents of children on the Ketogenic Diet)
  • 2019: Redesign and launch of PENNSW website: www.pennsw.org.au
  • 2019: Development: Epilepsy Education Video series for teens (for adolescents with epilepsy)
  • 2018: Video development - Living Well with Epilepsy video (for adolescents with epilepsy)
  • 2018: Video development and evaluation - First Seizure video (for parents after a child’s first seizure)
  • 2018: Video development – Using Midazolam video (for Parents of a child prescribed midazolam)
  • 2016/2017: Design, development and evaluation of EpApp (smartphone app for adolescents with epilepsy and their caregivers)
  • 2015/2016: Design, development and evaluation of a First seizure E-learning Resource for paediatricians and paediatric trainees.
  • Journal articles | 2022
    Bye AME; Le Marne FA; Beavis E; Macintosh R; Nevin SM; Palmer EE; Sachdev R; Nunn K, 2022, 'Hope in the uncertainties and certainty for parents of children with rare neurological disorders: Part 3 (of 3): Hope', Journal of Paediatrics and Child Health, vol. 58, pp. 1726 - 1728, http://dx.doi.org/10.1111/jpc.16187
    Journal articles | 2022
    Nevin SM; Beavis E; Macintosh R; Palmer EE; Sachdev R; Le Marne FA; Bye AME; Nunn K, 2022, 'Hope in the uncertainties and certainty for parents of children with rare neurological disorders: Part 2 (of 3): Certainty', Journal of Paediatrics and Child Health, vol. 58, pp. 1722 - 1725, http://dx.doi.org/10.1111/jpc.16202
    Journal articles | 2022
    Nevin SM; Wakefield CE; Barlow-Stewart K; McGill BC; Bye A; Palmer EE; Dale RC; Gill D; Kothur K; Boggs K; Le Marne F; Beavis E; Macintosh R; Sachdev R, 2022, 'Psychosocial impact of genetic testing on parents of children with developmental and epileptic encephalopathy', Developmental Medicine and Child Neurology, vol. 64, pp. 95 - 104, http://dx.doi.org/10.1111/dmcn.14971
    Journal articles | 2022
    Nevin SM; Wakefield CE; Le Marne F; Beavis E; Macintosh R; Sachdev R; Bye A; Palmer EE; Nunn K, 2022, 'Piloting positive psychology resources for caregivers of a child with a genetic developmental and epileptic encephalopathy', European Journal of Paediatric Neurology, vol. 37, pp. 129 - 138, http://dx.doi.org/10.1016/j.ejpn.2022.01.022
    Journal articles | 2022
    Palmer EE; Sachdev R; Beavis E; Macintosh R; Le Marne FA; Nevin SM; Bye AME; Nunn K, 2022, 'Hope in the uncertainties and certainty for parents of children with rare neurological disorders. Part I (of 3): Uncertainty', Journal of Paediatrics and Child Health, vol. 58, pp. 1718 - 1721, http://dx.doi.org/10.1111/jpc.16165
    Journal articles | 2022
    Robertson EG; Kelada L; Best S; Goranitis I; Grainger N; Le Marne F; Pierce K; Nevin SM; Macintosh R; Beavis E; Sachdev R; Bye A; Palmer EE, 2022, 'Acceptability and feasibility of an online information linker service for caregivers who have a child with genetic epilepsy: a mixed-method pilot study protocol', BMJ open, vol. 12, pp. e063249, http://dx.doi.org/10.1136/bmjopen-2022-063249
    Journal articles | 2021
    Ng EWM; Le Marne F; Sinclair KG; Lorentzos MS; Waak M; Deuble N; Georgeson T; Rao A; Rikhi S; Mallitt KA; Bye A, 2021, 'Evaluation of an educational video providing key messages for doctors to counsel families following a first afebrile seizure', Journal of Paediatrics and Child Health, vol. 57, pp. 198 - 203, http://dx.doi.org/10.1111/jpc.15171
    Journal articles | 2019
    Banuelos R; Beavis E; Le Marne F; Rowe N; Gao Y; Menzies J; Farrar MA; Cardamone M, 2019, 'Factors Affecting the Efficacy, Tolerability and Compliance of Dietary Therapy for Epilepsy- Four-Years Experience', Neurological Case Reports, vol. 2, pp. 1010 - 1010, http://www.remedypublications.com/neurological-case-reports-abstract.php?aid=4936
    Journal articles | 2019
    Le Marne FA; Towns SJ; Gaskin C; Ho J; Baker R; Beavis E; Bye AM, 2019, 'Implementing a new adolescent epilepsy service: Improving patient experience and readiness for transition', Journal of Paediatrics and Child Health, vol. 55, pp. 819 - 825, http://dx.doi.org/10.1111/jpc.14301
    Journal articles | 2018
    Le Marne FA; Butler S; Beavis E; Gill D; Bye AME, 2018, 'EpApp: Development and evaluation of a smartphone/tablet app for adolescents with epilepsy', Journal of Clinical Neuroscience, vol. 50, pp. 214 - 220, http://dx.doi.org/10.1016/j.jocn.2018.01.065
    Journal articles | 2016
    Le Marne FA; McGinness H; Slade R; Cardamone M; Balbir Singh S; Connolly AM; Bye AME, 2016, 'Evaluation of an E-learning resource on approach to the first unprovoked seizure', Journal of Paediatrics and Child Health, vol. 52, pp. 896 - 900, http://dx.doi.org/10.1111/jpc.13277
  • Conference Presentations | 2021
    Nevin S; Wakefield C; Le Marne F; Beavis E; Macintosh R; Sachdev R; Bye A; Palmer E; Nunn K, 2021, 'Evaluating positive psychology resources among caregivers of a child with a genetic epilepsy', presented at The Australian and New Zealand Child Neurology Society (ANZCNZ) 9th Annual Scientific Meeting, Held virtually, 13 September 2021 - 15 September 2021
    Conference Posters | 2020
    Le Marne F, 2020, 'Co-developing psychological resources for families with genetic epilepsy', Virtual, presented at Human Genetics Society of Australasia, Virtual, 24 November 2020 - 25 November 2020
    Conference Posters | 2019
    Macintosh R; Nevin S; Le Marne F; McGill B; Sachdev R; Wakefield C; Bye A; Palmer E, 2019, 'Co-development of education and support resources for families with severe early-onset genetic epilepsy', Welcome Genome Campus, UK, presented at World Congress of Genetic Counselling, Welcome Genome Campus, UK, 02 October 2019 - 04 October 2019
    Conference Posters | 2019
    Ng E; Le Marne F; Sinclair K; Lorentzos M; Waak M; Deuble N; Georgeson T; Rao A; Rikhi S; Bye A, 2019, 'The evaluation of an educational video counselling key messages for doctors and families following a first afebrile seizure', presented at Epilepsy Society of Australia 30th Annual Scientific Meeting, 6th – 8th November 2019, 06 November 2019 - 08 November 2019
    Conference Posters | 2017
    Le Marne F; Butler S; Beavis E; O'Brien AM; Gill D; Bye A, 2017, 'Design and development of a novel App for adolescents with epilepsy', Perth, presented at Epilepsy Society of Australia 31st Annual Scientific Meeting, Perth, 01 November 2017 - 03 November 2017
    Conference Presentations | 2017
    Le Marne F; Butler S; Beavis E; O'Brien AM; Gill D; Bye A, 2017, 'Design, development and evaluation of an app for adolescents with epilepsy', presented at The Australian and New Zealand Child Neurology Society 6th Annual Scientific Meeting, Brisbane, QLD, 09 August 2017 - 11 August 2017
    Conference Posters | 2015
    Le Marne F; McGinness H; Slade R; Cardamone M; Balbir Singh S; Bye A, 2015, 'The first unprovoked seizure: validation of a newly developed e-learning resource', Adelaide, South Australia, presented at Epilepsy Society of Australia 29th Annual Scientific Meeting, Adelaide, South Australia, 21 October 2015 - 23 October 2015
    Conference Presentations | 2015
    McGinness H; Le Marne F; Slade R; Cardamone M; Bye A, 2015, 'The first unprovoked seizure: validation of a newly developed e-learning resource', presented at The Australian and New Zealand Child Neurology Society 4th Annual Scientific Meeting, Melbourne, Australia, 26 August 2015 - 26 August 2015