Professor Jackie Leach Scully

Professor Jackie Leach Scully

Director

PhD in cellular pathology, University of Cambridge; BA (Hons) in biochemistry, University of Oxford; MA in psychoanalytic studies, Sheffield University

Societal Impact Equity Engage
Office of Division of I&D

Jackie Leach Scully is an internationally recognised bioethicist specialising in disability and feminist bioethics. With a background in molecular biology and further training in neurobiology, she held research fellowships at the Ecole polytechnique federale de Lausanne and the University of Basel, Switzerland, before helping to establish the first interdisciplinary unit for bioethics at Basel. In 2006 she joined Newcastle University, UK as Senior Lecturer, becoming Director of Research and ultimately Executive Director of the Policy, Ethics and Life Sciences Research Centre there. In August 2019 she moved to UNSW as Professor of Bioethics and Director of the Disability Innovation Institute, based in the Faculty of Arts and Social Sciences.

 

 

Location
Research hub, Level 1, John Goodsell Building
  • Books | 2022
    Rogers WA; Scully JL; Carter SM; Entwistle VA; Mills C, 2022, INTRODUCTION, http://dx.doi.org/10.4324/9781003016885-1
    Books | 2022
    Rogers WA; Scully JL; Carter SM; Entwistle VA; Mills C, 2022, THE ROUTLEDGE HANDBOOK OF FEMINIST BIOETHICS, http://dx.doi.org/10.4324/9781003016885
    Books | 2016
    Scully JL; Dandelion P, 2016, Good and Evil: Quaker Perspectives, http://dx.doi.org/10.4324/9781315585420
    Books | 2013
    Scully JL; Dandelion P, 2013, Good and evil: Quaker perspectives
  • Book Chapters | 2022
    Rogers WA; Scully JL; Carter SM; Entwistle VA; Mills C, 2022, 'Introduction', in The Routledge Handbook of Feminist Bioethics, Routledge, pp. 1 - 11, http://dx.doi.org/10.4324/9781003016885-1
    Book Chapters | 2022
    Scully JL, 2022, 'BEING DISABLED AND CONTEMPLATING DISABLED CHILDREN', in The Disability Bioethics Reader, pp. 116 - 124, http://dx.doi.org/10.4324/9781003289487-16
    Book Chapters | 2022
    Scully JL, 2022, 'FEMINIST BIOETHICS AND DISABILITY', in The Routledge Handbook of Feminist Bioethics, pp. 181 - 194, http://dx.doi.org/10.4324/9781003016885-16
    Book Chapters | 2021
    Scully JL, 2021, 'The Politics of Care: From Biomedical Transformation to Narrative Vulnerability', in Vulnerability and the Politics of Care, British Academy, pp. 151 - 167, http://dx.doi.org/10.5871/bacad/9780197266830.003.0010
    Book Chapters | 2020
    Scully JL, 2020, '14 Nothing Like a Gene', in Genes in Development, Duke University Press, pp. 349 - 364, http://dx.doi.org/10.1515/9780822387336-015
    Book Chapters | 2020
    Scully JL, 2020, 'Epistemic Exclusion, Injustice, and Disability', in Cureton A; Wasserman DT (ed.), , Oxford University Press, pp. 295 - 309, http://dx.doi.org/10.1093/oxfordhb/9780190622879.013.8
    Book Chapters | 2019
    Scully JL, 2019, 'Choice, Chance, and Acceptance', in Human Flourishing in an Age of Gene Editing, Oxford University Press, pp. 143 - 156, http://dx.doi.org/10.1093/oso/9780190940362.003.0011
    Book Chapters | 2019
    Scully JL, 2019, 'Deaf identities in disability studies', in Routledge Handbook of Disability Studies, Routledge, pp. 145 - 157, http://dx.doi.org/10.4324/9780429430817-11
    Book Chapters | 2018
    Scully JL, 2018, 'Disability and the challenge of genomics', in Routledge Handbook of Genomics, Health and Society, pp. 186 - 194, http://dx.doi.org/10.4324/9781315451695
    Book Chapters | 2017
    Scully JL, 2017, 'Receiving and interpreting information: A joint enterprise', in Disclosure Dilemmas: Ethics of Genetic Prognosis after the 'Right to Know/Not to Know' Debate, pp. 205 - 217
    Book Chapters | 2016
    Kim J; Scully JL; Katsanis SH, 2016, 'Ethical challenges in missing persons investigations', in Handbook of Missing Persons, pp. 163 - 175, http://dx.doi.org/10.1007/978-3-319-40199-7_12
    Book Chapters | 2016
    Scully JL, 2016, 'Feminist empirical bioethics', in Empirical Bioethics: Theoretical and Practical Perspectives, pp. 195 - 221, http://dx.doi.org/10.1017/9781139939829.013
    Book Chapters | 2016
    Scully JL, 2016, 'The Secular Ethics of Liberal Quakerism', in Good and Evil: Quaker Perspectives, pp. 219 - 231, http://dx.doi.org/10.4324/9781315585420-24
    Book Chapters | 2014
    Scully JL, 2014, 'On Unfamiliar Moral Territory: About Variant Embodiment, Enhancement and Normativity', in The Human Enhancement Debate and Disability, Palgrave Macmillan UK, pp. 23 - 37, http://dx.doi.org/10.1057/9781137405531_2
    Book Chapters | 2014
    Scully JL, 2014, 'On unfamiliar moral territory: About variant embodiment, enhancement and normativity', in The Human Enhancement Debate and Disability: New Bodies for a Better Life, pp. 23 - 37, http://dx.doi.org/10.1057/9781137405531
    Book Chapters | 2013
    Dodds S, 2013, 'Feminist Bioethics', in The International Encyclopedia of Ethics, Blackwell Publishing Ltd, pp. 1918 - 1925
    Book Chapters | 2013
    Scully JL, 2013, 'Deaf identities in disability studies: With us or without us?', in Routledge Handbook of Disability Studies, pp. 109 - 121, http://dx.doi.org/10.4324/9780203144114-16
    Book Chapters | 2013
    Scully JL, 2013, 'Disability and Vulnerability', in Vulnerability, Oxford University Press, pp. 204 - 221, http://dx.doi.org/10.1093/acprof:oso/9780199316649.003.0009
    Book Chapters | 2013
    Scully JL, 2013, 'The secular ethics of liberal Quakerism', in Good and Evil: Quaker Perspectives, pp. 132 - 219
    Book Chapters | 2012
    Scully JL, 2012, 'Disability and the thinking body', in Embodied Selves, pp. 139 - 159, http://dx.doi.org/10.1057/9781137283696_9
    Book Chapters | 2012
    Scully JL, 2012, 'Disability, Human Rights and Contemporary Genetics', in , Wiley, http://dx.doi.org/10.1002/9780470015902.a0005214.pub2
    Book Chapters | 2012
    Scully JL, 2012, 'Disability: Stigma and Discrimination', in , Wiley, http://dx.doi.org/10.1002/9780470015902.a0005210.pub2
    Book Chapters | 2011
    Scully JL, 2011, 'Disability and the Pitfalls of Recognition', in Contesting Recognition, Palgrave Macmillan UK, pp. 36 - 52, http://dx.doi.org/10.1057/9780230348905_3
    Book Chapters | 2009
    Rehmann-Sutter C; Porz R; Scully JL, 2009, 'Sourcing human embryonic tissue: The ethical issues', in Fundamentals of Tissue Engineering and Regenerative Medicine, pp. 37 - 46, http://dx.doi.org/10.1007/978-3-540-77755-7_4
    Book Chapters | 2009
    Rehmann-Sutter C; Scully JL, 2009, 'Which Ethics for (of) the Nanotechnologies?', in Sociology of the Sciences Yearbook, Springer Netherlands, pp. 233 - 252, http://dx.doi.org/10.1007/978-90-481-2834-1_13
    Book Chapters | 2008
    Scully JL, 2008, 'Disability and the thinking body', in Arguing about Disability: Philosophical Perspectives, pp. 57 - 73, http://dx.doi.org/10.4324/9780203891575
    Book Chapters | 2008
    Scully JL, 2008, 'Moral bodies: Epistemologies of embodiment', in Naturalized Bioethics: Toward Responsible Knowing and Practice, pp. 23 - 41, http://dx.doi.org/10.1017/CBO9781139167499.003
    Book Chapters | 2007
    Thompson SM, 2007, 'Introduction', in Thompson S (ed.), Planning Australia: An Overview of Urban and Regional Planning, Cambridge University Press, Port Melbourne, pp. 1 - 8
    Book Chapters | 2006
    SCULLY JL, 2006, 'DISABLED EMBODIMENT AND AN ETHIC OF CARE', in Bioethics in Cultural Contexts, Springer Netherlands, pp. 247 - 261, http://dx.doi.org/10.1007/1-4020-4241-8_18
    Book Chapters | 2006
    Scully JL, 2006, 'Disability: Stigma and Discrimination', in , Wiley, http://dx.doi.org/10.1038/npg.els.0005210
    Book Chapters | 2006
    Scully JL, 2006, 'Inheritable genetic modification and disability: Normality and identity', in The Ethics of Inheritable Genetic Modification: A Dividing Line?, pp. 175 - 192, http://dx.doi.org/10.1017/CBO9780511584275.011
    Book Chapters | 2006
    Scully JL, 2006, 'Nothing Like a Gene', in Genes in Development, Duke University Press, pp. 349 - 364, http://dx.doi.org/10.1215/9780822387336-015
    Book Chapters | 2005
    Porz R; Scully JL; Rehmann-Sutter C, 2005, 'Fragilität oder Stabilität? Die Gendiagnostik aus Patientensicht', in Technik in einer fragilen Welt, Nomos, pp. 153 - 162, http://dx.doi.org/10.5771/9783845271071-153
    Book Chapters | 2005
    Scully JL, 2005, 'Admitting All Variations? Postmodernism and Genetic Normality', in Ethics of the Body, The MIT Press, pp. 49 - 68, http://dx.doi.org/10.7551/mitpress/2842.003.0007
    Book Chapters | 2003
    Scully JL; Rippberger C; Rehmann-Sutter C, 2003, 'Additional ethical issues in genetic medicine perceived by the potential patients', in Populations and Genetics: Legal and Socio-Ethical Perspectives, pp. 623 - 638
    Book Chapters | 1994
    Otten U; Scully JL; Ehrhard PB; Gadient RA, 1994, 'Chapter 24 Neurotrophins: Signals between the nervous and immune systems', in , pp. 293 - 305, http://dx.doi.org/10.1016/S0079-6123(08)61144-9
    Book Chapters |
    Scully JL, 'Deaf Identities in Disability Studies', in Routledge Handbook of Disability Studies, Routledge, http://dx.doi.org/10.4324/9780203144114.ch9
    Book Chapters |
    Scully JL, 'Disability and the Pitfalls of Recognition', in Contesting Recognition, Palgrave Macmillan, http://dx.doi.org/10.1057/9780230348905.0006
    Book Chapters |
    Scully JL, 'On Unfamiliar Moral Territory', in The Human Enhancement Debate and Disability, Palgrave Macmillan, http://dx.doi.org/10.1057/9781137405531.0008
  • Journal articles | 2024
    Dunn M; Strnadová I; Scully JL; Hansen J; Loblinzk J; Sarfaraz S; Molnar C; Palmer EE, 2024, 'Equitable and accessible informed healthcare consent process for people with intellectual disability: a systematic literature review', BMJ Quality and Safety, 33, pp. 328 - 339, http://dx.doi.org/10.1136/bmjqs-2023-016113
    Journal articles | 2024
    Molnar C; Strnadová I; Dunn M; Loblinzk J; Sarfaraz S; Cathcart-King Y; Tso M; Danker J; Hayes S; Willow SA; Hansen J; Lim TQ; Boyle J; Terrill B; Scully JL; Palmer EE, 2024, 'The need for co-educators to drive a new model of inclusive, person-centred and respectful co-healthcare with people with intellectual disability', Frontiers in Psychiatry, 15, pp. 1346423, http://dx.doi.org/10.3389/fpsyt.2024.1346423
    Journal articles | 2023
    Freeman L; Bristowe L; Kirk EP; Delatycki MB; Scully JL, 2023, 'Should genes for non-syndromic hearing loss be included in reproductive genetic carrier screening: Views of people with a personal or family experience of deafness', Journal of Genetic Counseling, http://dx.doi.org/10.1002/jgc4.1757
    Journal articles | 2023
    Freeman L; Delatycki MB; Scully JL; Briggs N; Kirk EP, 2023, 'Views of healthcare professionals on the inclusion of genes associated with non-syndromic hearing loss in reproductive genetic carrier screening', European Journal of Human Genetics, 31, pp. 548 - 554, http://dx.doi.org/10.1038/s41431-022-01239-y
    Journal articles | 2023
    Freeman L; Delatycki MB; Scully JL; Kirk EP, 2023, 'Response to Li and Sun', Genetics in Medicine, 25, pp. 157, http://dx.doi.org/10.1016/j.gim.2022.10.003
    Journal articles | 2023
    Kerridge I; Stewart C; Scully JL; Chiarella M; Hamblin J; Johnson A; Ryan C; Sheahan L; Skowronski G, 2023, 'Conscientious Objection and Institutional Objection to Voluntary Assistance in Dying: An Ethico-legal Critique', Journal of law and medicine, 30, pp. 806 - 821
    Journal articles | 2023
    Scully JL, 2023, 'COVID, Vulnerability, and the Death of Solidarity: “Who Do We Not Save?”', Journal of Bioethical Inquiry, 20, pp. 601 - 606, http://dx.doi.org/10.1007/s11673-023-10250-x
    Journal articles | 2023
    Strnadová I; Loblinzk J; Scully JL; Danker J; Tso M; Jackaman KM; Dunn M; Willow SA; Sarfaraz S; Fitzgerald V; Boyle J; Palmer EE, 2023, '“I am not a number!” Opinions and preferences of people with intellectual disability about genetic healthcare', European Journal of Human Genetics, 31, pp. 1057 - 1065, http://dx.doi.org/10.1038/s41431-023-01282-3
    Journal articles | 2023
    van Toorn G; Scully JL, 2023, 'Unveiling algorithmic power: exploring the impact of automated systems on disabled people’s engagement with social services', Disability and Society, ahead-of-print, pp. 1 - 26, http://dx.doi.org/10.1080/09687599.2023.2233684
    Journal articles | 2022
    Aquino YSJ; Rogers WA; Scully JL; Magrabi F; Carter SM, 2022, 'Ethical Guidance for Hard Decisions: A Critical Review of Early International COVID-19 ICU Triage Guidelines', Health Care Analysis, 30, pp. 163 - 195, http://dx.doi.org/10.1007/s10728-021-00442-0
    Journal articles | 2022
    Bluhm R; Gotlib A; Scully JL, 2022, 'Editors’ Note', International Journal of Feminist Approaches to Bioethics, 15, pp. 97 - 97, http://dx.doi.org/10.3138/ijfab-15.1.05
    Journal articles | 2022
    Freeman L; Delatycki MB; Leach Scully J; Kirk EP, 2022, 'Views of reproductive genetic carrier screening participants regarding screening for genes associated with non-syndromic hearing loss', Prenatal Diagnosis, 42, pp. 1658 - 1666, http://dx.doi.org/10.1002/pd.6253
    Journal articles | 2022
    Freeman L; Righetti S; Delatycki MB; Scully JL; Kirk EP, 2022, 'The views of people with a lived experience of deafness and the general public regarding genetic testing for deafness in the reproductive setting: A systematic review', Genetics in Medicine, 24, pp. 1803 - 1813, http://dx.doi.org/10.1016/j.gim.2022.05.005
    Journal articles | 2022
    Nguyen CQ; Alba-Concepcion K; Palmer EE; Scully JL; Millis N; Farrar MA, 2022, 'The involvement of rare disease patient organisations in therapeutic innovation across rare paediatric neurological conditions: a narrative review', Orphanet Journal of Rare Diseases, 17, http://dx.doi.org/10.1186/s13023-022-02317-6
    Journal articles | 2022
    Scully JL, 2022, 'On Being Unwilling Insiders', International Journal of Feminist Approaches to Bioethics, 15, pp. 146 - 149, http://dx.doi.org/10.3138/ijfab-15.1.22
    Journal articles | 2022
    Scully JL, 2022, 'Response—A Commentary on Miles Little et al. 1998. Liminality: A major category of the experience of cancer illness. Social Science & Medicine 47(10): 1485-1494', Journal of Bioethical Inquiry, 19, pp. 49 - 54, http://dx.doi.org/10.1007/s11673-021-10145-9
    Journal articles | 2022
    Strnadová I; Nevin SM; Scully JL; Palmer EE, 2022, 'The opinions and experiences of people with intellectual disability regarding genetic testing and genetic medicine: A systematic review', Genetics in Medicine, 24, pp. 535 - 548, http://dx.doi.org/10.1016/j.gim.2021.11.013
    Journal articles | 2021
    Bluhm R; Gotlib A; Scully JL; Tumilty E; Milberger K, 2021, 'From the editors', International Journal of Feminist Approaches to Bioethics, 14, http://dx.doi.org/10.3138/IJFAB-14.1.00
    Journal articles | 2021
    Rogers WA; Scully JL, 2021, 'Activism and Bioethics: Taking a Stand on Things That Matter', Hastings Center Report, 51, pp. 32 - 33, http://dx.doi.org/10.1002/hast.1270
    Journal articles | 2021
    Scully JL, 2021, 'A biographer and a bioethicist take on the CRISPR revolution', Nature, 591, pp. 196 - 197, http://dx.doi.org/10.1038/d41586-021-00579-x
    Journal articles | 2021
    Wienroth M; Scully JL, 2021, 'Promissory ethical regimes: publics and public goods in genome editing for human health', SCIENCE AND PUBLIC POLICY, 48, pp. 788 - 798, http://dx.doi.org/10.1093/scipol/scab052
    Journal articles | 2020
    Ahmad A; Chung R; Eckenwiler L; Ganguli-Mitra A; Hunt M; Richards R; Saghai Y; Schwartz L; Scully JL; Wild V, 2020, 'What does it mean to be made vulnerable in the era of COVID-19?', The Lancet, 395, pp. 1481 - 1482, http://dx.doi.org/10.1016/S0140-6736(20)30979-X
    Journal articles | 2020
    Guidry-Grimes L; Savin K; Stramondo JA; Reynolds JM; Tsaplina M; Burke TB; Ballantyne A; Kittay EF; Stahl D; Scully JL; Garland-Thomson R; Tarzian A; Dorfman D; Fins JJ, 2020, 'Disability Rights as a Necessary Framework for Crisis Standards of Care and the Future of Health Care', Hastings Center Report, 50, pp. 28 - 32, http://dx.doi.org/10.1002/hast.1128
    Journal articles | 2020
    Scully JL, 2020, 'Disability, Disablism, and COVID-19 Pandemic Triage', Journal of Bioethical Inquiry, 17, pp. 601 - 605, http://dx.doi.org/10.1007/s11673-020-10005-y
    Journal articles | 2019
    Draper H; Moorlock G; Rogers W; Scully JL, 2019, 'Bioethics and activism', Bioethics, 33, pp. 853 - 856, http://dx.doi.org/10.1111/bioe.12680
    Journal articles | 2019
    Scully JL, 2019, 'Special Section: The Donchin and Holmes Emerging Scholar Prize 2016', IJFAB: International Journal of Feminist Approaches to Bioethics, 12, pp. 148 - 148, http://dx.doi.org/10.3138/ijfab.12.2.08
    Journal articles | 2019
    Scully JL, 2019, 'The responsibilities of the engaged bioethicist: Scholar, advocate, activist', Bioethics, 33, pp. 872 - 880, http://dx.doi.org/10.1111/bioe.12659
    Journal articles | 2018
    Eckenwiler L; Hunt M; Leach Scully J; Wild V, 2018, '4.11-P16Understanding and operationalizing vulnerability in International Humanitarian Health Organisations', European Journal of Public Health, 28, http://dx.doi.org/10.1093/eurpub/cky048.181
    Journal articles | 2018
    Scully JL, 2018, 'From "she would say that, wouldn't she?" to "does she take sugar?" epistemic injustice and disability', International Journal of Feminist Approaches to Bioethics, 11, pp. 106 - 124, http://dx.doi.org/10.3138/ijfab.11.1.106
    Journal articles | 2017
    Eckenwiler L; Ahmad A; Chung R; Hunt M; Leach Scully J; Schwarz L; Wild N, 2017, 'Vulnerable Populations: Investigating Ethical Implications for Policies and Practices of International Humanitarian Organizations', Prehospital and Disaster Medicine, 32, pp. S49 - S50, http://dx.doi.org/10.1017/s1049023x1700142x
    Journal articles | 2017
    Scully JL; Banks S; Song R; Haq J, 2017, 'Experiences of faith group members using new reproductive and genetic technologies: A qualitative interview study', Human Fertility, 20, pp. 22 - 29, http://dx.doi.org/10.1080/14647273.2016.1243816
    Journal articles | 2017
    Scully JL; Bluhm R; Lindemann H; Nelson JL, 2017, 'From the editors', International Journal of Feminist Approaches to Bioethics, 10, pp. 1 - 3, http://dx.doi.org/10.3138/ijfab.10.2.1
    Journal articles | 2017
    Scully JL, 2017, 'A mitochondrial story: Mitochondrial replacement, identity and narrative', Bioethics, 31, pp. 37 - 45, http://dx.doi.org/10.1111/bioe.12310
    Journal articles | 2017
    Scully JL, 2017, 'Genetic interventions to ‘have healthier children’: a viewpoint from the United Kingdom', Bioethica Forum, http://dx.doi.org/10.24894/bf.2017.10006
    Journal articles | 2015
    Verkerk MA; Lindemann H; McLaughlin J; Scully JL; Kihlbom U; Nelson J; Chin J, 2015, 'Where families and healthcare meet', Journal of Medical Ethics, 41, pp. 183 - 185, http://dx.doi.org/10.1136/medethics-2013-101783
    Journal articles | 2014
    Scully JL; Williams R, 2014, 'Approaching disaster victim identification', New Genetics and Society, 33, pp. 233 - 238, http://dx.doi.org/10.1080/14636778.2014.946988
    Journal articles | 2014
    Scully JL, 2014, 'Naming the dead: DNA-based identification of historical remains as an act of care', New Genetics and Society, 33, pp. 313 - 332, http://dx.doi.org/10.1080/14636778.2014.946002
    Journal articles | 2013
    Chambers T; Ahmad A; Crow S; Davis DS; Dresser R; Harter TD; Jordan SR; Kaposy C; Lanoix M; Lee KJ; Scully JLE; Taylor KA; Watson K, 2013, 'Taking bioethics personally', Narrative inquiry in bioethics, 3, pp. 1 - 3, http://dx.doi.org/10.1353/nib.2013.0001
    Journal articles | 2013
    Rommetveit K; Scully JL; Porz R, 2013, 'The role of moral imagination in patients' decision-making', Journal of Medicine and Philosophy (United Kingdom), 38, pp. 160 - 172, http://dx.doi.org/10.1093/jmp/jht006
    Journal articles | 2013
    Scully JL, 2013, 'Feminist disability studies, edited by Kim Q. Hall', IJFAB: International Journal of Feminist Approaches to Bioethics, 6, pp. 166 - 172, http://dx.doi.org/10.3138/ijfab.6.1.166
    Journal articles | 2013
    Scully JL, 2013, 'Mitochondrial donation: the slippery slope to genetic engineering?', Bioethica Forum, http://dx.doi.org/10.24894/bf.2013.06028
    Journal articles | 2013
    Scully JLE, 2013, 'Body alienation and the moral sense of self', Narrative inquiry in bioethics, 3, pp. 26 - 28, http://dx.doi.org/10.1353/nib.2013.0013
    Journal articles | 2012
    Evison M; Graham E; Haimes E; Leach Scully J; Ludwig A; Maguire C; Toom V; Williams R, 2012, 'A comment on the Hill-Turney exchange: From normative antagonism to interdisciplinary collaboration', New Genetics and Society, 31, pp. 385 - 390, http://dx.doi.org/10.1080/14636778.2012.679395
    Journal articles | 2012
    Rehmann-Sutter C; Porz R; Scully JL, 2012, 'How to relate the empirical to the normative: Toward a phenomenologically informed hermeneutic approach to bioethics', Cambridge Quarterly of Healthcare Ethics, 21, pp. 436 - 447, http://dx.doi.org/10.1017/S0963180112000217
    Journal articles | 2012
    Scully JL; Haimes E; Mitzkat A; Porz R; Rehmann-Sutter C, 2012, 'Donating Embryos to Stem Cell Research: The "Problem" of Gratitude', Journal of Bioethical Inquiry, 9, pp. 19 - 28, http://dx.doi.org/10.1007/s11673-011-9352-9
    Journal articles | 2012
    Scully JL; Woodward R, 2012, 'Naming the unknown of Fromelles: DNA profiling, ethics and the identification of First World War bodies', Journal of War & Culture Studies, 5, pp. 59 - 72, http://dx.doi.org/10.1386/jwcs.5.1.59_1
    Journal articles | 2011
    Scully JL, 2011, ''Choosing disability', symbolic law, and the media', Medical Law International, 11, pp. 197 - 211, http://dx.doi.org/10.1177/096853321101100304
    Journal articles | 2010
    Scully JL, 2010, 'Hidden labor: Disabled/Nondisabled encounters, agency, and autonomy', IJFAB: International Journal of Feminist Approaches to Bioethics, 3, pp. 25 - 42, http://dx.doi.org/10.3138/ijfab.3.2.25
    Journal articles | 2009
    Scully JL, 2009, 'Virtuous Friends: Morality and Quaker Identity', Quaker Studies, 14, pp. 108 - 122, http://dx.doi.org/10.3828/quaker.14.1.108
    Journal articles | 2008
    Haimes E; Porz R; Scully J; Rehmann-Sutter C, 2008, '"So, what is an embryo?" A comparative study of the views of those asked to donate embryos for hESC research in the UK and Switzerland', New Genetics and Society, 27, pp. 113 - 126, http://dx.doi.org/10.1080/14636770802077041
    Journal articles | 2008
    Porz R; Bürkli P; Barazzetti G; Scully JL; Rehmann-Sutter C, 2008, 'A challenged choice: Donating spare embryos to stem cell research in Switzerland', Swiss Medical Weekly, 138, pp. 551 - 556
    Journal articles | 2008
    Scully JL, 2008, 'DNA: Promise and Peril', Social History of Medicine, 21, pp. 593 - 595, http://dx.doi.org/10.1093/shm/hkn088
    Journal articles | 2008
    Scully JL, 2008, 'Disability and genetics in the era of genomic medicine', Nature Reviews Genetics, 9, pp. 797 - 802, http://dx.doi.org/10.1038/nrg2453
    Journal articles | 2007
    Mackenzie C; Scully JL, 2007, 'Moral imagination, disability and embodiment', Journal of Applied Philosophy, 24, pp. 335 - 351, http://dx.doi.org/10.1111/j.1468-5930.2007.00388.x
    Journal articles | 2007
    Scully JL; Porz R; Rehmann-Sutter C, 2007, ''You don't make genetic test decisions from one day to the next' - Using time to preserve moral space', Bioethics, 21, pp. 208 - 217, http://dx.doi.org/10.1111/j.1467-8519.2007.00546.x
    Journal articles | 2007
    Scully JL, 2007, 'Moral understandings: A feminist study in ethics', BioSocieties, 2, pp. 277 - 278, http://dx.doi.org/10.1017/s1745855207225542
    Journal articles | 2007
    Scully JL, 2007, 'The Troubled Dream of Genetic Medicine: Ethnicity and Innovation in Tay-Sachs, Cystic Fibrosis, and Sickle Cell Disease', Social History of Medicine, 20, pp. 402 - 403, http://dx.doi.org/10.1093/shm/hkm050
    Journal articles | 2006
    Banks S; Scully JL; Shakespeare T, 2006, 'Ordinary ethics: Lay people's deliberations on social sex selection', New Genetics and Society, 25, pp. 289 - 303, http://dx.doi.org/10.1080/14636770601032890
    Journal articles | 2006
    Scully JL; Banks S; Shakespeare TW, 2006, 'Chance, choice and control: Lay debate on prenatal social sex selection', Social Science and Medicine, 63, pp. 21 - 31, http://dx.doi.org/10.1016/j.socscimed.2005.12.013
    Journal articles | 2006
    Scully JL; Rehmann-Sutter C, 2006, 'Creating Donors: The 2005 Swiss Law on Donation of ‘Spare’ Embryos to hESC Research', Journal of Bioethical Inquiry, 3, pp. 81 - 93, http://dx.doi.org/10.1007/s11673-006-9006-5
    Journal articles | 2006
    Scully JL; Shakespeare T; Banks S, 2006, 'Gift not commodity? Lay people deliberating social sex selection', Sociology of Health and Illness, 28, pp. 749 - 767, http://dx.doi.org/10.1111/j.1467-9566.2006.00540.x
    Journal articles | 2004
    , 2004, 'Research Ethics', JAMA, 292, pp. 3032 - 3032, http://dx.doi.org/10.1001/jama.292.24.3036-b
    Journal articles | 2004
    Scully JL; Rippberger C; Rehmann-Sutter C, 2004, 'Non-professionals' evaluations of gene therapy ethics', Social Science and Medicine, 58, pp. 1415 - 1425, http://dx.doi.org/10.1016/S0277-9536(03)00336-8
    Journal articles | 2004
    Scully JL, 2004, 'What is a disease?', EMBO Reports, 5, pp. 650 - 653, http://dx.doi.org/10.1038/sj.embor.7400195
    Journal articles | 2003
    Scully JL, 2003, 'Drawing Lines, Crossing Lines: Ethics and the Challenge of Disabled Embodiment', Feminist Theology, 11, pp. 265 - 280, http://dx.doi.org/10.1177/096673500301100302
    Journal articles | 2002
    , 2002, 'Jackie Leach Scully', The Lancet, 360, pp. 958 - 958, http://dx.doi.org/10.1016/s0140-6736(02)11037-3
    Journal articles | 2001
    Scully JL; Rehmann-Sutter C, 2001, 'When norms normalize: The case of genetic "enhancement"', Human Gene Therapy, 12, pp. 87 - 95, http://dx.doi.org/10.1089/104303401451004
    Journal articles | 2001
    Scully JL, 2001, 'Drawing a line: Situating moral boundaries in genetic medicine', Bioethics, 15, pp. 189 - 204, http://dx.doi.org/10.1111/1467-8519.00231
    Journal articles | 1998
    Scully J, 1998, 'When Embodiment Isn't Good', Theology and Sexuality, 1998, pp. 10 - 28, http://dx.doi.org/10.1177/135583589800500902
    Journal articles | 1998
    Scully JL, 1998, 'Women, theology and the human genome project', Feminist Theology, 6, pp. 59 - 73, http://dx.doi.org/10.1177/096673509800001705
    Journal articles | 1995
    Leach Scully J; Otten U, 1995, 'Neurotrophin expression modulated by glucocorticoids and oestrogen in immortalized hippocampal neurons', Molecular Brain Research, 31, pp. 158 - 164, http://dx.doi.org/10.1016/0169-328X(95)00047-V
    Journal articles | 1995
    Scully JL; Otten U, 1995, 'Glucocorticoids, neurotrophins and neurodegeneration', Journal of Steroid Biochemistry and Molecular Biology, 52, pp. 391 - 401, http://dx.doi.org/10.1016/0960-0760(94)00190-W
    Journal articles | 1995
    Scully JL; Otten U, 1995, 'NGF: not just for neurons.', Cell Biology International, 19, pp. 459 - 470, http://dx.doi.org/10.1006/cbir.1995.1089
    Journal articles | 1993
    Bracci-Laudiero L; Aloe L; Levi-Montalcini R; Galeazzi M; Schilter D; Scully JL; Otten U, 1993, 'Increased levels of NGF in sera of systemic lupus erythematosus patients', NeuroReport, 4, pp. 563 - 565, http://dx.doi.org/10.1097/00001756-199305000-00025
    Journal articles | 1993
    Scully JL; Otten U, 1993, 'Glucocorticoid modulation of neurotrophin expression in immortalized mouse hippocampal neurons', Neuroscience Letters, 155, pp. 11 - 14, http://dx.doi.org/10.1016/0304-3940(93)90662-5
    Journal articles | 1993
    Scully JL, 1993, 'Book Review : MIDGLEY, Mary, Science as Salvation (London: Routledge, 1992), pp. 239. £20.00. ISBN 0-415-0627103', Feminist Theology, 2, pp. 124 - 126, http://dx.doi.org/10.1177/096673509300000414
    Journal articles | 1991
    Scully JL; Edwards PAW, 1991, 'Transformation of a mammary epithelial cell line by the v‐raf and v‐mos oncogenes', International Journal of Cancer, 48, pp. 128 - 135, http://dx.doi.org/10.1002/ijc.2910480123
  • Preprints | 2023
    Dunn M; Strnadová I; Scully JL; Hansen J; Palmer EE, 2023, Exploring the Barriers and Enablers for the Equitable and Accessible Informed Healthcare Consent Process for People with Intellectual Disability: A Systematic Literature Review, , http://dx.doi.org/10.1101/2023.03.06.23286791
    Conference Papers | 2022
    Elmhamudi A; Abubakar A; Ugail H; Thomson B; Wilson C; Turner M; Manas D; Tingle S; Colenutt S; Sen G; Hunter J; Sun M; Scully J, 2022, 'Deep Learning Assisted Kidney Organ Image Analysis for Assessing the Viability of Transplantation', in International Conference on Software, Knowledge Information, Industrial Management and Applications, SKIMA, pp. 204 - 209, http://dx.doi.org/10.1109/SKIMA57145.2022.10029406
    Preprints | 2022
    Freeman L; Kirk E; Scully JL; Delatycki M, 2022, Views of healthcare professionals on the inclusion of genes associated with non-syndromic hearing loss in reproductive genetic carrier screening, , http://dx.doi.org/10.21203/rs.3.rs-1726721/v1
    Preprints | 2022
    Palmer E; Danker J; Strnadová I; Loblinzk J; Jackaman K-M; Scully JL; Dunn M; Sarfaraz S; Tso M; Boyle J; Fitzgerald V; Sierra Classen Sierra Classen1 , 2022, “I am not a number!” Opinions and preferences of people with intellectual disability about genomic healthcare., , http://dx.doi.org/10.21203/rs.3.rs-2150970/v1
    Reports | 2020
    Bennett Moses L; Chappell L; Churches G; Zalnieriute M; Byrnes A; Scully JL; Kemp K; Greenleaf G, 2020, Submission to Federal Attorney General, Privacy Amendment (Public Health Contact Information) Bill 2020, https://www.allenshub.unsw.edu.au/sites/default/files/inline-files/UNSW%20Submission%20to%20AG%20Porter%20re%20COVIDSafe.pdf
    Reports | 2020
    Bennett Moses L; Churches G; Zalnieriute M; Byrnes A; Scully J; Kemp K; Greenleaf G, 2020, COVIDSafe App - Submission to the Parliamentary Joint Committee on Human Rights, https://papers.ssrn.com/sol3/papers.cfm?abstract_id=3595109
    Reports | 2020
    Bennett Moses L; Churches G; Zalnieriute M; Byrnes A; Scully J; Kemp K; Greenleaf G, 2020, Submission to Senate Select Committee on COVID-19 re Privacy Amendment (Public Health Contact Information) Bill 2020, https://unsw.sharepoint.com/:b:/s/LawResearchSupport/ETsj6l0D8oBKhaCitN3nhssBB1QHxQsaXLMp9_9rXmF9vQ?e=46zOJ3
    Conference Papers | 2020
    Mouyal AV; Gurtin Z; Scully JL; Harper J, 2020, 'The infertility and fertility treatment experiences of Orthodox Jewish women in London', in HUMAN REPRODUCTION, OXFORD UNIV PRESS, ELECTR NETWORK, pp. I351 - I351, presented at 36th Virtual Annual Meeting of the European-Society-of-Human-Reproduction-and-Embryology (ESHRE), ELECTR NETWORK, 05 July 2020 - 08 July 2020, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000552121501339&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
    Other | 2015
    Dodds S; Ells C; Garry A; Holmes HB; Purdy L; Rawlinson MC; Scully JL; Tong R, 2015, In tribute to Anne Donchin (1930–2014), University of Toronto Press,
    Preprints |
    Bennett Moses L; Churches G; Zalnieriute M; Byrnes AC; Scully JL; Kemp K; Greenleaf G, COVIDSafe App - Submission to the Parliamentary Joint Committee on Human Rights, , http://dx.doi.org/10.2139/ssrn.3595109
    Preprints |
    Bennett Moses L; Land LPW; Zalnieriute M; Zhao S; Nicholson K; de Sousa T; Sisson S; Tani M; Zlatanova S; Scully JL; Brown G; Krebs S, Submission: Australian Data Strategy Discussion Paper - Appendix 3 (Initial Consultation questions), , http://dx.doi.org/10.2139/ssrn.4066124

 

Reproductive autonomy in the genomic age. Co-applicant with Professor Ainsley Newson, Dr Rosalind McDougall, Dr Kathryn MacKay, A/Prof Jan Hodgson, Professor Brenda Wilson. Australian Research Council, AUD279,363 (2020)

I am a Chief Investigator in TARGeT, a project investigating ideas of reproductive autonomy in an age of genomic testing. The project, funded by the Australian Research Council, aims to provide a better way to help people to think and reflect about new forms of genetic testing in pregnancy. These tests are on the rise, and yet are occurring in a setting that many see as highly individualistic and problematic in terms of the increased levels of information and choice. The project’s interdisciplinary team will aim use empirical data to generate new theoretical and practical knowledge, to re-frame the concept of 'reproductive autonomy' for these settings. Expected outcomes include new bioethics knowledge, innovations in research methodologies, new data, and recommendations for practice. The project will provide the first analysis of how our ideas about autonomy in the reproductive setting need to change, to ensure that new tests in pregnancy are offered and used well.

https://targetautonomy.blogspot.com/2020/06/introducing-target-project-on.html/

 

Vulnerability and justice in global health emergency regulation: developing future ethical models. Co-applicant with principal applicant Dr Agomoni Ganguli Mitra. Wellcome Trust Seed Award in Humanities and Social Science, GBP 66,000 (2018).

Faithful judgements in reflection and discernment. Principal applicant with 1 co-applicant. ESRC North East Impact Acceleration Account, GBP 8,150 (2017-2018)

Faithful judgements in policy and practice. Principal applicant with 2 co-applicants. ESRC North East Impact Acceleration Account, GBP 8,810 (2015-2016)

Technologies of identification and responses to mass death: a PEALS symposium on the social and ethical aspects of DVI. Principal applicant with 2 co-applicants. Wellcome Trust Small Grant, GBP 4,250 (2014).

Practices of responsibility in change. Co-applicant as part of international consortium. Netherlands Organisation for Scientific Research, EUR 50,120 (2014-2017).

Faithful judgements: the role of religion in lay people’s ethical evaluations of new reproductive and genetic technologies. Principal investigator, with 2 co-investigators, 1 research associate. Economic and Social Research Council grant RES-062-23-3210, GBP 252,438 (2011-2014).

Naming the dead: social, ethical, legal and political issues of disaster victim identification by DNA. Development of international research network leading to Brocher Foundation workshop held 4-7 December 2012, Geneva. Brocher Foundation funding to cover workshop expenses, value approx. GBP 11,000.

Parenthood and non-parenthood in an age of assisted conception. British Academy Small Grant, GBP 7,500 (2009-2011). With Dr Stephanie Lawler.

Ethical decisions about the fate of embryos: the views and approaches of couples undergoing IVF. Swiss National Science Foundation grant 1115-65990, EUR 233,917 (2005-2008). Principal investigator, one research associate.

Ordinary ethics: moral evaluation of the new genetics by non-professionals. Wellcome Trust grant 068439/Z/02/Z, EUR 114,088 (2002-2005).

Time as a contextual element in ethical decision-making in the field of genetic diagnostics. Swiss National Science Foundation grant 1114-64956.01, EUR 206,140 (2002-2005). Principal investigator, one PhD student.

Perceptions of healing needs: somatic gene therapy, disability and identity. Swiss National Research Priority Programme Project 37, grant 4037-53073, EUR 84,095 (1998-2001). Second investigator, one research associate.

Ethical and theological issues in genetic manipulation. Rowntree Charitable Trust Fellowship, EUR 38,705 (1995-1997).

Earlier research projects were in the fields of molecular neurodegeneration and oncogenesis.

Fellow of the Academy of Social Sciences (UK)

Fellow of the Royal Society of Arts (UK)

My overarching bioethical interest is in the formation of moral understandings, and particularly how personal and social identities shape and reflect moral understandings and responses.  Part of the ‘sociological move’ within bioethics, this work also reflects a longstanding interest in the experiences of socially marginalised groups in healthcare and life sciences.These areas have been pursued through substantive projects addressing the ethics of assisted reproductive technologies; prenatal diagnosis and selection; genomic medicine; neuroethics, including neuroprostheses and brain-computer interfaces; artificial intelligence and robotics; and organ transplantation.

Throughout this research I've had an ongoing interest in the body, and the place of ‘normal’ and ‘anomalous’(or disabled) embodiment in social and moral life, as well as the effect of biomedical and biotechnological innovations on the relationship between the body and identity. A substantial part of this area of my work focuses on bioethics' engagement with disability, which I wrote about in Disability Bioethics: Moral Bodies, Moral Difference (2008) and a number of other papers since. Work on the body has also considered a very different kind of embodiment in several papers on the socioethics of recovering and identifying human remains, in contemporary and historical contexts. Most recently I have collaborated in an interdisciplinary, international project on justice and vulnerability in global health emergencies, funded by the Wellcome Trust, examining how disability is treated in humanitarian responses.

Much of my work uses or is based on empirical methodologies, and I have contributed to the ongoing discussion within bioethics about the use of empirical knowledge in normative theory.

The social focus of much of my research has also led to significant involvement in public engagement in healthcare evaluation and policy making, both practically and in terms of investigating how (if) public engagement works, and how it might be made more effective.

 

My Research Supervision

Lucinda Freeman, Exploring stakeholder attitudes toward reproductive carrier screening for inherited non-syndromic deafness

Co-supervising with Professor Edwin Kirk (School of Children's and Women's Health, UNSW) and Professor Martin Delatycki (Murdoch Children's Institute)

Reproductive carrier screening is a relatively new form of genetic testing which identifies couples who have an increased chance of having a child with certain genetic conditions.  Couples who are found to have an increased chance can then consider whether they would use this information in their reproductive decision making.  This screening is generally thought to be acceptable for serious early onset genetic conditions, but there are many genetic conditions that are considered less serious but could potentially be included in screening, so couples could screen for these ‘milder’ genetic conditions in the same way.  These include genetic forms of deafness.

Lucinda is using a mixed methods approach to explore the views on genetic testing for deafness of those with a lived experience of hearing loss, healthcare providers who will be involved with facilitating reproductive carrier screening in the future, and members of the public who have had reproductive carrier screening through a research study called Mackenzie’s Mission.  This important study is an opportunity to document the different perspectives and explore whether or not deafness is a genetic condition that fits the framework of a population wide reproductive carrier screening program.