Ms Janelle Weise

Senior Research Fellow

BApSc(OT) Hons, MPH, PhD

Medicine & Health
School of Clinical Medicine

Dr Janelle Weise is an Occupational Therapist who has a Bachelor of Applied Science (Occupational Therapy) (Hons), a Masters of Public Health and her PhD in intellectual disability health.

Dr Weise has worked across clinical, service delivery and managerial roles within the disability and health sectors. She is passionate about addressing the inequitable access to healthcare and poor health outcomes experienced by people with an intellectual disability and other vulnerable populations. As a researcher she has worked on a range of initiatives to enhance the capacity of the health care sector to deliver accessible, effective and efficient healthcare to people with an intellectual disability. 

She has expertise in mixed methods, co-design, and working with people with lived experience. 

 

Phone
+61 (2) 9065 9915
  • Journal articles | 2024
    Brooker KS; De Greef R; Trollor JN; Franklin CS; Weise J, 2024, 'Intellectual disability healthcare in Australia: Progress, challenges, and future directions', Journal of Policy and Practice in Intellectual Disabilities, 21, http://dx.doi.org/10.1111/jppi.12497
    Journal articles | 2024
    Ong N; Lucien A; Long J; Weise J; Burgess A; Walton M, 2024, 'What do parents think about the quality and safety of care provided by hospitals to children and young people with an intellectual disability? A qualitative study using thematic analysis', Health Expectations, 27, http://dx.doi.org/10.1111/hex.13925
    Journal articles | 2023
    Arnold SRC; Bruce G; Weise J; Mills CJ; Trollor JN; Coxon K, 2023, 'Barriers to healthcare for Australian autistic adults', Autism, 28, pp. 301 - 315, http://dx.doi.org/10.1177/13623613231168444
    Journal articles | 2023
    Arnold SRC; Higgins JM; Weise J; Desai A; Pellicano E; Trollor JN, 2023, 'Confirming the nature of autistic burnout', Autism, 27, pp. 1906 - 1918, http://dx.doi.org/10.1177/13623613221147410
    Journal articles | 2023
    Arnold SRC; Higgins JM; Weise J; Desai A; Pellicano E; Trollor JN, 2023, 'Towards the measurement of autistic burnout', Autism, 27, pp. 1933 - 1948, http://dx.doi.org/10.1177/13623613221147401
    Journal articles | 2023
    Ong N; Lucien A; Long JC; Weise J; Walton M; Burgess A, 2023, 'What do healthcare staff think about the quality and safety of care provided to children and young people with an intellectual disability? A qualitative study using the framework method of analysis', BMJ Open, 13, http://dx.doi.org/10.1136/bmjopen-2022-071494
    Journal articles | 2022
    Eagleson C; Weise J; Cvejic RC; Trollor JN, 2022, 'Evaluation of an intellectual disability mental health core competency framework', Journal of Mental Health Training, Education and Practice, 17, pp. 391 - 407, http://dx.doi.org/10.1108/JMHTEP-05-2021-0051
    Journal articles | 2022
    Ong N; Long JC; Weise J; Walton M, 2022, 'Responding to safe care: Healthcare staff experiences caring for a child with intellectual disability in hospital. Implications for practice and training', Journal of Applied Research in Intellectual Disabilities, 35, pp. 675 - 690, http://dx.doi.org/10.1111/jar.12978
    Journal articles | 2022
    Ong N; Mimmo L; Barnett D; Long J; Weise J; Walton M, 2022, 'Reported clinical incidents of children with intellectual disability: A qualitative analysis', Developmental Medicine and Child Neurology, 64, pp. 1359 - 1365, http://dx.doi.org/10.1111/dmcn.15262
    Journal articles | 2022
    Weise JC; Srasuebkul P; Trollor JN, 2022, 'Potentially preventable hospitalisations of people with intellectual disability in New South Wales', Medical Journal of Australia, 216, pp. 161 - 161, http://dx.doi.org/10.5694/mja2.51390
    Journal articles | 2021
    Higgins JM; Arnold SRC; Weise J; Pellicano E; Trollor JN, 2021, 'Defining autistic burnout through experts by lived experience: Grounded Delphi method investigating #AutisticBurnout', Autism, 25, pp. 2356 - 2369, http://dx.doi.org/10.1177/13623613211019858
    Journal articles | 2021
    Walsh JA; Weise J; Eagleson C; Trollor JN; Cvejic RC, 2021, 'Expert consensus on the operation of an adult tertiary intellectual disability mental health service in New South Wales, Australia', Australasian Psychiatry, 29, pp. 635 - 643, http://dx.doi.org/10.1177/10398562211014228
    Journal articles | 2021
    Weise J; Mohan A; Walsh J; Trollor JN, 2021, 'Salutary Lessons from the Delivery of Mental Health Services to People with Intellectual Disability–A Historical Perspective from Intellectual Disability Mental Health Experts in New South Wales, Australia', Journal of Mental Health Research in Intellectual Disabilities, 14, pp. 70 - 88, http://dx.doi.org/10.1080/19315864.2020.1856243
    Journal articles | 2021
    Weise JC; Srasuebkul P; Trollor JN, 2021, 'Potentially preventable hospitalisations of people with intellectual disability in New South Wales', Medical Journal of Australia, 215, pp. 31 - 36, http://dx.doi.org/10.5694/mja2.51088
    Journal articles | 2020
    Weise J; Cvejic R; Eagleson C; Trollor JN, 2020, 'A Scoping Study of a Tertiary Intellectual Disability Mental Health Service: A Family Member and Support Person Perspective', Journal of Mental Health Research in Intellectual Disabilities, 13, pp. 141 - 156, http://dx.doi.org/10.1080/19315864.2020.1753268
    Journal articles | 2020
    Weise J; Fisher KR; Turner B; Trollor JN, 2020, 'What is the capability of the Australian mental health workforce to meet the needs of people with an intellectual disability and co-occurring mental ill health?', Journal of Intellectual and Developmental Disability, 45, pp. 184 - 193, http://dx.doi.org/10.3109/13668250.2019.1622659
    Journal articles | 2019
    Davies K; Eagleson C; Weise J; Cvejic RC; Trollor JN, 2019, 'Clinical capacity of Australian and New Zealand psychiatrists who work with people with intellectual and developmental disabilities', Australasian Psychiatry, 27, pp. 506 - 512, http://dx.doi.org/10.1177/1039856219859286
    Journal articles | 2019
    Eagleson C; Cvejic RC; Weise J; Davies K; Trollor JN, 2019, 'Subspecialty training pathways in intellectual and developmental disability psychiatry in Australia and New Zealand: current status and future opportunities', Australasian Psychiatry, 27, pp. 513 - 518, http://dx.doi.org/10.1177/1039856219839468
    Journal articles | 2019
    Reppermund S; Weise J; Cvejic R; Trollor J, 2019, 'How Can We Provide Better Healthcare for People With An Intellectual Disability?', Frontiers for Young Minds, 7, pp. 124, http://dx.doi.org/10.3389/frym.2019.00124
    Journal articles | 2019
    Trollor J; Weise J, 2019, 'Inclusive and collaborative practice: the key to accessible mental health services for people with an intellectual disability and co-occurring mental ill health', The Australian Journal on Psychosocial Rehabilitation, Summer 2018-2019
    Journal articles | 2018
    Cvejic RC; Eagleson C; Weise J; Davies K; Hopwood M; Jenkins K; Trollor JN, 2018, 'Building workforce capacity in Australia and New Zealand: a profile of psychiatrists with an interest in intellectual and developmental disability mental health', Australasian Psychiatry, 26, pp. 595 - 599, http://dx.doi.org/10.1177/1039856218781018
    Journal articles | 2018
    Weise J; Fisher KR; Whittle E; Trollor J, 2018, 'What can the experiences of people with an intellectual disability tell us about the desirable attributes of a mental health professional?', Journal of Mental Health Research in Intellectual Disabilities, 11, pp. 183 - 202, http://dx.doi.org/10.1080/19315864.2018.1469700
    Journal articles | 2018
    Weise J; Trollor JN, 2018, 'Preparedness and training needs of an Australian public mental health workforce in intellectual disability mental health', Journal of Intellectual and Developmental Disability, 43, pp. 431 - 440, http://dx.doi.org/10.3109/13668250.2017.1310825
    Journal articles | 2017
    Trollor JN; Eagleson C; Weise J; McKay R, 2017, 'Development and dissemination of a core competency framework', Journal of Mental Health Training, Education and Practice, 12, pp. 237 - 248, http://dx.doi.org/10.1108/jmhtep-04-2017-0028
    Journal articles | 2017
    Weise J; Fisher KR; Trollor J, 2017, 'Establishing Core Mental Health Workforce Attributes for the Effective Mental Health Care of People with an Intellectual Disability and Co-occurring Mental Ill Health', Journal of Applied Research in Intellectual Disabilities, 30, pp. 22 - 33, http://dx.doi.org/10.1111/jar.12407
    Journal articles | 2017
    Weise J; Fisher KR; Trollor J, 2017, 'What makes generalist mental health professionals effective when working with people with an intellectual disability? A family member and support person perspective', Journal of Applied Research in Intellectual Disabilities, 31, pp. 413 - 422, http://dx.doi.org/10.1111/jar.12420
    Journal articles | 2017
    Weise J; Pollack A; Britt H; Trollor JN, 2017, 'Primary health care for people with an intellectual disability: an exploration of consultations, problems identified, and their management in Australia', Journal of Intellectual Disability Research, 61, pp. 399 - 410, http://dx.doi.org/10.1111/jir.12352
    Journal articles | 2017
    Weise J; Pollack AJ; Britt H; Trollor JN, 2017, 'Who provides primary health care for people with an intellectual disability: General practitioner and general practice characteristics from the BEACH dataset', Journal of Intellectual and Developmental Disability, 42, pp. 416 - 421, http://dx.doi.org/10.3109/13668250.2016.1250252
    Journal articles | 2016
    Weise J; Fisher KR; Trollor J, 2016, 'The utility of a modified on-line Delphi method to define workforce competencies: lessons from the intellectual disability mental health core competencies project', Journal of Policy and Practice in Intellectual Disabilities, 13, pp. 15 - 22, http://dx.doi.org/10.1111/jppi.12142
    Journal articles | 2016
    Weise J; Pollack A; Britt H; Trollor JN, 2016, 'Primary health care for people with an intellectual disability: an exploration of demographic characteristics and reasons for encounters from the BEACH programme', Journal of Intellectual Disability Research, 60, pp. 1119 - 1127, http://dx.doi.org/10.1111/jir.12301
    Journal articles | 2015
    Jeon YH; Conway J; Chenoweth L; Weise J; Thomas TH; Williams A, 2015, 'Validation of a clinical leadership qualities framework for managers in aged care: A Delphi study', Journal of Clinical Nursing, 24, pp. 999 - 1010, http://dx.doi.org/10.1111/jocn.12682
    Journal articles | 2014
    Jeon YH; Govett J; Low L-F; Chenoweth L; Fethney J; Brodaty ; O'Connor D, 2014, 'Assessment of behavioural and psychological symptoms of dementia in the era of the aged care funding instrument', The Internet Journal of Psychiatry, 3, pp. N/A, http://ispub.com/IJPSY/3/1/14814%23
    Journal articles | 2013
    Jeon Y-H; Govett J; Low L-F; Chenoweth L; McNeill G; Hoolahan A; Brodaty H; O’Connor D; unknown , 2013, 'Care planning practices for behavioural and psychological symptoms of dementia in residential aged care: A pilot of an education toolkit informed by the Aged Care Funding Instrument', Contemporary Nurse, 44, pp. 156 - 169, http://dx.doi.org/10.5172/conu.2013.44.2.156
    Journal articles | 2012
    Jeon YH; Black A; Govett J; Yen L; McRae I, 2012, 'Private health insurance and quality of life: Perspectives of older Australians with multiple chronic conditions', Australian Journal of Primary Health, 18, pp. 212 - 219, http://dx.doi.org/10.1071/PY11059
  • Preprints | 2023
    R KF; Purcal C; Weise J; O’Shea P; Trollor J, 2023, Hub and spokes in intellectual disability mental health support, , http://dx.doi.org/10.22541/au.168679667.78974641/v1
    Conference Abstracts | 2022
    Arnold S; Higgins J; Weise J; Desai A; Pellicano L; Trollor J, 2022, 'DIAGNOSIS OF AUTISTIC BURNOUT SYNDROME', in AUSTRALIAN AND NEW ZEALAND JOURNAL OF PSYCHIATRY, SAGE PUBLICATIONS LTD, Vol. 56, pp. 97 - 98, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000792769900231&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
    Conference Abstracts | 2017
    Eagleson C; Weise J; Birch R; Trollor J, 2017, 'EQUIPPING PSYCHIATRISTS TO MEET THE MENTAL HEALTH NEEDS OF PEOPLE WITH AN INTELLECTUAL DISABILITY', in AUSTRALIAN AND NEW ZEALAND JOURNAL OF PSYCHIATRY, SAGE PUBLICATIONS LTD, Vol. 51, pp. 47 - 47, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000403466600113&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
    Conference Abstracts | 2017
    Trollor J; Livingstone A; Salomon C; Weise J; Eagleson C; Walsh J; Birch R, 2017, 'INITIATIVES TO BUILD WORKFORCE CAPACITY IN INTELLECTUAL DISABILITY MENTAL HEALTH', in AUSTRALIAN AND NEW ZEALAND JOURNAL OF PSYCHIATRY, SAGE PUBLICATIONS LTD, Vol. 51, pp. 46 - 46, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000403466600110&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
    Conference Presentations | 2014
    Mohan A; Weise J; Trollor J, 2014, 'A HISTORICAL PERSPECTIVE OF INTELLECTUAL DISABILITY MENTAL HEALTH (IDMH) SERVICES IN NEW SOUTH WALES', https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000337594500243&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
    Conference Presentations | 2014
    Trollor JN; Weise J; Pollack A; Britt H, 2014, 'Access to primary health care and problems managed for people with an intellectual disability: lessons from the BEACH dataset', https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000338992800176&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Preventive health care for people with intellectual disability.

Project page here: https://www.3dn.unsw.edu.au/projects/nhmrc-partnership-project-preventive-healthcare-people-intellectual-disability

Service pathway tool for people with intellectual disability: Intellectual Disability Health My Way

Website here: https://idmhconnect.health/

Project page here: https://www.3dn.unsw.edu.au/projects/intellectual-disability-mental-health-service-pathway-tool

Improving palliative care for people with intellectual distality

Project page here: https://www.3dn.unsw.edu.au/projects/improving-palliative-care-services-people-intellectual-disability

Evaluation of the Intellectual Disability Mental Health Hubs

Project page here: https://www.unsw.edu.au/research/sprc/our-projects/evaluation-the-hubs

Curriculum development in intellectual disability health

Project page here: https://www.health.gov.au/our-work/curriculum-development-in-intellectual-disability-health

Patient safety for children and young people with intellectual disability

 

 

My Research Supervision

Phd student, Honours/ILP students

My Teaching

Phase 2 Society and Health: Intellectual Disability Mental Health & Communication