Our Health Systems & Survivorship research focuses on creating health services, models of care, and interventions that educate and empower young people with serious illnesses to better understand and manage their long-term health outcomes.
Our primary goal is to equip these individuals with the knowledge and resources they need to navigate the healthcare system, access essential care, and adopt healthy lifestyles that minimise the risk of further illness-related complications.
Our expert researchers led the ANZCHOG Survivorship Study, involving one of the largest cohorts of childhood cancer survivors in the Southern Hemisphere. This initiative addressed critical questions about childhood cancer, including the long-term late effects of chemotherapy. By understanding modifiable risk factors, we aim to develop evidence-based interventions that reduce the burden of illness and improve the quality of life for young survivors.
Our team is at the forefront of developing and testing innovative solutions to support young people with cancer and chronic health conditions. Some of our most recent projects include:
- Transition Compass: A scalable, SMS/video-based intervention that supports young people with chronic health conditions during their transition from paediatric to adult care.
- Engage: A new model of care designed to overcome survivor-reported barriers to follow-up care and provide comprehensive medical and psychosocial support in the years after cancer treatment. This program has been trialled among childhood cancer survivors, brain cancer survivors and is now being prepared for a trial with survivors treated during adolescence and young adulthood.
- Making Moves: An exercise intervention developed and piloted to encourage childhood cancer survivors to engage in regular physical activity, addressing physical and psychological late effects of treatment.
With multiple active studies underway, the Health Systems & Survivorship team is dedicated to delivering tangible outcomes that benefit young people, their families, and the broader healthcare system. Our research seeks to transform survivorship care, reduce health inequities, and ensure that every young person has the opportunity to lead a healthy and fulfilling life after serious illness.
Research team
Research studies
Previous studies
Reboot Kids hopes to better support childhood cancer survivors and their families with eating habits after treatment.
The iSurvived study aims to systematically develop an evidence-based model of best care for the Long Term Follow Up of paediatric cancer survivors.
The PICASSO study aimed to determine cardiovascular fitness among childhood cancer survivors.
iBounce aimed to support young childhood cancer survivors in physical activity using a digital health education program and wearable activity trackers.